Support groups
Why join a support group?
Transplant patients and their families can gain support from many different types of groups, including group gatherings, educational programs, one-on-one support, social activities, newsletters, written materials, Internet groups, and talking on the telephone. As patients’ transplant experiences continue, they often gain confidence and reach out others, in turn making lifelong friends, enjoying social activities and finding opportunities to promote the need for organ and tissue donation.
Hospital groups
Usually run by the hospital transplant coordinator, social worker or other member of the transplant team, these types of support groups may consist of patients who are pre- or post-transplant or are hospitalized with transplant-related problems. These types of groups also typically meet more frequently than non-hospital groups.
Local support groups
Usually run by transplant patient, these groups consist of pre- and post-transplant patients and their families. They allow members who have already had their transplant to help you with the adjustment to a more normal, everyday lifestyle. They usually have monthly meetings and special events.
Online support groups
These groups can provide you with a broad range of experiences from all over the world. In addition, Internet support groups allow allow you to ask personal questions in the comfort of your own home. You can find many Facebook and other social media sites that specialize by organ type or disease.
Professional organizations
Professional organizations provide educational seminars, materials and activities. They also may conduct fundraising to support research and help shape healthcare policy.
Support groups by state
Alabama
Heart/Lung/Liver Support Group
University of Alabama at BirminghamBirmingham, AL
Contact: Stan Smith
Phone: 205-655-3151
E-mail: heartlungkid1@gmail.com
Alaska
AKPA Support
Alaska Kidney Patients Association325 East Third #201
Anchorage, AK 99501
Contact: Kristie Lemmon
Web: alaskakidney.org
Phone: 907.333.2257
E-mail: info@alaskakidney.org
Alaska Transplant Resource Group
Life Alaska Donor ServicesAnchorage, AK 99501
Contact: Janet Cornelius, Family Services Coordinator
Web: www.lifealaska.org
Phone: 907- 562-LIFE (5433)
E-mail: family@lifealaska.org
Alaska Transplant Resource Group
Life Alaska Donor ServicesAnchorage, AK
Contact: Janet Cornelius, Family Services Coordinator
Web: www.lifealaska.org
Phone: 907- 562-LIFE (5433)
E-mail: family@lifealaska.org
Alaska Transplant Resource Group
Life Alaska Donor ServicesAnchorage, AK 99501
Contact: Cindy McCann, Family Services Coordinator
Web: www.lifealaska.org
Phone: 907-562-LIFE (5433)
E-mail: family@lifealaska.org
Alaska Transplant Recipient Resource Group
Anchorage, AKPhone: 907- 562-LIFE (5433)
E-mail: biancar@lifealaska.org
Arizona
Abdominal Transplant Support Group
University of Arizona Medical Center1501 N. Campbell Avenue
Tucson, AZ 85724
Contact: Sandra Thornton, MSW, LCSW
Phone: 520-694-6628
E-mail: Sandra.Thornton@uahealth.com
Abdominal Transplant Support Group
University of Arizona Medical Center1501 N. Campbell Avenue
Tucson, AZ 85724
Contact: Sandra Thornton, MSW, LCSW
Phone: 520-694-6628
E-mail: Sandra.Thornton@uahealth.com
Abdominal Transplant Support Group
University of Arizona Medical Center1501 N. Campbell Avenue
Tucson, AZ 85724
Contact: Caitlin Yost LMW
Web: www.bannerhealth.com
