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Support groups

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Why join a support group?

Support group

Transplant patients and their families can gain support from many different types of groups, including group gatherings, educational programs, one-on-one support, social activities, newsletters, written materials, Internet groups, and talking on the telephone. As patients’ transplant experiences continue, they often gain confidence and reach out others, in turn making lifelong friends, enjoying social activities and finding opportunities to promote the need for organ and tissue donation.

Hospital groups

Usually run by the hospital transplant coordinator, social worker or other member of the transplant team, these types of support groups may consist of patients who are pre- or post-transplant or are hospitalized with transplant-related problems. These types of groups also typically meet more frequently than non-hospital groups.

Local support groups

Usually run by transplant patient, these groups consist of pre- and post-transplant patients and their families. They allow members who have already had their transplant to help you with the adjustment to a more normal, everyday lifestyle. They usually have monthly meetings and special events.

Online support groups

These groups can provide you with a broad range of experiences from all over the world. In addition, Internet support groups allow allow you to ask personal questions in the comfort of your own home. You can find many Facebook and other social media sites that specialize by organ type or disease.

Professional organizations

Professional organizations provide educational seminars, materials and activities. They also may conduct fundraising to support research and help shape healthcare policy.

Alabama

Heart/Lung/Liver Support Group

University of Alabama at Birmingham

Birmingham, AL

Contact: Stan Smith

Phone: 205-655-3151

E-mail: [email protected]

Alaska

AKPA Support

Alaska Kidney Patients Association

325 East Third #201

Anchorage, AK 99501

Contact: Kristie Lemmon

Web: alaskakidney.org

Phone: 907.333.2257

E-mail: [email protected]

Alaska Transplant Resource Group

Life Alaska Donor Services

Anchorage, AK 99501

Contact: Janet Cornelius, Family Services Coordinator

Contact: Cindy McCann, Family Services Coordinator

Web: www.lifealaska.org

Phone: 907- 562-LIFE (5433)

E-mail: [email protected]

Alaska Transplant Recipient Resource Group

Anchorage, AK

Phone: 907- 562-LIFE (5433)

E-mail: [email protected]

Arizona

Abdominal Transplant Support Group

University of Arizona Medical Center

1501 N. Campbell Avenue, Tucson, AZ 85724

Contact: Sandra Thornton, MSW, LCSW

Phone: 520-694-6628

E-mail: [email protected]

Abdominal Transplant Support Group

University of Arizona Medical Center

1501 N. Campbell Avenue, Tucson, AZ 85724

Contact: Caitlin Yost LMW

Web: www.bannerhealth.com

Phone: 520-694-6149

E-mail: [email protected]

Banner Liver Disease Support Group

Banner Good Samaritan Medical Center

1111 E McDowell Rd, Phoenix, AZ 85006

Contact: Charlie Thomas

Web: www.bannerhealth.com

Phone: 602.839.0219

E-mail: [email protected]

Heart and Lung Transplant Support & Education

Banner University Medical Center – Tucson

1501 North Campbell Avenue, Tucson, AZ 85724

Contact: Martha Moutray, LMSW

Web: www.bannerhealth.com

Phone: 520-240-5108

E-mail: [email protected]

Heart and Lung Transplant Support Groups

University of Arizona Medical Center

1501 N. Campbell Avenue, Tucson, AZ 85724

Contact: Martha Moutray, LMSW

Web: www.uahealth.com

Phone: 520-694-4603

E-mail: [email protected]

Heart/Lung Transplant Support Groups

University Medical Center

1501 N. Campbell Avenue, Tucson, AZ 85724

Contact: Martha Moutray

Phone: 800-524-5927

Kidney Transplant Support Group

University Medical Center

1501 N. Campbell Avenue, Tucson, AZ 85724

Contact: Sandra Thornton, MSW

Phone: 520-694-6628

E-mail: [email protected]

Lung Transplant Support Group

St. Joseph’s Hospital and Medical Center

350 W. Thomas Road, Phoenix, AZ 85013

Contact: Kathy Lam, MSW, LCS

Phone: 602- 406-7009

E-mail: [email protected]

Mayo Clinic Heart Transplant Support Group

Mayo Clinic

AZ 85054

Contact: Nina Menardie

Phone: 480-342-1671

E-mail: [email protected]

The New Life Society

Open to all organ recipients

Various locations in Phoenix

Contact: Zoe Severyn

Web: newlifesociety.org/virtual-support-group

Phone: 602-277-2661

E-mail: [email protected]

Arkansas

Central Arkansas Support Group

AR

Contact: Carolyn Berry

Phone: 870.329.1368

E-mail: [email protected]

Conway Support Group

Conway, AR

Contact: Dale & Debbie Smith

Phone: 501.472.0461

E-mail: [email protected]

Fayetteville Area Transplant Support Group

Fayetteville, AR

Contact: Milton Spooner

Phone: (479) 212-0872

E-mail: [email protected]

Hot Springs Support Group

Hot Springs, AR

Contact: Billy Valentine

Phone: 501.622.7316 / 7416

E-mail: e[email protected]

Russellville Support Group

Russellville, AR

Contact: H.L. & Barbara Shepherd

Phone: 479.968.2471

E-mail: [email protected]

California

A Gift of Heart – Organ Transplant and Donor Support Group

Orange, CA

Web: www.agiftofheart.org

Bay Area Association of Kidney Patients

PO Box 2332, Menlo Park, CA 94026

Web: www.baakp.org

Phone: 650-323-2225

E-mail: [email protected]

Caregiver Solid Organ Transplant Support Group

Stanford Hospital and Clinics

300 Pasteur Drive, Stanford, CA 94305

Contact: Jenny Kwak, LCSW

Phone: 650-498-5831

E-mail: [email protected]

Caregiver Solid Organ Transplant Support Group

UCSF Medical Center

505 Parnassus Avenue, San Francisco, CA 94143

Contact: Brie Kelly, MSW

Phone: 415-353-1040

E-mail: [email protected]

Caregiver Solid Organ Transplant Support Group

Stanford Hospital and Clinics

300 Pasteur Drive, Stanford, CA 94305

Contact: Kimberly Averett, MSW

Phone: 650-498-5428

E-mail: [email protected]

Caregiver Solid Organ Transplant Support Group

Stanford Hospital and Clinics

300 Pasteur Drive, Stanford, CA 94305

Contact: Caitlin West

Phone: 650-723-4440

E-mail: [email protected]

Caregiver Solid Organ Transplant Support Group

Stanford Hospital and Clinics

300 Pasteur Drive, Stanford, CA 94305

Contact: Tonia Gregory

Phone: 650-723-4440

E-mail: [email protected]

Cedars Sinai Multi-Organ Transplant Support Group

Cedars-Sinai Medical Center

8700 Beverly Blvd., Room 2802, Los Angeles, CA 90048

Contact: Carlie Galloway, LCSW

Phone: 310-423-6850

E-mail: [email protected]

Coachella Valley Hepatitis C, Liver Disease and Transplant Support Group

Portola Community Center

45480 Portola Ave, Palm Desert, CA 92260

Contact: Richard Darling, DDS

Web: fairfoundation.org

Phone: 760-200-2766

E-mail: [email protected]

Heart and Lung Transplant Support Group

UCSF Medical Center

San Francisco, CA

Contact: Nikki Galin, LCSW

Phone: 415-353-8818

E-mail: [email protected]

Heart Transplant Support Group

Sharp Memorial Hospital

7901 Frost Street, San Diego, CA 92123

Web: www.sharp.com/transplant

Phone: 800-82-SHARP

Heart Transplant Support Group

Stanford Hospital and Clinics

300 Pasteur Drive, Stanford, CA 94305

Contact: Cathy Miller

Phone: 650-723-5581

E-mail: [email protected]

Hep C and Liver Transplant Support Group

American Liver Foundation, CA

Contact: Holly Heller

Web: Liverfoundation.org

Phone: 818-303-2085

E-mail: [email protected]

Kidney and Pancreas Transplant Support Group

UC Irvine Medical Center

101 The City Drive, Orange, CA 92868

Contact: Robin Worker

Phone: 714-456-8342

Kidney and Pancreas Transplant Support Group

UC Irvine Medical Center

18494 Del Bonita St, Rowland Heights, CA 91748

Contact: Maria Salas

Phone: 626-241-3482

E-mail: [email protected]

Liver Support Group

UCLA

Ventura, CA 93003

Contact: Kathy Johnson

Phone: 805-368-3653

E-mail: [email protected]

Liver Support Group

USC University Hospital

1500 San Pablo St., Los Angeles, CA 90033

Phone: 323-442-9626

Liver Support Group

USC University Hospital

1500 San Pablo St., Los Angeles, CA 90033

Contact: Marie Murphy

Phone: 714-213-1816

E-mail: [email protected]

