Because many patients cannot afford to pay for the full cost of organ transplant surgery, or even a small insurance deductible amount, using their personal funds, it is common for patients explore other options to help them fund their procedure.
The following organizations may provide financial assistance to transplant candidates or recipients and their families. This is a sample listing and should not be interpreted as a comprehensive list or an endorsement. Ask your transplant financial team, insurance provider or employee benefits officer for the latest information or help.
Financial
Air Charity Network
www.aircharitynetwork.org
877-621-7177
Transports ambulatory patients up to a distance of 500 to 700 miles using private pilots and their aircraft. Can transport people for transplant and follow-up appointments. Medical and financial need must be documented. Service is free of charge.
Air Care Alliance
www.aircarealliance.org
2060 State Highway 595
Lindrith, New Mexico 87029
888-260-9707
Provides the only central listing of all known groups whose members perform free public benefit flights for patient transport and other missions of public service.
Angel Flight
www.angelflight.com
12345 E. Skelly Drive
Tulsa, OK 74128
918-749-8992
Provides free air transportation on private aircraft for needy people with healthcare problems and for healthcare agencies, organ procurement organizations, blood banks and tissue banks. No fees of any kind. Volunteers serving the public since 1983.
COTA (Children’s Organ Transplant Association)
www.cota.org
[email protected]
2501 West COTA Drive
Bloomington, IN 47403
800-366-2682
Helps children and young adults who need a life-saving transplant (organ,bone marrow and cord blood) by providing fundraising assistance and family support. COTA does not charge for its services and does not take a percentage of funds raised.
Georgia Transplant Foundation (GTF)
www.gatransplant.org
2201 Macy Drive
Roswell, GA 30076
770-457-3796
Provides both financial and educational assistance during a time that is often overwhelming for those undergoing or waiting for a transplant throughout the entire state of Georgia.
GiveForward
www.GiveForward.com
Empowers families to create individual fundraising pages for their loved ones facing a medical crisis.
Health Insurance Marketplace
www.healthcare.gov
800-318-2596
Stay up to date on health insurance regulation and policy information and learn more about your health insurance options under the Affordable Care Act.
Help Hope Live
www.helphopelive.org
[email protected]
800-642-8399
Help Hope Live supports community-based fundraising for people with unmet medical expenses and related costs due to cell and organ transplants or catastrophic injuries and illnesses. These efforts play a critical role in helping clients access the care and equipment they need to heal, live, and thrive.
Medicare Hotline
www.medicare.gov
7500 Security Blvd
Baltimore, MD 21244-1850
800-MEDICARE (1-800-633-4227)
For specific billing questions and questions about your claims, medical records, or expenses, log into MyMedicare.gov, or call us at 1-800-MEDICARE.
National Living Donor Assistance Center (NLDAC)
www.livingdonorassistance.org
2461 S. Clark Street, Suite 640
Arlington, VA 22202
703-414-1600
This program provides financial assistance to those who want to donate an organ, priority is given to individuals not otherwise able to afford the travel and subsistence expenses associated with living organ donation.
National Organization of Social Security Claimants’ Representatives
www.nosscr.org
560 Sylvan Ave, Suite 2200
Englewood Cliffs, NJ 07632
201-567-4228
The National Organization of Social Security Claimants’ Representatives (NOSSCR) is a specialized bar association for attorneys and advocates who represent Social Security Disability Insurance and Supplement Security Income claimants throughout the adjudicative process.
Patient Education and Advocacy
These organizations may be able to provide patient education and patient advocacy services.
American Association for the Study of Liver Diseases
www.aasld.org
1001 North Fairfax Street
4th floor
Alexandria, Virginia 22314
703-299-9766
American Association of Kidney Patients
www.aakp.org
[email protected]
14440 Bruce B. Downs Blvd.
Tampa, FL 33613
813-636-8100
American Diabetes Association
www.diabetes.org
800-DIABETES (342-2383)
American Heart Association
www.heart.org/
7272 Greenville Ave.
Dallas, TX 75231-4596
800-242-8721
American Liver Foundation
www.liverfoundation.org
[email protected]
PO Box 299
West Orange, NJ 07052
800-465-4837
American Medical Association
www.ama-assn.org
330 N. Wabash Ave., Suite 39300
Chicago, IL 60611-5885
800-621-8335
American Organ Transplant Association
www.aotaonline.org
P. O. Box 418
Stilwell, KS 66085
832-930-2682
American Society for Histocompatibility & Immunogenetics
American Society of Nephrology
www.asn-online.org
[email protected]
1510 H Street, NW
Suite 800
Washington, DC 20005
202-640-4660
American Society of Transplantation
www.myast.org/
National Office
1120 Route 73
Suite 200 Mt. Laurel, NJ 08054
856-439-9986
American Society of Transplant Surgeons
www.asts.org
2461 South Clark St., Suite 640
Arlington, VA 22202
703-414-7870
American Thoracic Society
www.thoracic.org
25 Broadway
New York, NY 10004
212-315-8600
American Urological Association
www.auanet.org
[email protected]
1000 Corporate Boulevard
Linthicum, MD 21090
410-689-3700
Association for Multicultural Affairs in Transplantation
www.amat1.org
10825 Midlothian Turnpike, Suite 201R
Richmond, VA 23235
844-654-2628
Association of Organ Procurement Organizations
www.aopo.org
8500 Leesburg Pike, Suite 300
Vienna, Virginia, 22182
703-556-4242
Forum of ESRD Networks
www.esrdnetworks.org
Post Office Box 203
Birchwood, Wisconsin 54817
715-354-3735
International Society for Heart and Lung Transplantation (ISHLT)
www.ishlt.org
[email protected]