Phone: 520-694-6149
E-mail: Caitlin.Yost@bannerhealth.com
Banner Liver Disease Support Group
Banner Good Samaritan Medical Center1111 E McDowell Rd
Phoenix, AZ 85006
Contact: Charlie Thomas
Web: www.bannerhealth.com
Phone: 602.839.0219
E-mail: charlie.thomas@bannerhealth.com
Heart and Lung Transplant Support & Education
Banner University Medical Center - Tucson1501 North Campbell Avenue
Tucson, AZ 85724
Contact: Martha Moutray, LMSW
Web: www.bannerhealth.com
Phone: 520-240-5108
E-mail: Martha.Moutray@bannerhealth.com
Heart and Lung Transplant Support Groups
University of Arizona Medical Center1501 N. Campbell Avenue
Tucson, AZ 85724
Contact: Martha Moutray, LMSW
Web: www.uahealth.com
Phone: 520-694-4603
E-mail: Martha.Moutray@uahealth.com
Heart/Lung Transplant Support Groups
University Medical Center1501 N. Campbell Avenue
Tucson, AZ 85724
Contact: Martha Moutray
Phone: 800-524-5927
Kidney Transplant Support Group
University Medical Center1501 N. Campbell Avenue
Tucson, AZ 85724
Contact: Sandra Thornton, MSW
Phone: 520-694-6628
E-mail: sthornton@umcaz.edu
Lung Transplant Support Group
St. Joseph’s Hospital and Medical Center350 W. Thomas Road
Phoenix, AZ 85013
Contact: Kathy Lam, MSW, LCS
Phone: 602- 406-7009
E-mail: klam@chw.edu
Mayo Clinic Heart Transplant Support Group
Mayo ClinicAZ 85054
Contact: Nina Menardie
Phone: 480-342-1671
E-mail: menardie.christina@mayo.edu
The New Life Society
Open to all organ recipientsVarious locations in Phoenix
Contact: Zoe Severyn
Web: newlifesociety.org/SupportGroup
Phone: 602-277-2661
E-mail: info@newlifesociety.org
Arkansas
Central Arkansas Support Group
ARContact: Carolyn Berry
Phone: 870.329.1368
E-mail: ccarol20@hotmail.com
Conway Support Group
Conway, ARContact: Dale & Debbie Smith
Phone: 501.472.0461
E-mail: smithdf1@conwaycorp.net
Fayetteville Area Transplant Support Group
Fayetteville, ARContact: Milton Spooner
Phone: (479) 212-0872
E-mail: miltonspooner@yahoo.com
Hot Springs Support Group
Hot Springs, ARContact: Billy Valentine
Phone: 501.622.7316 / 7416
E-mail: e.valentine@sbcglobal.net
Russellville Support Group
Russellville, ARContact: H.L. & Barbara Shepherd
Phone: 479.968.2471
E-mail: bhlshep@suddenlink.net
California
A Gift of Heart - Organ Transplant and Donor Support Group
Orange, CAWeb: www.agiftofheart.org
Bay Area Association of Kidney Patients
PO Box 2332Menlo Park, CA 94026
Web: www.baakp.org
Phone: 650-323-2225
E-mail: bay.area.kidney@gmail.com
Caregiver Solid Organ Transplant Support Group
Stanford Hospital and Clinics300 Pasteur Drive
Stanford, CA 94305
Contact: Jenny Kwak, LCSW
Phone: 650-498-5831
E-mail: jkwak@stanfordmed.org
Caregiver Solid Organ Transplant Support Group
UCSF Medical Center505 Parnassus Avenue
San Francisco, CA 94143
Contact: Brie Kelly, MSW
Phone: 415-353-1040
E-mail: Brienne.Kelly@ucsfmedctr.org
Caregiver Solid Organ Transplant Support Group
Stanford Hospital and Clinics300 Pasteur Drive
Stanford, CA 94305
Contact: Kimberly Averett, MSW
Phone: 650-498-5428
E-mail: kaverett@stanfordmed.org
Caregiver Solid Organ Transplant Support Group
Stanford Hospital and Clinics300 Pasteur Drive
Stanford, CA 94305
Contact: Caitlin West
Phone: 650-723-4440
E-mail: cwest@stanfordhealthcare.org
Caregiver Solid Organ Transplant Support Group
Stanford Hospital and Clinics300 Pasteur Drive
Stanford, CA 94305
Contact: Tonia Gregory
Phone: 650-723-4440
Caregiver Solid Organ Transplant Support Group