Liver Support Group

USC University Hospital

1500 San Pablo St., Los Angeles, CA 90033

Contact: Marla Frankel, LCSW CCTSW

Phone: 323-442-9632

E-mail: [email protected]

Liver Transplant Support Group

UCSF Medical Center

San Francisco, CA

Contact: Sherry Laemmermann, ACSW

Phone: 415-353-1040

Liver Transplant Support Group

UCSF Medical Center

3490 e Clinton Ave, Fresno, CA 93703s

Contact: Sherry Laemmermann, ACSW

Phone: 415-353-1040

E-mail: [email protected]

Liver Transplant Support Group

UCLA Medical Center

10833 LeConte Ave., Los Angeles, CA 90024

Contact: Elisa Geraci, MSW

Phone: 310-825-5921

E-mail: [email protected]

Liver Transplant Support Group

UCSF Medical Center

2802e Andrew Ave, Fresno, CA 93726

Contact: Sherry Laemmermann, ACSW

Phone: 415-353-1040

E-mail: [email protected]

Liver Transplant Support Group

UCLA Medical Center

10833 LeConte Ave., Los Angeles, CA 90024

Contact: Elisa Geraci, BSW MSW ACSW

Phone: 310-825-5921

E-mail: [email protected]

Liver Transplant Support Group

UCSF Medical Center

San Francisco, CA

Contact: Patrick Marsh, Pauline Rogers, Brie Kelly

Phone: 415-353-1504

E-mail: [email protected]

Liver Transplant Support Group

UCSF Medical Center

San Francisco, CA

Contact: Patrick Marsh, Pauline Rogers, Brie Kelly

Phone: 415-353-1504

E-mail: [email protected]

Liver Transplant Support Group

UCLA Medical Center

10833 LeConte Ave., Los Angeles, CA 90024

Contact: Elisa Geraci

Phone: 310-267-9807

E-mail: [email protected]

Liver Transplant Support Group

UCSF Medical Center

San Francisco, CA 64143

Contact: Pauline Rogers

Phone: 415-353-1284

E-mail: [email protected]

Liver Transplant Support Group

UCSF Medical Center

3490 e Clinton Ave, Fresno, CA 93703s

Contact: Nina Kelly

E-mail: [email protected]

Liver Transplant Support Group

UCSF Medical Center

San Francisco, CA

Contact: Brie Pierquet MSW

Phone: 415-353-1040

E-mail: [email protected]

Liver Transplant Support Group

Stanford Hospital and Clinics

300 Pasteur Drive, Stanford, CA 94305

Contact: Jenny Kwak, LCSW

Phone: 650-498-5831

E-mail: [email protected]

Liver Transplant Support Group

Stanford Hospital and Clinics

300 Pasteur Drive, Stanford, CA 94305

Contact: Kimberly Averett, MSW

Phone: 650-498-5428

E-mail: [email protected]

Loma Linda Transplant Support Groups

English

Meets in person the 1st Monday of the month, 2:00-3:30 pm

Location: 197 East Caroline Street San Bernardino, CA 92408

Interested in attending, please email [email protected]

En español

Meets over Zoom the 1st Wednesday of the month, 3:30–4:30 pm

Cuando: El primer miercoles de cada mes de 3:30 pm a 4:30 pm

Zoom: https://llu.zoom.us/join

  • Meeting ID#: 979 3620 9565
  • Meeting password: 831383

Pre and Post Organ Transplant Support Group

ADTAS, Alliance for Donation and Transplantation Awareness and Support

242 E. Hospitality Lane, San Bernardino, CA 92408

Contact: John Mitas

Phone: 951-237-2905

E-mail: [email protected]

Renal Support Network

Studio Hope

621 East Glenoaks Blvd. #B, Glendale, CA 91207

Contact: Mica Spalding

Web: www.rsnhope.org

Phone: (818) 543-0896

E-mail: [email protected] or [email protected]

Sacramento Area Liver Transplant Support Group

Sacramento, CA

Contact: Ann Linnekens

Web: www.saclivertxgroup.com/

Phone: 916-791-1697

E-mail: [email protected]

Sacramento Area Renal and Pancreas Support Group

UC Davis Transplant Program

1625 Stockton Blvd, Sacramento, CA 95816, CA 95816

Phone: 800-821-9912

Sacramento Area Renal and Pancreas Support Group

8550 Sheraton Drive, Fair Oaks, CA 95628

Contact: Ruben Hulan

Phone: 916-807-4840

E-mail: [email protected]

Saddleback Kidney Support Group

Saddleback Church Peace Center

1 Purpose Drive, Lake Forest, CA 92630

Contact: Helen Mills

Web: saddleback.com/connect/ministry/peace-center

Phone: 949-412-3210

E-mail: [email protected]

San Gabriel Valley Hepatitis, Liver and Transplant Support Group

Methodist Hospital

300 West Huntington Drive, Classroom #4, Arcadia, CA 91007

Phone: 310-670-4624

San Gabriel Valley Hepatitis, Liver and Transplant Support Group

Methodist Hospital

6275 Crestwood Way, Los Angeles, CA 90042

Contact: Jane Leslie

Phone: 323-708-2565

E-mail: [email protected]

San Gabriel Valley Hepatitis, Liver and Transplant Support Group

Methodist Hospital

243 West Fairview Ave., Arcadia, CA 91007

Contact: Marcie Fisher

Phone: 970-376-3662

E-mail: [email protected]

San Gabriel Valley Hepatitis, Liver and Transplant Support Group

Methodist Hospital

3817 Cogswell Rd #3, El Monte, CA 91703

Contact: Arthur Rico

Phone: 626-230-4742

E-mail: [email protected]

Transplant Patient, Family, & Caregiver Support Group

Keck Medical Center of USC

1500 San Pablo St., Los Angeles, CA 90033

Contact: Marla Frankel, LCSW CCTSW

Phone: 323-442-9632

E-mail: [email protected]

Transplant Recipients International Organization (TRIO)

San Francisco Bay Area Chapter

P.O. Box 2804, Cupertino, CA 95016

Phone: 408-238-3077

Transplant Recipients International Organization (TRIO)

The City Chapter

2358 Park Boulevard, Oakland, CA 94606

Phone: 510-834-0436

Transplant Recipients International Organization (TRIO)

San Francisco Bay Area Chapter

P.O. Box 2804, Cupertino, CA 95016

Contact: Monet Thomson

Web: http://www.bayareatrio.org/

Phone: 408-723-0800

E-mail: [email protected]

Transplant Recipients International Organization (TRIO)

Ventura County West Valley Chapter

2562 Covent Garden Court, Thousand Oaks, CA 91362

Web: http://www.trioventurala.org/

Phone: 805-492-9810

TRIO Ventura County West San Fernando Valley

Transplant Recipients Organization International

15763 Kenneth Place, Santa Clarita, CA 91367

Contact: Ron Taubman

Web: www.trioweb.org

Phone: 818-309-7919

E-mail: [email protected]

UC San Diego Health System Heart/Lung Transplant Caregivers Support Group

San Diego, CA

Contact: Karen Matthews, LCSW

Phone: 858 657-5050

E-mail: [email protected]

UC San Diego Health System Heart/Lung Transplant Caregivers Support Group

San Diego, CA

Contact: Karen Matthews, LCSW

Phone: 858 657-5050

E-mail: [email protected]

UC San Diego Health System Heart/Lung Transplant Caregivers Support Group

San Diego, CA

Contact: Michelle Williams

Web: www.transplant.ucsd.edu

Phone: 858-657-7221

E-mail: [email protected]

UC San Diego Health System Heart/Lung Transplant Support Group

San Diego, CA

Contact: Karen Matthews, LCSW

Phone: 858 657-5050

E-mail: [email protected]

UC San Diego Health System Kidney Transplant Support Group

UC San Diego Health System

3500 5th Ave Suite 301, San Diego, CA 92103

Contact: Chris Frederici Hines, LCSW

Web: https://health.ucsd.edu/specialties/surgery/transplant/patient-resources/Pages/default.aspx

Phone: 619-574-8612

E-mail: [email protected]

UCLA Heart and Lung Transplant Program and VAD Support Groups

Los Angeles, CA

Contact: Heart and Lung Transplant Office

Phone: 310-825-6068

E-mail: http://transplants.ucla.edu/

UCLA Heart and Lung Transplant Program Support Groups

Los Angeles, CA

Contact: Linda Ventura

Phone: 310-825-0749

UCSD Medical Center Liver Transplant Support Group

San Diego, CA

Contact: Michele Morrison, LCSW

Phone: 619-543-8612

E-mail: [email protected]

UCSF Heart Transplant & VAD Support Group

UCSF Medical Center

San Francisco, CA

Contact: Nikki Galin, LCSW

Phone: 415-353-8901

E-mail: [email protected]

UCSF Lung Transplant Support Group

UCSF Medical Center

San Francisco, CA

Contact: Andrea Baird, LCSW

Phone: 415-353-1382

E-mail: [email protected]

UCSF Transplant Caregiver Support Group

UCSF Medical Center

San Francisco, CA

Phone: 415-353-1040

UOTA

United Organ Transplant Association

3405 Arlington Ave., Riverside, CA 92506

Contact: Debbie Morgan

Web: www.uota.org

Phone: 951-276-4700

E-mail: [email protected]

Weekly Transplant Support Group

Cedars-Sinai Medical Center

8700 Beverly Blvd., Room 2802, Los Angeles, CA 90048

Contact: John Pappas, LCSW

Phone: 310-423-6850

Weekly Transplant Support Group

Cedars-Sinai Medical Center

8700 Beverly Blvd., Room 2802, Los Angeles, CA 90048

Contact: Carlie Galloway, MSW

Phone: 310-423-6850

E-mail: [email protected]

West Los Angeles Hepatitis, Liver and Transplant Support Group

Wadsworth Grounds

200 E Vernon, Long Beach, CA 90804

Contact: Charles

Phone: 562-726-1240

E-mail: [email protected]

Colorado

There are no support groups available in Colorado at this time.