14673 Midway Road, Suite 200
Addison, Texas 75001
972-490-9495
International Transplant Nurses Society
www.itns.org
8735 W. Higgins Road, Suite 300
Chicago, IL 60631
847-375-6340
Joint Commission on the Accreditation of Healthcare Organizations
www.jointcommission.org
1 Renaissance Blvd.
Oak Brook Terrace, IL 60181
630-792-5800
Juvenile Diabetes Foundation International
www.jdrf.org
26 Broadway, 14th floor
New York, NY 10004
800-533-2873
Kidney and Urology Foundation of America
www.kidneyurology.org
104 West 40th Street, Suite 500
New York, NY 10018
800-633-6628
The Living Bank
www.livingbank.org
[email protected]
PO Box 6725
4545 Post Oak Pl Dr #340
Houston, TX 77027
800-528-2971
National Kidney Foundation
www.kidney.org
[email protected]
30 E. 33rd St.
New York, NY 10016
800-622-9010
National Minority Organ and Tissue Transplant Education Program (MOTTEP)
www.natlmottep.org
2041 Georgia Avenue, NW
Room 4B21
Washington, DC 20060
202-865-4888
National Organization for Rare Disorders
rarediseases.org
55 Kenosia Avenue
Danbury, CT 06810
203-744-0100
North American Transplant Coordinators Organization (NATCO)
www.natco1.org
12820 Rose Grove Dr.
Oak Hill, VA 20171
703-483-9820
Second Wind Lung Transplant Association, Inc.
www.2ndwind.org
2781 Chateau Circle
Columbus, Oh 43221
614-488-1149
Transplant Recipients International Organization, Incorporated (TRIO)
www.trioweb.org
[email protected]
7055 Heritage Hunt Drive, #307
Gainesville VA 20155
800-874-6386
Scholarship Programs
TRIO Scholarship Program
http://www.trioweb.org/resources/trio-scholarships.html
Each year, TRIO’s Scholarship Program gives thousands of dollars in academic grants to transplant candidates, recipients, donors or their family members. These scholarships are generously funded by several TRIO chapters, individuals and interested organizations. Each recipient receives $1,000 toward their education at colleges and universities throughout the United States.
The Jessica Beth Schwartz Scholarship
http://www.donors1.org/patient/resources/jessiesday/
Awards $2,500 scholarships yearly to transplant recipients under the age of 25 who are a senior in high school or enrolled in a 2 or 4 year college, university, or trade/technical school, offered to students residing in the Gift of Life Donor Program (OPO) service area (Eastern half of Pennsylvania, Southern New Jersey or Delaware).
The David Nelson Jr Memorial Fund Scholarship
http://www.donors1.org/donor/nelsonmemorialfund/
This $1,000 scholarship is offered to a donor family’s children living in the Gift of Life Donor Program region (Southern NJ, Delaware, and southeastern Pennsylvania) and is available for private/parochial high school in addition to college, university, trade school.
The Marcena Lozano Memorial Scholarship Fund
http://marcenasmiracles.com/scholarship.html
In memory of their daughter, Marcena, the Lozanos offer several $1,000-$3,000 undergraduate scholarships with preference to candidates in western New York state but awarded to students all across the country.
Legacy of Life Scholarship
https://www.donatelifedc.org/news-events/legacy-of-life-scholarship/
The Washington Regional Transplant Center (WRTC) awards scholarships to high school seniors in their jurisdiction of Virginia (Arlington, Fairfax, Loudoun, Prince William, Stafford, and Fauquier counties and cities of Alexandria, Falls Church, Fairfax, Manassas, and Manassas Park); Maryland (Montgomery, Prince George’s, and Charles counties). Endowed by the Leslie Ebert Memorial Fund.
Kidney & Urology Foundation of America (KUFA) Scholarship
https://www.kidneyurology.org/scholarships/
The Kidney & Urology Foundation of America offers a scholarship and awards program for kidney and urology patients. One of only a few such initiatives in the country, the program is designed to stimulate education and allow individuals to live productively with renal and urologic disease.
The Betty Montoya Gift of Life Scholarship
http://otapnm.com/scholarship
This award honors former APS teacher and kidney transplant recipient Betty Montoya with two $1,000 scholarships and two $500 scholarships to graduating seniors from a New Mexico high school.
Georgia Transplant Foundation
https://www.gatransplant.org/-support-programs/academic-scholarships
The Georgia Transplant Foundation awards seven scholarships to residents of Georgia attending college.
Michael Corea Scholarship
https://www.triocleveland.org/
This scholarship, offered by TRIO Greater Cleveland Chapter, is awarded to a deserving transplant candidate, recipient or living donor who a resident of Ohio.