Stanford Hospital and Clinics300 Pasteur Drive
Stanford, CA 94305
Contact: Tonia Gregory
Phone: 650-723-4440
E-mail: gdean@mills.edu
Cedars Sinai Multi-Organ Transplant Support Group
Cedars-Sinai Medical Center8700 Beverly Blvd., Room 2802
Los Angeles, CA 90048
Contact: Carlie Galloway, LCSW
Phone: 310-423-6850
E-mail: carlie.galloway@cshs.org
Coachella Valley Hepatitis C, Liver Disease and Transplant Support Group
Portola Community Center45480 Portola Ave
Palm Desert , CA 92260
Contact: Richard Darling, DDS
Web: fairfoundation.org
Phone: 760-200-2766
E-mail: fair@dc.rr.com
Heart and Lung Transplant Support Group
UCSF Medical CenterSan Francisco, CA
Contact: Nikki Galin, LCSW
Phone: 415-353-8818
E-mail: nikki.galin@ucsfmedctr.org
Heart Transplant Support Group
Sharp Memorial Hospital7901 Frost Street
San Diego, CA 92123
Web: www.sharp.com/transplant
Phone: 800-82-SHARP
Heart Transplant Support Group
Stanford Hospital and Clinics300 Pasteur Drive
Stanford, CA 94305
Contact: Cathy Miller
Phone: 650-723-5581
E-mail: cmiller@stanfordmed.org
Hep C and Liver Transplant Support Group
American Liver FoundationCA
Contact: Holly Heller
Web: Liverfoundation.org
Phone: 8183032085
E-mail: Hhc4hep@aol.com
Kidney and Pancreas Transplant Support Group
UC Irvine Medical Center101 The City Drive
Orange, CA 92868
Contact: Robin Worker
Phone: 714-456-8342
Kidney and Pancreas Transplant Support Group
UC Irvine Medical Center18494 Del Bonita St
Rowland Heights, CA 91748
Contact: Maria Salas
Phone: 626-241-3482
E-mail: salasweaver@yahoo.com
Liver Support Group
UCLAventura, CA 93003
Contact: Kathy Johnson
Phone: 805-368-3653
E-mail: cakewoman@msn.com
Liver Support Group
UCLAventura, CA 93003
Contact: Kathy John
Phone: 805-368-3653
E-mail: cakewoman@msn.com
Liver Support Group
USC University Hospital1500 San Pablo St.
Los Angeles, CA 90033
Phone: 323-442-9626
Liver Support Group
USC University Hospital1500 San Pablo St.
Los Angeles, CA 90033
Contact: Marie Murphy
Phone: 714.213.1816
E-mail: thebichonf@hotmail.com
Liver Support Group
USC University Hospital1500 San Pablo St.
Los Angeles, CA 90033
Contact: Marla Frankel, LCSW CCTSW
Phone: 323-442-9632
E-mail: marla.frankel@med.usc.edu
Liver Transplant Support Group
UCSF Medical CenterSan Francisco, CA
Contact: Sherry Laemmermann, ACSW
Phone: 415-353-1040
Liver Transplant Support Group
UCSF Medical Center3490 e Clinton Ave
Fresno, CA 93703s
Contact: Sherry Laemmermann, ACSW
Phone: 415-353-1040
E-mail: ninakelly65@hotmail.com
Liver Transplant Support Group
UCLA Medical Center10833 LeConte Ave.
Los Angeles, CA 90024
Contact: Elisa Geraci, MSW
Phone: 310-825-5921
E-mail: egeraci@mednet.ucla.edu
Liver Transplant Support Group
UCSF Medical Center2802e andrew ave
fresno, CA 93726
Contact: Sherry Laemmermann, ACSW
Phone: 415-353-1040
E-mail: harkins.darrell@yahoo.com
Liver Transplant Support Group
UCLA Medical Center10833 LeConte Ave.
Los Angeles, CA 90024
Contact: Elisa Geraci, BSW MSW ACSW
Phone: 310-825-5921
E-mail: egeraci@mednet.ucla.edu
Liver Transplant Support Group
UCSF Medical CenterSan Francisco, CA
Contact: Patrick Marsh, Pauline Rogers, Brie Kelly
Phone: 415-353-1504
E-mail: patrick.marsh@ucsfmedctr.org
Liver Transplant Support Group
UCSF Medical CenterSan Francisco, CA
Contact: Patrick Marsh, Pauline Rogers, Brie Kelly
Phone: 415-353-1504
E-mail: patrick.marsh@ucsfmedctr.org
Liver Transplant Support Group
UCLA Medical Center10833 LeConte Ave.