Connecticut

There are no support groups available in Connecticut at this time.

Delaware

Kidney Transplant Patient Education and Support Group

Christiana Care Health System

Newark, DE

Contact: Eileen Edge, LSW, MSW

Phone: 866-682-6792

TDSG (Transplant/Donor Support Group)

St Paul UAME Church

3114 N Market Street, Wilmington, DE 19809

Contact: Sandi Gibbs

Phone: 302-602-6126

E-mail: [email protected]

District of Columbia

Medstar Georgetown Transplant Institute Liver and Kidney Support Group

Medstar Georgetown Transplant Institute

  • Please note that all meetings will be held virtually via Zoom until further notice.
  • Audience: Liver and kidney patients can share their transplant experiences and ask questions. All adult patients, families, and caregivers are welcome to join.
  • Why: The transplant process is both mentally and physically draining. Meeting others who are in a similar situation can be helpful and motivating.
  • When: Third week, alternating between Mondays and Thursdays, 5:30 – 7 p.m.

Contact: Monica Hanza, MSW, LGSW

Phone: 202-444-0439

E-mail: [email protected]

Transplant Recipients International Organization (TRIO)

1000 Sixteenth Street, NW, Suite 602, Washington, DC 20036

Phone: 202- 293-0980

E-mail: [email protected]

Transplant Support Group

Howard University Hospital

2041 Georgia Avenue NW, Washington, DC 20060

Contact: Dr. John Robinson

Phone: 202 865-1443

Washington Heart Support Group

110 Irving Street, NW Washington Hospital Center, Room 1208, Washington, DC 20010

Phone: 202-877-3220

Florida

Brevard County Organ Transplant Support Group

4161 Gatewood Street, Cocoa, FL 32926

Contact: Leo A. Paradis

Web: http://organtransplantsupportgroup.org/

Phone: 321-698-8884

E-mail: [email protected]

Caring For The Gift of Life

2500 SW 107th Ave Ste 47, Miami, FL 33165

Contact: Kleydson Da Silva

Phone: 786-205-4515

E-mail: [email protected]

Memorial Transplant & VAD Support Group

Memorial Transplant Institute

3501 Johnson St, Hollywood, FL 33021

Contact: Janet Delgado, LCSW

Web: mhs.net

Phone: 954-265-6810

E-mail: [email protected]

Group is open to all transplant recipients, those on waitlist, & their families.

National Organization for Transplant Enlightenment

N.O.T.E.

13014 N. Dale Mabry #187, Tampa, FL 33618

Contact: Janet Walin

Web: noteus.org

Phone: 813-962-6250

E-mail: [email protected]

Organ Transplant Recipients of SW FL, Inc.

2727 Winkler Avenue, Fort Myers, FL 33901

Contact: Bob Lucas

Web: organsupport.org

E-mail: [email protected]

Renal Transplant Support Group

Halifax Health-Center for Transplant Services, FL

Contact: Jenny Ketring, MSW

E-mail: [email protected]

Second Chance Support Group

Second Chance Jax

Jacksonville, FL 32224

Contact: Kristin Corlett

Phone: (904) 314-3436

E-mail: [email protected]

Second Wind Lung Transplant Association, Inc.

300 South Duncan Avenue, Suite 227, Clearwater, FL , FL 33755

Web: http://2ndwind.org

Phone: 888- 855-9463

Shands Lung Transplant

UF Health – Shands Hospital

PO Box 100223, Gainesville, FL 32610

Contact: Micki Nodurft-Luck, LCSW, CCTSW

Web: https://ufhealth.org/transplant-center/lung

Phone: 352-265-8940

E-mail: [email protected]

Tallahassee Kidney Support Group

1609 Physicians Drive, Tallahassee, FL 32308

Phone: 850-878-1171

Tallahassee Kidney Support Group

Transplant Support Group

1609 Physicians Drive, Tallahassee, FL 32308

Contact: Dee Wilder

Phone: 850-878-1171

E-mail: [email protected]

Tallahassee Kidney Transplant Support Group

1609 Physicians Drive, Tallahassee, FL 32308

Contact: Dee Wilder

Phone: 850-878-1171

E-mail: [email protected]

Tallahassee/Big Bend Lung Transplant Support Group

Tallahassee, FL

Contact: Sandra Skelton

Phone: (850) 228-2616

E-mail: [email protected]

Tampa Bay Liver Disease and Transplantation Support Group

Tampa General Medical Group Transplant Speciality Services

409 Bayshore Blvd., Tampa, FL 33606

Contact: Stanley Genstein

Web: www.tgh.org/sg.htm

Phone: 813-260-3723

E-mail: [email protected]

Transplant & VAD Support Group

Memorial Cardiac & Vascular Institute

3501 Johnson St, Hollywood, FL 33021

Contact: Pat Dennis, LCSW

Web: mhs.net

Phone: 954-265-6810

E-mail: [email protected]

Transplant & VAD Support Group

Memorial Cardiac & Vascular Institute

3501 Johnson St, Hollywood, FL 33021

Contact: Pat Dennis, LCSW

Web: mhs.net

Phone: 954-265-6810

E-mail: [email protected]

Transplant Caregivers Support Group

Tampa General Hospital Transplant Services

312 Laurel Falls Drive, Apollo Beach, FL 33572

Contact: Stanley Genstein

Web: //www.tgh.org/sg.htm

Phone: 813-260-3723

E-mail: [email protected]

Transplant Caregivers Support Group

Tampa General Hospital Transplant Services

1 Tampa General Circle, Tampa, FL 33606

Contact: Stanley Genstein

Web: https://www.tgh.org/sg.htm

Phone: 813-260-3723

E-mail: [email protected]

Transplant Recipients International Organization (TRIO)

Southwest Chapter

P.O. Box 7888, North Port, FL 34287

Contact: Bette Luksha-Gammell

Phone: 941-423-2553

E-mail: [email protected]

Georgia

Brunswick Transplant Support Group

Brunswick, GA

Contact: Joan Mobley

Phone: 912-266-5994

E-mail: [email protected]

Hawaii

Transplant Support Group

Queen’s Medical Center

550 S. Beretania St, Suite 404, Honolulu, HI 96813

Contact: Shona Peters

Phone: 808-691-8897

E-mail: [email protected]

Idaho

There are no support groups available in Idaho at this time.

Illinois

Kidney and Pancreas Support Group

OSF St. Francis Kidney Transplant Services

Peoria, IL

Contact: Karen Welborn, MSN, RN, NEA-BC

Web: www.osfhealthcare.org/services/transplant-services/

Phone: 309-655-4101

Kidney/Pancreas Support Group

Memorial Medical Center

701 N. 1st St, Springfield, IL 62781

Contact: Holly Heinz, LSW, MSW

Phone: 217-788-3441

Live Life! Pre & Post Transplant Support Group

Illinois Valley Community Hospital

925 West Street, Peru, IL 61354

Contact: Illinois Valley Community Hospital

Web: Calendar

Phone: 815-780-3521

E-mail: [email protected]

Lung and Heart/Lung Transplant Support Group

Loyola University Medical Center

2160 S First Ave, Maywood, IL

Contact: Mary McGillicuddy

Phone: 708-216-3634

Lung and Heart/Lung Transplant Support Group

Loyola University Medical Center

2160 S First Ave, Maywood, IL 60153

Contact: Susan Long

Phone: 708-216-5454

E-mail: [email protected]

Lung Transplant Support Group

University of Chicago Medicine

5841 S. Maryland Ave., Chicago, IL 60637

Contact: Kaitlin Ray

Web: //www.uchospitals.edu

Phone: 773-702-4608

E-mail: [email protected]

Lung Transplant Support Group

Loyola University Medical Center

2160 S First Ave, Maywood, IL

Contact: Susan Long

Phone: 708-216-5454

E-mail: [email protected]

Organ Transplant Support, Inc.

PO Box 471, Naperville, IL 60566

Contact: Chuck Feltes, President

Phone: 630-527-8640

E-mail: [email protected]

Organ Transplant Support, Inc.

PO Box 471, Naperville, IL 60566

Contact: Ron Dickover, President

Phone: 630-527-8640

E-mail: [email protected]

Organ Transplant Support, Inc.

PO Box 471, Naperville, IL 60566

Contact: Susan English, President

Web: www.organtransplantsupport.org

Phone: 630-527-8640

E-mail: [email protected]

Organ Transplant Support, Inc.

PO Box 471, Naperville, IL 60566

Contact: Susan English, President

Web: www.organtransplantsupport.org

Phone: 630-527-8640

E-mail: [email protected]

Sarcoidosis Empowering Healing Hands Of Hope Support Group

National Sarcoidosis Scoity, NFP

4747 S. M.L.King Dr. Ste # 512, Chicago, IL 60615

Contact: Glenda Fulton

Web: http://nationalsarcoidosisfriends.org.tripod.com/

Phone: 312-567-6626

E-mail: [email protected]

Transplant Support Group

Rush University

725 West Harrison, Ste. 437, Chicago, IL

Contact: Mike Levick

Phone: 312-563-2111

Transplant Support Group

University of Chicago

5841 S. Maryland, Chicago, IL

Contact: Rina Murao

Phone: 773-834-2003

Transplant Support Group

American Transplant Association

47 W Polk Street, Suite 100-140, Chicago, IL

Web: www.americantransplant.org

Phone: 800-494-4527

Transplant Support Group

University of Chicago

5841 S. Maryland, Chicago, IL

Contact: Danley Kohn

Phone: 773-834-8076

E-mail: [email protected]

Transplant Support Group of Illinois

Centegra Hospital

McHenry, IL

Contact: Carol Prebianca

Phone: 847-838-4754

Transplant Support Group of Illinois

Centegra Hospital

McHenry, IL

Contact: Carol Prebianca

Phone: 847-838-4754

E-mail: [email protected]

Transplant Support Group of Illinois

Centegra Hospital

McHenry, IL 60050

Contact: Rich Barclay

Phone: 847-680-4157

E-mail: [email protected]

Transplant Support Group of Northern Illinois

40261 W. Beach Lane, Antioch, IL 60002

Contact: Carol Prebianca

Phone: 847-838-4754

E-mail: [email protected]

Indiana

Fort Wayne Transplant Support Group

Ivy Tech College at Anthony Blvd and Coliseum

  • Audience: All organs, pre- and post-transplant recipients and caregivers
  • When: Fourth Tuesday of the month, 6:30 p.m.

Contact: Larry Hilsmier

Phone: 260-637-6568

E-mail: [email protected]

Facebook: Fort Wayne Transplant Support Group

Hobart: New Beginnings Transplant Support Group

St. Mary’s Hospital auditorium

  • Audience: All organs, pre- and post-transplant recipients and caregivers
  • When: Third Wednesday of the month, 6:00 p.m.

Contact: Jason Delgado

Phone: 219-663-3747 or 219-775-2189 or 219-577-5581

Web: https://www.comhs.org/programs-and-events/n/new-beginnings-transplant-network

Indianapolis: IU Health Heart Lung Transplant Support Group

IU Health Methodist Hospital, Parking Garage 2

Basement of the Professional Building, Room DG 422A

  • Audience: Heart or lung, pre- and post-transplant recipients and caregivers
  • When: Fourth Monday of the month, 6:00 p.m.

Contact: Sandy Cloyd, trained IU Health volunteer

Phone: 317-405-5025

Facebook: IU Health Heart and Lung Transplant Support Group

Indianapolis: IU Health Transplant Support Group

Cancer Pavilion at IU Health University Hospital, Room RT102

  • Audience: All organs, pre- and post-transplant recipients and caregivers
  • When: Third Thursday of every month, 12:30–1:30 p.m.
  • Contact: Rachel Holmes, PhD, IU Health Transplant psychologist
  • Phone: 317-944-7320
  • Facebook: IUHTransplant
  • Virtual meetings: To ensure the health and safety of all our patients and team members during the coronavirus (COVID-19) pandemic, the support group is meeting online. To reserve your spot, email [email protected] or visit facebook.com/iuhtransplant and click on Events.

Hartford City: Organ Transplant Support Group

IU Health Blackford Hospital, Main Conference Room

  • Audience: All organs, pre- and post-transplant recipients and caregivers
  • When: Third Thursday of every month, 3:00-4:00 p.m.

Contact: Abbey Chalfant, RRT, IU Health Blackford

Phone: 765-331-2117

Facebook: IU Health Ball, Blackford & Jay, under Events

South Bend: Second Wind Support Group

South Bend Christian Reformed Church, 1855 North Hickory Road

  • Audience: People with respiratory difficulties
  • When: Every Tuesday, 1:30 p.m.

Contact: Betsy Cichon

Phone: 574-272-9085

Other support groups: https://www.2ndwind.org/transplantation/support-groups/#indiana

Iowa

Anxiously Awaiting

University of Iowa Hospitals & Clinics, Soc. Clinic

Iowa City , IA

Contact: Yuk Sum Chung

Phone: 319-353-8799

Anxiously Awaiting

University of Iowa Hospitals & Clinics, Soc. Clinic

P.O. 315, Urbandale, IA 50323

Contact: Belinda Deal

Phone: 515-570-1710

E-mail: l[email protected]

Transplant Support Group

Great River Medical Center, Oak Room

Burlington, IA

Contact: Sam Johnson

Phone: 319-758-9665

Kansas

Liver Transplant Support Group

University of Kansas Hospital

3901 Rainbow Blvd, Kansas City, KS 66160

Contact: Kellie Elliott, LMSW

Phone: 913-588-4417

Liver Transplant Support Group

University of Kansas Hospital

3901 Rainbow Blvd

Kansas City, KS 66160

Contact: Kellie Elliott, LMSW

Phone: 913-588-4417

E-mail: [email protected]

Kentucky

Heart to Heart Support Group

University of Kentucky HealthCare Transplant Center

2333 Alumni Park Plaza, Ste 300, Lexington, KY 40517

Contact: Becky Martin

Web: https://ukhealthcare.uky.edu/transplant-center

Phone: 859-323-4843

E-mail: [email protected]

UK Healthcare Cardiothoracic Transplant/VAD Support Group

University of Kentucky HealthCare Transplant Center

2333 Alumni Park Plaza, Ste 300, Lexington, KY 40517

Contact: Becky Martin

Web: https://ukhealthcare.uky.edu/transplant-center

Phone: 859-323-4843

E-mail: [email protected]

University of Kentucky Lung Transplant Support Group

Kentucky Clinic

740 South Limestone Street, Ste K116 (first floor between Pharmacy and General Surgery), Lexington, KY 40536

Contact: April Bruce

Phone: 859-323-6019

E-mail: [email protected]

University of Kentucky Liver Support Group

Kentucky Clinic

740 South Limestone Street, Ste K301- K354, Lexington, KY 40536

Contact: Kristen Workman

Phone: 859-323-3228

E-mail: [email protected]

University of Kentucky Kidney Support Group (The Kidney Collaborative)

Kentucky Clinic

740 South Limestone Street, Ste K128 (first floor), Lexington, KY 40536

Contact: Alex Berrios

Phone: 404-401-0096

E-mail: [email protected]

Louisiana

Organ Transplant Support Group

Opelousas, LA 70570

Contact: Mary Quebedeaux

E-mail: [email protected]

Maine

There are no support groups available in Maine at this time.