Los Angeles, CA 90024
Contact: Elisa Geraci
Phone: 310-267-9807
E-mail: egeraci@mednet.ucla.edu
Liver Transplant Support Group
UCSF Medical CenterSan Francisco, CA 64143
Contact: Pauline Rogers
Phone: 415-353-1284
E-mail: Pauline.Rogers@ucsfmedctr.org
Liver Transplant Support Group
UCSF Medical Center3490 e Clinton Ave
Fresno, CA 93703s
Contact: Nina Kelly
E-mail: ninakelly65@hotmail.com
Liver Transplant Support Group
UCSF Medical CenterSan Francisco, CA
Contact: Brie Pierquet MSW
Phone: 415-353-1040
E-mail: Brienne.Pierquet@ucsf.edu
Liver Transplant Support Group
Stanford Hospital and Clinics300 Pasteur Drive
Stanford, CA 94305
Contact: Jenny Kwak, LCSW
Phone: 650-498-5831
E-mail: jkwak@stanfordmed.org
Liver Transplant Support Group
Stanford Hospital and Clinics300 Pasteur Drive
Stanford, CA 94305
Contact: Kimberly Averett, MSW
Phone: 650-498-5428
E-mail: kaverett@stanfordhealthcare.org
Pre and Post Organ Transplant Support Group
ADTAS, Alliance for Donation and Transplantation Awareness and Support242 E. Hospitality Lane
San Bernardino, CA 92408
Contact: John Mitas
Phone: 951-237-2905
E-mail: A.FDTAS@gmail.com
Renal Support Network
Studio Hope621 East Glenoaks Blvd. #B
Glendale, CA 91207
Contact: Mica Spalding
Web: www.rsnhope.org
Phone: (818) 543-0896
E-mail: Mica@RSNhope.org or info@RSNhope.org
Sacramento Area Liver Transplant Support Group
Sacramento, CAContact: Ann Linnekens
Web: www.saclivertxgroup.com/
Phone: 916-791-1697
E-mail: ALinnekens@surewest.net
Sacramento Area Renal and Pancreas Support Group
UC Davis Transplant Program1625 Stockton Blvd
Sacramento, CA 95816, CA 95816
Phone: 800-821-9912
Sacramento Area Renal and Pancreas Support Group
8550 Sheraton DriveFair Oaks , CA 95628
Contact: Ruben Hulan
Phone: 916-807-4840
E-mail: bhulan@scoe.net
Saddleback Kidney Support Group
Saddleback Church Peace Center1 Purpose Drive
Lake Forest, CA 92630
Contact: Helen Mills
Web: saddleback.com/connect/ministry/peace-center
Phone: 949-412-3210
E-mail: sparkymiss@cox.net
San Gabriel Valley Hepatitis, Liver and Transplant Support Group
Methodist Hospital300 West Huntington Drive, Classroom #4
Arcadia, CA 91007
Phone: 310-670-4624
San Gabriel Valley Hepatitis, Liver and Transplant Support Group
Methodist Hospital6275 Crestwood Way
Los Angeles, CA 90042
Contact: Jane Leslie
Phone: 323-708-2565
E-mail: cjnutz@roadrunner.com
San Gabriel Valley Hepatitis, Liver and Transplant Support Group
Methodist Hospital243 West Fairview Ave.
Arcadia, CA 91007
Contact: Marcie Fisher
Phone: 970-376-3662
E-mail: marcie_fisher@yahoo.com
San Gabriel Valley Hepatitis, Liver and Transplant Support Group
Methodist Hospital3817 Cogswell Rd #3
El Monte, CA 91703
Contact: Arthur Rico
Phone: 626-230-4742
E-mail: arico1963@yahoo.com
Transplant Patient, Family, & Caregiver Support Group
Keck Medical Center of USC1500 San Pablo St.