Maryland

Living With Hepatitis/Before and After Transplant Support Group

Frederick County Hepatitis C Clinic

350 Montevue Avenue, Entrance “B”, Frederick, MD 21703

Mercy for Livers

301 St. Paul Street, Baltimore, MD 21202

Contact: Rose Stelmack

Phone: 443-503-6947

E-mail: [email protected]

Quarter Century Club

415 Piedmont Avenue, Cumberland, MD 21502

Contact: george e franklin 3rd

Phone: 301-328-2601

E-mail: [email protected]

TRIO – Transplant Recipients International Organization

TRIO-Transplant Recipients International Organization

822 Guilford Avenue, Baltimore, MD 21202

Contact: Marty Maren – President

Phone: 410-558-0451

E-mail: [email protected]

Massachusetts

Dare to be Alive

230 North Main Street, South Yarmouth , MA 02664

Contact: Deanna Arnold

Phone: 508-398-5473

Kidney/Pancreas Pre- & Post- Transplant Educational Support Grouo

UMass Memorial Medical Center

Transplant Conference Room, Level A

Worcester, MA 01655

Contact: Sara Grady, LICSW

Phone: 508-334-7613

E-mail: [email protected]

Liver Transplant Group

Beth Israel Deaconess Medical Center

185 Pilgrim Road, Farr 10 Solarium, Boston, MA 02215

Contact: Noelle Dimitri

Phone: 617- 632-9815

Liver Transplantation Support Group

UMass Memorial Medical Center

Worcester, MA

Contact: Doris Tripp-MacPherson, LICSW

Phone: 774-441-8646

Renal/Pancreas Transplant Support Group (Pre and Post Transplant)

UMass Memorial Medical Center

Lazare Research Building, Conference Room 203

Worcester, MA

Contact: Ellen Wells, LICSW

Phone: 508-334-7613

The Partnership for Organ Donation

2 Oliver Street, Boston, MA 02109

Phone: 617-482-5746

Transplant Recipients International Organization (TRIO)

New England Chapter (serving CT, ME, MA, NH, RI and VT)

44 Ellison Road, Newton, MA 02459

Phone: 617-266-9559

Transplant Recipients International Organization (TRIO)

New England Chapter (serving CT, ME, MA, NH, RI and VT)

44 Ellison Road, Newton, MA 02459

Contact: Michelle Kats

Phone: 6174069129

E-mail: [email protected]

Transplant Recipients International Organization (TRIO)

New England Chapter (serving CT, ME, MA, NH, RI and VT)

1166 Washington St., apt 303, Boston, MA 02118

Contact: Virginia Watkins

Phone: 617-424-0204

E-mail: [email protected]

Transplant Recipients International Organization (TRIO)

New England Chapter (serving CT, ME, MA, NH, RI and VT)

44 Ellison Road, Newton, MA 02459

Contact: Kara

Phone: 617-266-9559

E-mail: [email protected]

Michigan

Heart – LVAD Support Group

University of Michigan Medical Center

Ann Arbor, MI

Contact: Ruth Halben

Phone: 734-763-9788

E-mail: [email protected]

Heart LVAD Support Group

Henry Ford Hospital

Detroit, MI

Contact: Ginger St. John, MSW

Phone: 313-916-2724

E-mail: [email protected]

Heart Support Group

University of Michigan Medical Center

Ann Arbor, MI

Contact: Ruth Halben

Phone: 734-763-9788

Heart Support Group

University of Michigan Medical Center

Ann Arbor, MI

Contact: Ruth Halben, LMSW

Phone: 734-763-9788

E-mail: [email protected]

Kidney/Pancreas Support Group

Henry Ford Hospital

Detroit, MI

Contact: Patrick Williams, MSW

Phone: 313-916-1290

E-mail: [email protected]

kTalk

National Kidney Foundation of Michigan

1169 Oak Valley Drive, Ann Arbor, MI 48108

Contact: Susan Thomas, MD

Phone: 1.800.482.1455

E-mail: [email protected]

Lakeshore Transplant Support Group

Hackley Hospital

1700 Clinton St, Muskegon, MI 49442

Contact: CJ Raugh, President

Phone: 231-740-5901

E-mail: [email protected]

Liver Support Group

Henry Ford Hospital

Detroit, MI

Contact: Sophia Awan

Phone: 313-916-1352

Liver Support Group

University of Michigan Medical Center

Ann Arbor, MI

Contact: Lynda Asher

Phone: 734-668-0334

Liver Support Group

Henry Ford Hospital

Detroit, MI 48202

Contact: Ann Zalucki

Phone: 313-916-1352

E-mail: [email protected]

Liver Support Group

Henry Ford Hospital

15635 W Townline Rd, St. Charles, MI 48655

Contact: Ann Zalucki

Phone: 313-916-1352

E-mail: [email protected]

LOTTS-Living Organ Transplant and Tissue Support Group

Kalamazoo, MI

Contact: Jan Getz

Phone: 269-349-6630

E-mail: [email protected]

Lung Support Group

Henry Ford Hospital

Detroit, MI

Contact: Anne Eshelman

Phone: 313-916-2724

Lung Support Group

University of Michigan Medical Center

Ann Arbor, MI

Contact: Lizbeth Warner

Phone: 734-615-5334

Lung Support Group

University of Michigan Medical Center

Ann Arbor, MI

Contact: Amy Van Zee

Phone: 734-615-5334

E-mail: [email protected]

Lung Support Group

University of Michigan Medical Center

Ann Arbor, MI

Contact: Amy Van Zee, LMSW

Phone: 734-615-5334

E-mail: [email protected]

Lung Transplant Support Group

Bronson Battle Creek Hospital

Battle Creek, MI

Contact: Deborah Pierce BS RRT

Phone: 269-245-8438

E-mail: [email protected]

Mid-Michigan Transplant Support Group

Mid Michigan Medical Center

Clare, MI

Contact: Terri Maynard

Phone: 989-430-4174

E-mail: [email protected]

Mid-Michigan Transplant Support Group

Saginaw, MI

Contact: Mary Catherine Siers

Phone: 989-792-1334

E-mail: [email protected]

Organ Transplant Awareness Group

Alpena, MI

Contact: Jerome Smigelski

Phone: 989-354-3342

E-mail: [email protected]

Second Time Around Transplant Support Group

Warren, MI

Contact: Jacquie Oliai

Phone: 800-348-3987

E-mail: [email protected]

Second Time Around Transplant Support Group

Spectrum Health

2902 Bradford NE, Grand Rapids, MI

Contact: Jacquie Oliai

Phone: 616-391-2802

E-mail: [email protected]

St. John Transplant Support Group

Detroit, MI

Contact: Jennifer Bruns

Phone: 313-343-3047

E-mail: [email protected]

Transplant Connection

Beaumont Health

3535 West 13 Mile Road-Suite 644, Royal Oak, MI 48073

Contact: Sophia Awan, LMSW

Phone: 248-551-1201

E-mail: [email protected]

Transplant Support Group

Jackson, MI

Contact: Cathy McAllister

Phone: 517-783-7320

Transplant Support Group of Northern Michigan

Gaylord, MI

Contact: Bev Cherwinski

Phone: 989-983-4188

Minnesota

Heart Transplant and VAD Caregiver Support Group

University of Minnesota Medical Center – Fairview

420 Delaware St SE, Minneapolis, MN 55455

Contact: Lilli Bauman

Phone: 612-273-5670

E-mail: [email protected]

Heart Transplant Support Group

Fairview-University Medical Center

MMC 181 420 Delaware Street SE, Minneapolis, MN

Contact: Lilli Bauman

Phone: 612-273-5670

Lung Transplant Support Group

Fairview-University Medical Center

MMC 181 420 Delaware Street SE, Minneapolis, MN 55455

Contact: Marget Schmidtke, LICSW

Phone: 612-273-5796

VAD Support Group

University of Minnesota Medical Center – Fairview

420 Delaware St SE, Minneapolis, MN 55455

Contact: Angela Herr

Phone: 612-273-5774

E-mail: [email protected]

Mississippi

Transplant Support Group

University of MS Medical Center

2500 North State Street, Jackson, MS 39216

Contact: Sherie Brock

Phone: 601-984-5065

E-mail: [email protected]

Missouri

Heart Transplant Support Group

Barnes-Jewish Hospital

St. Louis, MO 63110

Contact: Jennifer Manolis, LCSW

Phone: 314-362-3980

Heart Transplant Support Group

Barnes-Jewish Hospital

St. Louis, MO 63110

Contact: Nina Jarvis, LCSW

Phone: 314-362-5070

E-mail: [email protected]

Heart Transplant Support Group

Barnes-Jewish Hospital

St. Louis, MO 63108

Contact: Nina Jarvis, MSW, LCSW

Phone: (314) 362-5070

E-mail: [email protected]

Kidney Transplant Support Group

Barnes-Jewish Hospital

St. Louis, MO 63110

Contact: Karen Politsch, LCSW

Phone: 314-362-5577

Liver Transplant Support Group

Barnes-Jewish Hospital

St. Louis, MO 63110

Contact: Kelly Dougherty, MSW

Phone: 314-362-1956

E-mail: [email protected]

Liver Transplant Support Group

Barnes-Jewish Hospital

1108 e 495th rd, BOLIVAR, MO 65613

Contact: linda king

Phone: 417-298-8699

E-mail: [email protected]

Liver Transplant Support Group

Barnes-Jewish Hospital

St. Louis, MO 63110, MO 63110

Contact: Kathleen Walton, MSW

Phone: 314-362-1956

Liver Transplant Support Group

University of Kansas Hospital

8610 N Kansas ave, Kansas City, MO 64156

Contact: Michael P Michael

Phone: 816-522-7638

E-mail: [email protected]

Lung Transplant Support Group

Barnes-Jewish Hospital

St. Louis, MO 63110

Contact: Rebecca Bathon, LCSW

Phone: 314-362-6127

Lung Transplant Support Group

Barnes-Jewish Hospital

St. Louis, MO 63110

Contact: Rebecca Bathon, LCSW

Phone: 314-362-6127

E-mail: [email protected]

Second Wind Lung Transplant Associaiton of St. Louis, Missouri

Second Wind Lung Transplant Association of St. Louis, Missouri

3440 Halliday Avenue, St. Louis, MO 63118

Contact: Thomas E. Archer

Web: www.secondwindstl.org

Phone: (314) 664.6360

E-mail: [email protected]

Second Wind Lung Transplant Association, Inc.

St. Louis Chapter

3440 Halliday Avenue, St. Louis, MO 63118

Contact: Tom Archer

Web: www.secondwindstl.org

Phone: 314-664-6360

E-mail: [email protected]

Transplant Institute Support Group

Research Medical Center

2316 E. Meyer Blvd., Kansas City, MO 64132

Contact: Kristen Derks

E-mail: [email protected]

Montana

American Liver Foundation

1425 Pompton Avenue, MT

Contact: Charlie O

Web: www.liverfoundation.org

Phone: 406-581-5425

E-mail: [email protected]

American Liver Foundation

1425 Pompton Avenue, MT

Web: www.liverfoundation.org

Phone: 406-581-5425

E-mail: [email protected]

Montana Chapter of Transplant Recipients International Org

1002 Boylan Dr, Stop E, Bozeman, MT 59715

Contact: Jim Rivard- Co-founder

Phone: 503-944-9604

E-mail: [email protected]

Nebraska

New Hearts Transplant Support Group

8509 S. 46th Street, Omaha, NE , NE 68157

Contact: Annette Fumagalli

Phone: 402-734-5749

Nevada

Living Well with Kidney Disease

Las Vegas, NV

Web: http://livingwellwithkidneydisease.blogspot.com

Phone: 702-419-2438

E-mail: [email protected]

New Hampshire

Concord Transplant Group – Pre/Post

Concord, NH 03301

Contact: Yoli Jones

Phone: 603-224-7121

E-mail: [email protected]

Pre & Post Transplant – New Hampshire

Nashua, NH

Contact: Ron Rioux

Phone: 603.889.1775

E-mail: [email protected]

Pre and Post Transplant Support Group

Concord Hospital

250 Pleasant Street, Room 5A, Concord, NH

Phone: 603-224-7121

E-mail: [email protected]

Pre and Post Transplant Support Group

Southern New Hampshire Medical Center

Nashua, NH

Contact: Ron Rioux

Phone: 603-889-1775

E-mail: [email protected]

New Jersey

Central Jersey Transplant Lifeline Support Group

Riverview Medical Center

Red Bank, NJ

Phone: 732-450-1271

E-mail: [email protected]

Central Jersey Transplant Lifeline Support Group

Riverview Medical Center

466 JACKSON AVE 2FL, HACKENSACK, NJ 07601

Contact: Yasmeen Muhammad

Phone: 732-450-1271

E-mail: [email protected]com

Central Jersey Transplant Lifeline Support Group

Riverview Medical Center

Red Bank, NJ 08510

Contact: caren

Phone: 609-529-5127

E-mail: [email protected]

Kidney/Pancreas Pre- and Post-Transplant Support Group

Robert Wood Johnson University Hospital

10 Plum Street, 7th Floor, New Brunswick, NJ 08903

Contact: Augusto J. da Fonseca, MSW, LCSW

Phone: 732-235-8987

https://www.rwjbh.org/treatment-care/kidney-care/patient-education/support-groups-programs/

E-mail: [email protected]

Kidney/Pancreas Pre- and Post-Transplant Support Group

Robert Wood Johnson University Hospital

10 Plum Street, 7th Floor

New Brunswick, NJ 08901

Contact: Jamie D’Angelo, LSW

Web: www.rwjuh.edu

E-mail: jamie.d’[email protected]

Lung Transplant Support Group (Pre and Post)

St. Clare’s Health System, Dover (Morris), NJ Campus

400 West Blackwell Street, Dover, NJ 07801

Contact: Carmela Thomas, RRT

Phone: 973-989-3128, option 2

E-mail: [email protected]

Newark Beth Israel Lung Transplant Support Group

Newark Beth Israel Medical Center

201 Lyons Ave, Newark, NJ 07112

Contact: Lauren Dispinseri, MSW, LCSW

Phone: 973-926-3178

E-mail: [email protected]

New Mexico

Transplant Community Support Group

Organ Transplant Awareness Program of New Mexico

For in person support, contact the number below.

Contact: Venae Warner

Web: www.otapnm.org

Phone: 505-948-4099

E-mail: [email protected]

New York

Children’s Liver Alliance (Biliary Atresia and Liver Transplant Network)

3835 Richmond Avenue, Box 190, Staten Island, NY 10312

Phone: 718-987-6200

E-mail: [email protected]

Living Healthy with Kidney Disease

Kidney Foundation of WNY

110 Broadway Street, Buffalo, NY 14203

Contact: Barbara Breckenridge

Web: http://kfwny.org/

Phone: 716-510-6702

E-mail: [email protected]

Morgan Stanley Children’s Hospital of New York-Presbyterian

3959 Broadway, New York, NY 10032

Pediatric Liver Transplant Support Group

Contact: Lauren Hunter

Phone: 212-305-3000

Email: [email protected]

Zoom meetings on the first Monday of every month at 5:00 p.m.

New York-Presbyterian Hospital / Weill Cornell Medical Center

525 East 68th Street, New York, NY 10065

Kidney and Pancreas Transplant Patient Support Group

Contact: Alicia Henry, LCSW, CCTSW

Phone: 212-746-3218

New York-Presbyterian Hospital / Weill Cornell Medical Center

525 East 68th Street, New York, NY 10065

Liver Transplant Patient Support Group

Contact: Samantha Bennahum, LCSW

Phone: 646-962-5337

New York-Presbyterian Hospital /Columbia University Irving Medical Center

622 West 168th Street, New York, NY 10032

Heart Transplant Patient Support Group

Contact: Wendy Ramirez, LCSW

Phone: 212-305-6391

New York-Presbyterian Hospital /Columbia University Irving Medical Center

622 West 168th Street, New York, NY 10032

Lung Transplant Patient Support Group

Contact: Bailey Petry, LCSW

Phone: 212-342-1364

New York-Presbyterian Hospital /Columbia University Irving Medical Center

622 West 168th Street, New York, NY 10032

Liver Transplant Patient Support Group

Contact: Aimee Muth, LCSW

Phone: 212-305-1884

The Recanati/Miller Transplantation Institute

The Mount Sinai Medical Center

18 Handsome ave, NY, NY 11784

Contact: Javier Lopez

Phone: 212-241-8035

E-mail: [email protected]

Transplant Awareness Group (TAG)

Syracuse, NY 13220

Contact: Doug Sprague

Phone: 315-475-6356

E-mail: [email protected]

Transplant Recipients International Organization (TRIO)

Long Island Chapter

Garden City, NY 11530

Web: www.litrio.org/

Phone: 516-620-5900

Transplant Support Group of Western New York

5605 Genesee Street, Lancaster, NY 14086

Contact: Michael J. Martino

Web: www.tsgwny.org

Phone: 716-685-4799

Transplant Support Organization (TSO)

1335 Mace Avenue, Bronx, NY 10469

Contact: Ira J. Copperman

Web: www.transplantsupport.org

Phone: 917-838-4525

E-mail: [email protected]

Transplants Save Lives, Inc. Support Group

Serving Rockland and Orange Counties

Nanuet, NY 10954

E-mail: [email protected]

TRIO Manhattan Chapter

Transplant Recippient International Organization-Manhattan Chapter

72 Park Terrace West #E38, New York, NY 10034

Contact: Betsy Morrissey

Web: www.trio-manhattan.org

Phone: (347)-427-7764

E-mail: [email protected]

TRIO Manhattan Chapter

Transplant Recippient International Organization-Manhattan Chapter

72 Park Terrace West #E38, New York, NY 10034

Contact: Tina Sammon

Web: www.trio-manhattan.org

Phone: (347)-427-7764

E-mail: [email protected]

TSO of Staten Island

22 Ocean Road, Staten Island, NY 10308

Web: www.transplantsupport.org

Phone: 718-317-8073

E-mail: [email protected]

Westchester Medical Center Transplant Life Support Group

Westchester Medical Center

100 Woods Road, Valhalla, NY 10595

Contact: Mimi Greenman, LCSW

Phone: 914-493-1048

E-mail: [email protected]

North Carolina

Lung Transplant Support Group

UNC Hospitals

101 Manning Drive, Chapel Hill, NC 27514

Contact: Laurie McDonald, LCSW

Phone: 919-966-6341

E-mail: [email protected]

Morganton Organ Transplant Support Group

106A Normandy Drive, Morganton, NC 28655

Contact: Wanda Buffington / Coordinator

Phone: 828-302-7646

E-mail: [email protected]

Morganton Organ Transplant Support Group

106A Normandy Drive, Morganton, NC 28655

Contact: Wanda Buffington / Coordinator

Phone: 828-391-5147

E-mail: [email protected]

Second Wind Lung Transplant Association, Inc.