Los Angeles, CA 90033
Contact: Marla Frankel, LCSW CCTSW
Phone: 323-442-9632
E-mail: marla.frankel@med.usc.edu
Transplant Recipients International Organization (TRIO)
San Francisco Bay Area ChapterP.O. Box 2804
Cupertino, CA 95016
Phone: 408-238-3077
Transplant Recipients International Organization (TRIO)
The City Chapter2358 Park Boulevard
Oakland, CA 94606
Phone: 510-834-0436
Transplant Recipients International Organization (TRIO)
San Francisco Bay Area ChapterP.O. Box 2804
Cupertino, CA 95016
Contact: Monet Thomson
Web: http://www.bayareatrio.org/
Phone: 408-723-0800
E-mail: info@bayareatrio.org
Transplant Recipients International Organization (TRIO)
Ventura County West Valley Chapter2562 Covent Garden Court
Thousand Oaks, CA 91362
Web: http://www.trioventurala.org/
Phone: 805-492-9810
TRIO Ventura County West San Fernando Valley
Transplant Recipients Organization International15763 Kenneth Place
Santa Clarita, CA 91367
Contact: Ron Taubman
Web: www.trioweb.org
Phone: 8183097919
E-mail: taubmanappr@dslextreme.com
UC San Diego Health System Heart/Lung Transplant Caregivers Support Group
San Diego, CAContact: Karen Matthews, LCSW
Phone: 858 657-5050
E-mail: kmatthew@ucsd.edu
UC San Diego Health System Heart/Lung Transplant Caregivers Support Group
San Diego, CAContact: Karen Matthews, LCSW
Phone: 858 657-5050
E-mail: kmatthew@ucsd.edu
UC San Diego Health System Heart/Lung Transplant Caregivers Support Group
San Diego, CAContact: Michelle Williams
Web: www.transplant.ucsd.edu
Phone: 858-657-7221
E-mail: mwilliams@ucsd.edu
UC San Diego Health System Heart/Lung Transplant Support Group
San Diego, CAContact: Karen Matthews, LCSW
Phone: 858 657-5050
E-mail: kmatthew@ucsd.edu
UC San Diego Health System Kidney Transplant Support Group
UC San Diego Health System3500 5th Ave Suite 301
San Diego, CA 92103
Contact: Chris Frederici Hines, LCSW
Web: https://health.ucsd.edu/specialties/surgery/transplant/patient-resources/Pages/default.aspx
Phone: 619-574-8612
E-mail: cfrederici@ucsd.edu
UCLA Heart and Lung Transplant Program and VAD Support Groups
Los Angeles, CAContact: Heart and Lung Transplant Office
Phone: 310-825-6068
E-mail: http://transplants.ucla.edu/
UCLA Heart and Lung Transplant Program Support Groups
Los Angeles, CAContact: Linda Ventura
Phone: 310-825-0749
UCSD Medical Center Liver Transplant Support Group
San Diego, CAContact: Michele Morrison, LCSW
Phone: 619-543-8612
E-mail: mlmorrison@ucsd.edu
UCSF Heart Transplant & VAD Support Group
UCSF Medical CenterSan Francisco, CA
Contact: Nikki Galin, LCSW
Phone: 415-353-8901
E-mail: Nikki.Galin@ucsf.edu
UCSF Lung Transplant Support Group
UCSF Medical CenterSan Francisco, CA
Contact: Andrea Baird, LCSW
Phone: 415-353-1382
E-mail: Andrea.Baird@ucsf.edu
UCSF Transplant Caregiver Support Group
UCSF Medical CenterSan Francisco, CA
Phone: 415-353-1040
UOTA
United Organ Transplant Association3405 Arlington Ave.
Riverside, CA 92506
Contact: Debbie Morgan
Web: www.uota.org
Phone: 951-276-4700
E-mail: dmorgan@uota.org
Weekly Transplant Support Group
Cedars-Sinai Medical Center8700 Beverly Blvd., Room 2802
Los Angeles, CA 90048
Contact: John Pappas, LCSW
Phone: 310-423-6850
Weekly Transplant Support Group
Cedars-Sinai Medical Center8700 Beverly Blvd., Room 2802
Los Angeles, CA 90048
Contact: Carlie Galloway, MSW
Phone: 310-423-6850
E-mail: carlie.galloway@cshs.org
West Los Angeles Hepatitis, Liver and Transplant Support Group