2509 Old NC 10, Hillsborough, NC 27278

Contact: Kathryn Flynn, Duke Liaison

Web: www.2ndwind.org

Phone: 919-732-0851

E-mail: [email protected]

Second Wind Lung Transplant Association, Inc.

2509 Old NC 10, Hillsborough, NC 27278

Contact: Kathryn Flynn, Vice President

Web: www.2ndwind.org

Phone: 888- 855-9463

The Newhearts

Carolinas Medical Center

P.O. Box 32861, Charlotte, NC 28232

Contact: Cherie Cone, MSW

Phone: 800-562-5752

Transplant Recipients International Organization (TRIO)

Triangle (Raleigh, Durham, Chapel Hill) Chapter

9413 Northfield Court, Raleigh, NC

Phone: 919-846-5287

Transplant Recipients International Organization (TRIO)

Eastern Carolina (Goldsboro) Chapter

4664 Leary Mills Road, Vanceboro, NC

Phone: 252-746-3567

Vidant Transplant Support Group

Vidant Medical Center

4S – 10 Brody Building, Greenville, NC 27834

Contact: Barbara Lee

Phone: 252-744-3638

E-mail: [email protected]

North Dakota

Sanford Health (formerly MeritCare Medical Center)

Transplant Office

736 N. Broadway, Fargo, ND 58122

Web: https://www.sanfordhealth.org/medical-services/transplant-surgery

Phone: 701-234-6715

Ohio

Buckeye GIFT – Giving Inspiration for Transplantation

Lifeline of Ohio

770 Kinnear Road, Suite 200, Columbus, OH 43212

Web: www.lifelineofohio.org

Phone: 800-525-5667

Change of Heart Inc.

2602 Canterbury Ave., Cincinnati, OH 45237, OH 45237

Phone: 513-631-5017

E-mail: [email protected]

Greater Cincinnati Area Lung Transplant Support

4120 Beamer Court, Cincinnati, OH 45245

Contact: Cynthia and Bob Lohstroh

Phone: 513-752-0451

E-mail: [email protected]

Transplant Recipients International Organization (TRIO)

Greater Cleveland Chapter

PO Box 93163, Cleveland, OH 44101

Phone: 440-473-8979

Transplant Recipients International Organization (TRIO)

Miami Valley Chapter

4808 Barnhart Ave., Dayton, OH 45432

Phone: 937-258-0740

Transplant Recipients International Organization (TRIO)

Akron-Canton Chapter

1529 19th St. NE, Canton, OH 44714

Web: trioakroncanton.blogspot.com

Phone: 330-453-8214

Transplant Recipients International Organization (TRIO)

Greater Cleveland Chapter, OH

Contact: Pam Tressel

Phone: 440-669-5458

E-mail: [email protected]

Oklahoma

Integris

3300 NW Expressway, Oklahoma City, OK

Contact: Larry Elliott

Web: Support group information

Phone: 405-830-2054

E-mail: [email protected]

Kidney and Liver Failure Transplant Support Group

3901 NW 63rd, Oklahoma City, OK

Contact: Micki Anderson, LCSW

Phone: 405 640-7949

E-mail: [email protected]

Transplant Recipients International Organization (TRIO-Oklahoma)

Oklahoma City, Oklahoma

Contact: Lorrinda Davis

Web: trio-oklahoma.org

Phone: 405-302-8400

Peer-to-Peer meetings every Thursday from 6:30-7:30 p.m. on Zoom (for pre- and post-transplant patients). In 2021, we plan to begin a Caregiver and Young Adult program.

Oregon

Liver Transplant Support Group

Legacy Good Samaritan Hospital

1015 NW 22nd Ave., Portland, OR

Contact: Brenda Niblock

Phone: 360-574-2918

E-mail: [email protected]

Liver Transplant Support Group

Legacy Good Samaritan Hospital

1015 NW 22nd Ave., Portland, OR

Contact: Brenda Niblock

Web: www.liversupportnw.org

Phone: 360-574-2918

E-mail: [email protected]

Oregon Pulmonary Fibrosis/Lung Transplant Support Group

Tualitan, OR

Contact: Sandy Metheany

Phone: 503-829-5253

E-mail: [email protected]

Pennsylvania

MOST (Multi-Organ Support Team)

Philadelphia, PA

Contact: Jim Gleason

Phone: 609-877-4493

Transplant Recipients International Organization (TRIO)

Philadelphia Chapter

407 N. Swarthmore Avenue, Swarthmore, PA 19081

Contact: Elizabeth Rubin

Phone: 610-544-4140

Transplant Recipients International Organization (TRIO)

Pittsburgh Chapter

200 Lothrop Street, Pittsburgh, PA 15213

Phone: 877-647-3439

E-mail: [email protected]

Transplant Recipients International Organization (TRIO)

Pittsburgh Chapter

535 Bonniebrook Rd, Butler, PA 16002

Contact: Dawn Waltenbaugh

Phone: 7249920769

E-mail: [email protected]

Western PA Kidney Support Groups

Pittsburgh, PA

Contact: Jack Silverstein

Web: www.wpakidneysupport.org

Phone: 412-427-2969

York Area Transplant Support Group

Apple Hill Medical Center

25 Monument Road, Suite 193, York, PA 17403

Contact: Tom Wolf

Phone: 717-741-9158

Puerto Rico

There are no support groups available in Puerto Rico at this time.

Rhode Island

Rhode Island Hospital Transplant Peer Support Group/Educational Series

Rhode Island Organ Donor Awareness Coalition

PO Box 40926, Providence, RI 02940

Contact: Dawn Porreca Antaya

Web: https://www.facebook.com/RIODAC/

Phone: 401 253-0011

E-mail: [email protected]

Rhode Island Hospital Transplant Peer Support Group/Educational Series

Rhode Island Organ Donor Awareness Coalition

PO Box 40926, Providence, RI 02940

Contact: Samantha Richards

Web: www.riodac.org

Phone: 401-253-0011

E-mail: [email protected]

South Carolina

Charleston Transplant Support Group

5517 Clearview Drive, Charleston, SC 29420

Contact: Carol Dolida

Phone: 843-552-4038

E-mail: [email protected]

Charleston Transplant Support Group

1216 Briar Rose Lane, Ladson, SC 29456

Contact: Syed Haider

Phone: 843-695-1849

E-mail: [email protected]

TransplantTalk SC

235 Bateaux Dr., Summerville, SC 29483

Contact:  Gary Simmons

Phone:  704-699-3046

E-mail:  [email protected]

Web: TransplantTalkSC.org

Second Chance

Holland Avenue Baptist Church

801 12th Street, Cayce, SC 29033

Contact: Steve Ford

Phone: 803-394-2364

E-mail: [email protected]

South Dakota

There are no support groups available in South Dakota at this time.

Tennessee

Baptist BraveHearts

Baptist Memorial Hospital-Memphis

6025 Walnut Grove, Suite 111, Memphis, TN 38120

Contact: Shalonda Campbell

Web: www.baptistonline.org/services/transplant/

Phone: 901-226-0168

E-mail: [email protected]

Living Kindly Support Group

Methodist University Transplant Institute

1265 Union Avenue, Memphis, TN 38104

Contact: Susan Dodson, LAPSW

Phone: 901-516-2060

E-mail: [email protected]

Transplant Support Group

National Kidney Foundation of East Tennessee

Knoxville, TN

Contact: Patti Gold

Phone: 614-882-6184

Transplant Support Group

The University of Tennessee Medical Center

1924 Alcoa Highway, Knoxville, TN

Contact: Debra Winston, BSW

E-mail: [email protected]

Transplant Support Group

The University of Tennessee Medical Center

1924 Alcoa Highway, Knoxville, TN

Contact: Debra Winston, BSW

Phone: 865-386-7235

E-mail: [email protected]

Transplant Support Group

The University of Tennessee Medical Center

1924 Alcoa Highway, Knoxville, TN

Contact: Debra Winston, BSW

E-mail: [email protected]

Texas

Baylor Scott & White Multi-Organ Transplant Support Group

Scott & White Transplant Center

2401 S. 31st Street, Temple, TX 78665

Contact: Amanda Raye Jones, LMSW

Web: bswhealth.com

Phone: 254-724-4644

E-mail: [email protected]

The Helping Hearts

The Methodist Hospital

6565 Fannin, Houston, TX

Phone: 713-441-5451

The Helping Hearts

The Methodist Hospital

6565 Fannin, Houston, TX 77058

Contact: Barbara EdwardsCharles

Phone: 713-441-5451

E-mail: [email protected]