Wadsworth Grounds200 E Vernon
Long Beach, CA 90804
Contact: Charles
Phone: 562-726-1240
E-mail: beverlyjhamm@msn.com
Colorado
There are no support groups available in Colorado at this time.Connecticut
There are no support groups available in Connecticut at this time.Delaware
Kidney Transplant Patient Education and Support Group
Christiana Care Health SystemNewark, DE
Contact: Eileen Edge, LSW, MSW
Phone: 866-682-6792
TDSG (Transplant/Donor Support Group)
St Paul UAME Church3114 N Market Street
Wilmington, DE 19809
Contact: Sandi Gibbs
Phone: 302-602-6126
E-mail: smgibbs@yahoo.com
District of Columbia
Transplant Recipients International Organization (TRIO)
1000 Sixteenth Street, NW, Suite 602Washington, DC 20036
Phone: 202- 293-0980
E-mail: TRIO@primenet.com
Transplant Support Group
Howard University Hospital2041 Georgia Avenue NW
Washington, DC 20060
Contact: Dr. John Robinson
Phone: 202 865-1443
Washington Heart Support Group
110 Irving Street, NW Washington Hospital Center, Room 1208Washington, DC 20010, DC 20010
Phone: 202-877-3220
Florida
Brevard County Organ Transplant Support Group
4161 Gatewood StreetCocoa, FL 32926
Contact: Leo A. Paradis
Web: http://organtransplantsupportgroup.org/
Phone: 321-698-8884
E-mail: BCOTSG@cfl.rr.com
Caring For The Gift of Life
2500 SW 107th Ave Ste 47Miami, FL 33165
Contact: Kleydson Da Silva
Phone: 786-205-4515
E-mail: info@supramedicalgroup.net
Memorial Transplant & VAD Support Group
Memorial Transplant Institute3501 Johnson St
Hollywood, FL 33021
Contact: Janet Delgado, LCSW
Web: mhs.net
Phone: 954-265-6810
E-mail: jadelgado@mhs.net
Group is open to all transplant recipients, those on waitlist, & their families.
National Organization for Transplant Enlightenment
N.O.T.E.13014 N. Dale Mabry #187
Tampa, FL 33618
Contact: Janet Walin
Web: noteus.org
Phone: 813-962-6250
E-mail: noteorg@tampabay.rr.com
Organ Transplant Recipients of SW FL, Inc.
2727 Winkler AvenueFort Myers, FL 33901
Contact: Bob Lucas
Web: organsupport.org
E-mail: bob@boblucas.com
Renal Transplant Support Group
Halifax Health-Center for Transplant ServicesFL
Contact: Jenny Ketring, MSW
E-mail: Jennifer.Ketring@halifax.org
Second Chance Support Group
Second Chance JaxJacksonville, FL 32224
Contact: Kristin Corlett
Phone: (904) 314-3436
E-mail: Kirby3131@gmail.com
Second Wind Lung Transplant Association, Inc.
300 South Duncan Avenue, Suite 227Clearwater, FL , FL 33755
Web: http://2ndwind.org
Phone: 888- 855-9463
Shands Lung Transplant
UF Health - Shands HospitalPO Box 100223
Gainesville, FL 32610
Contact: Micki Nodurft-Luck, LCSW, CCTSW
Web: https://ufhealth.org/transplant-center/lung
Phone: 352-265-8940
E-mail: nodurm@shands.ufl.edu
Tallahassee Kidney Support Group
1609 Physicians DriveTallahassee, FL 32308
Phone: 850-878-1171
Tallahassee Kidney Support Group
Transplant Support Group1609 Physicians Drive
Tallahassee, FL 32308
Contact: Dee Wilder
Phone: 850-878-1171
E-mail: dwilder_32301@yahoo.com
Tallahassee Kidney Transplant Support Group
1609 Physicians DriveTallahassee, FL 32308
Contact: Dee Wilder
Phone: 850-878-1171
E-mail: dwilder_32301@yahoo.com
Tallahassee/Big Bend Lung Transplant Support Group
Tallahassee, FLContact: Sandra Skelton
Phone: (850) 228-2616
E-mail: tlh-bb_lungtxsupportgrp@hotmail.com
Tampa Bay Liver Disease and Transplantation Support Group
Tampa General Medical Group Transplant Speciality Services409 Bayshore Blvd.