Liver Transplant Support Group (for pre/post patients/caregivers)

Baylor Unviersity Medical Center of Dallas

Newark , TX 76071

Contact: Gary Garcia

E-mail: g[email protected]

Liver, Kidney and Pancreas Patient Support Group

Liver Institute at Methodist Dallas Medical Center

1411 N. Beckley Avenue, Pavilion Ill, Suite 268, Dallas, TX 75203

Contact: Brittany Grant

Phone: 214-854-5952

E-mail: [email protected]

Living Gift Support Group

Medical City Dallas Transplant Center

7777 Forest Lane, Building C-750, Dallas, TX 75230

Phone: 972-566-4689

LVAD Support Group

Seton Heart Specialty Care & Transplant Center

1301 W. 38th St. #514, Austin, TX 78705

Contact: Shay Rogillio

Web: www.seton.net

Phone: 512-681-0500

E-mail: [email protected]

The Mickey Mantle Foundation

Dallas, TX

Web: www.qsigroup.com

Phone: 800-477-6425

North Texas Collin Area Transplant Support

130 S. Central Expressway, McKinney, Texas 75070, TX 75070

Contact: Sherri Williams

Phone: 972-838-6320

E-mail: [email protected]

Scott & White Multi-Organ Transplant Support Group

Scott & White Transplant Center

2401 S. 31st Street, Temple, TX 78665

Contact: Lori Taylor, LMSW

Web: https://www.bswhealth.com/specialties/transplant

Phone: 254-724-8962

E-mail: [email protected]

Transplant Recipients International Organization (TRIO)

Texas Panhandle Chapter

Plainview, TX 79073

Contact: Dave Courtney

Phone: 866-706-9828

UTMB Galveston: Texas Transplant Center Support Group

  • Group is currently virtual. Open to all pre- and post-transplant patients and LVAD patients as well as to their family and caregivers.
  • Where: League City at the Primary and Specialty Care (Entrance A) at Victory Lakes Town Center, 2660 Gulf Freeway South. Look for posted signs.
  • When: Monthly on first Tuesday, 4:40 to 6:00p.m.

Contact: Caroline Tremblay, Transplant Social Worker

Phone: 409-772-5753

E-mail: [email protected]

West Texas Transplant Support Group

University Medical Center

602 Indiana Avenue, Lubbock, TX 79415

Phone: 806-761-0710

E-mail: [email protected]

Utah

Heart Transplant Support Group

Sharp Memorial Hospital

750 W. Mariposa Dr, St. George, UT 84780

Contact: Sherry Crane

Web: www.sharp.com/transplant

Phone: 800-82-SHARP

E-mail: [email protected]

Vermont

There are no support groups available in Vermont at this time.

Virginia

American Lung Association South Atlantic Regional Center

9737 Main Street, Fairfax, VA 22031

Phone: 703-591-6504

Culpeper Transplant Group

207 Sunset Lane, Culpeper, VA 22701

Contact: Sheila Horton

Phone: 540-825-4815

Heart/Lung Transplant Support Group

University of Virginia Health System

P.O. Box 800 191, Charlottesville, VA 22908

Contact: Bill Potts, MSW, CSAC

Phone: 800-257-0757

E-mail: [email protected]

In Loving Memory

1416 Green Run Lane, Reston, VA 20190

Phone: 703-435-0608

E-mail: [email protected]

Kidney and Liver Transplant Support Group

Medical College of Virginia, Hume-Lee Transplant Center

1200 E. Marshall Street, Richmond, VA 23298

Contact: Sheila Bullock, MSW

Web: www.vcuhealth.org/transplant

Phone: 804-828-8193

E-mail: [email protected]

Kidney Transplant as a Treatment Option

Henrico Doctors’ Hospital

Richmond, VA

Phone: 877-626-4581

Kidney Transplant Support Group

Henrico Doctor’s Hospital, VA Transplant Center

1602 Skipwith Road, Richmond, VA 23229

Contact: Gigi Spicer

Phone: 804-289-4941

Liver Transplant Support Group

100 Green Park Ct, Winchester, VA 22602

Contact: Mary Reed

Phone: 540-550-4652

E-mail: [email protected]

LVAD and Transplant Support Group

Sentara Heart Hospital

600 Gresham Drive, Norfolk, VA 23507

Phone: 757-388-2831

The Mended Hearts, Inc.

7203 Poplar Street, Annandale, VA 22003

Contact: John Braddon

Phone: 703-941-8500

E-mail: [email protected]

Transplant Awareness

Transplant Awareness

P O Box 7634, Arlington, VA 22207-7634

Contact: Claude Brady

Web: www.transplantawareness.org

Phone: 703-825-3290

E-mail: [email protected]

Transplant Recipients International Organization (TRIO)

Nation’s Capital Area Chapter

P.O. Box 7633, Arlington, VA 22207

Phone: 703-825-3290

E-mail: [email protected]

Washington

Lung Transplant Support Group

University of Washington Medical Center

Seattle, WA

Contact: Angela Wagner, MSW

Phone: 206-598-2676

E-mail: [email protected]

Transplant Caregivers Support Group

University of Washington Medical Center

Seattle, WA

Contact: Angela Wagner, MSW

Phone: 206-598-2676

E-mail: [email protected]

TRIO NW Pediatric Transplant Support Group

TRIO Pacific Northwest

930 NE High St F-224, Issaquah, WA 98029

Contact: David Hall

Web: http://trioseattle.org/

Phone: 425.281.2779

E-mail: [email protected]

TRIO Pacific Northwest Transplant Support Group

TRIO Pacific Northwest

930 NE High St., Issaquah, WA 98029

Contact: David Hall

Web: trioseattle.org

Phone: 425.281.2779

E-mail: [email protected]

West Virginia

There are no support groups available in West Virginia at this time.

Wisconsin

Central Wisconsin Area Second Chance for Life

Marshfield, WI

Contact: Leah Breu, RN

Web: www.secondchanceforlife.org

Phone: 715-389-3677

Coulee Region Transplant Support Group

Franciscan Skemp Healthcare

Lower level conference room of Franciscan Skemp’s Onalaska Clinic

191 Theater Road, Onalaska, WI

Contact: Jena Casper

Phone: 608-392-6117

Froedert Transplant Support Groups

9200 W. Wisconsin Ave., Milwaukee , WI

Web: www.froedtert.com

Phone: 414-805-3666

Kids With Heart National Association for Children’s Heart Disorders

1578 Careful Drive, Green Bay, WI 54304

Web: www.kidswithheart.org

Phone: 800-538-5390

E-mail: [email protected]

St. Luke’s Heart Transplant Support Group

Milwaukee, WI

Web: www.aurorahealthcare.org

Phone: 414-646-5410

Vernon Memorial Hospital Heart Center Support Group

Viroqua, WI

Web: http://www.vmh.org/content/organ-transplant-support

Phone: 608-637-4497

Wyoming

There are no support groups available in Wyoming at this time.

Nationwide

Alliance for Donation Transplantation Awareness and Support (ADTAS)

Web: groups.google.com/group/Kidney-Liver-Pancreas-Support-Group

American Association of Kidney Patients

Contact: Roberta Wager, RN, MSN, AAKP President

Phone: 800-749-2257

E-mail: [email protected]

American Heart Association

Web: https://www.heart.org/HEARTORG/

Phone: 800-242-8721

American Liver Foundation

1425 Pompton Avenue

Web: www.liverfoundation.org

Phone: 800-223-0179

Heart Transplant Support Group

Henry Ford Hospital

Contact: Ginger St. John, MSW

Phone: 313-916-2724

E-mail: [email protected]

Heart-Lung Transplant Support Group

E-mail: [email protected]

Liver Families

Web: http://www.liverfamilies.net/

Liver Hope

HCV Support, Inc.

Contact: Wayne Morea

E-mail: [email protected]

Liver Transplant and Hepatitis C Online Support

Web: http://forums.delphiforums.com/livertransplant/start

Liver Transplant Support Group

LISTEN at King’s College Hospital

Contact: Donna

E-mail: [email protected]

National Kidney Foundation

Web: www.kidney.org

Phone: 800-622-9010

Pancreatitis Online Support Group

Web: pancreasfoundation.org/pancreas-community/

Renal Support Network

Contact: Lori Hartwell, President and Founder

Web: www.rsnhope.org

Phone: 866-903-1728

E-mail: [email protected]

Second Wind Lung Transplant Association, Inc

Contact: Kathryn Flynn, Vice President

Web: www.2ndwind.org

Phone: 888-855-9463

E-mail: [email protected]

The Compassionate Friends, Inc.

Web: www.compassionatefriends.org

TransplantBuddies.org

Web: transplantbuddies.org

Reference and Publication Information
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