Tampa, FL 33606
Contact: Stanley Genstein
Web: www.tgh.org/sg.htm
Phone: 8132603723
E-mail: sgenstein@tampabay.rr.com
Transplant & VAD Support Group
Memorial Cardiac & Vascular Institute3501 Johnson St
Hollywood, FL 33021
Contact: Pat Dennis, LCSW
Web: mhs.net
Phone: 954-265-6810
E-mail: pdennis@mhs.net
Transplant & VAD Support Group
Memorial Cardiac & Vascular Institute3501 Johnson St
Hollywood, FL 33021
Contact: Pat Dennis, LCSW
Web: mhs.net
Phone: 954-265-6810
E-mail: pdennis@mhs.net
Transplant Caregivers Support Group
Tampa General Hospital Transplant Services312 Laurel Falls Drive
Apollo Beach, FL 33572
Contact: Stanley Genstein
Web: //www.tgh.org/sg.htm
Phone: 8132603723
E-mail: sgenstein@tampabay.rr.com
Transplant Caregivers Support Group
Tampa General Hospital Transplant Services1 Tampa General Circle
Tampa, FL 33606
Contact: Stanley Genstein
Web: https://www.tgh.org/sg.htm
Phone: 8132603723
E-mail: sgenstein@tampabay.rr.com
Transplant Recipients International Organization (TRIO)
Southwest ChapterP.O. Box 7888
North Port , FL 34287
Contact: Bette Luksha-Gammell
Phone: 941-423-2553
E-mail: TRIOFLA@comcast.net
Georgia
Brunswick Transplant Support Group
Brunswick, GAContact: Joan Mobley
Phone: 912-266-5994
E-mail: bwktsg@yahoo.com
Hawaii
Transplant Support Group
Queen's Medical Center550 S. Beretania St, Suite 404
Honolulu, HI 96813
Contact: Shona Peters
Phone: 8086918897
E-mail: speters@queens.org
Idaho
There are no support groups available in Idaho at this time.Illinois
Kidney and Pancreas Support Group
OSF St. Francis Kidney Transplant ServicesPeoria, IL
Contact: Karen Welborn, MSN, RN, NEA-BC
Web: www.osfhealthcare.org/services/transplant-services/
Phone: 309-655-4101
Kidney/Pancreas Support Group
Memorial Medical Center701 N. 1st St
Springfield, IL 62781
Contact: Holly Heinz, LSW, MSW
Phone: 217-788-3441
Live Life! Pre & Post Transplant Support Group
Illinois Valley Community Hospital925 West Street
Peru, IL 61354
Contact: Illinois Valley Community Hospital
Web: Calendar
Phone: 815-780-3521
E-mail: public.relations@ivch.org
Lung and Heart/Lung Transplant Support Group
Loyola University Medical Center2160 S First Ave
Maywood, IL
Contact: Mary McGillicuddy
Phone: 708-216-3634
Lung and Heart/Lung Transplant Support Group
Loyola University Medical Center2160 S First Ave
Maywood, IL 60153
Contact: Susan Long
Phone: 708-216-5454
E-mail: slong@lumc.edu
Lung Transplant Support Group
University of Chicago Medicine5841 S. Maryland Ave.
Chicago, IL 60637
Contact: Kaitlin Ray
Web: //www.uchospitals.edu
Phone: 773-702-4608
E-mail: kaitlin.ray@uchospital.edu
Lung Transplant Support Group
Loyola University Medical Center2160 S First Ave
Maywood, IL
Contact: Susan Long
Phone: 708-216-5454
E-mail: slong@lumc.edu
Organ Transplant Support, Inc.
PO Box 471Naperville, IL 60566
Contact: Chuck Feltes, President
Phone: 630-527-8640
E-mail: organtransplantsupport@gmail.com
Organ Transplant Support, Inc.
PO Box 471Naperville, IL 60566
Contact: Ron Dickover, President
Phone: 630-527-8640
E-mail: organtransplantsupport@gmail.com
Organ Transplant Support, Inc.
PO Box 471Naperville, IL 60566
Contact: Susan English, President
Web: www.organtransplantsupport.org
Phone: 630-527-8640
E-mail: organtransplantsupport@gmail.com
Organ Transplant Support, Inc.
PO Box 471Naperville, IL 60566
Contact: Susan English, President
Web: www.organtransplantsupport.org
Phone: 630-527-8640
E-mail: organtransplantsupport@gmail.com
Sarcoidosis Empowering Healing Hands Of Hope Support Group
National Sarcoidosis Scoity ,NFP4747 S. M.L.King Dr. Ste # 512
Chicago, IL 60615
Contact: Glenda Fulton
Web: http://nationalsarcoidosisfriends.org.tripod.com/
Phone: 312-567-6626
E-mail: sarcoidosispals2@yahoo.com
Transplant Support Group
Rush University725 West Harrison, Ste. 437
Chicago, IL
Contact: Mike Levick
Phone: 312-563-2111
Transplant Support Group
University of Chicago5841 S. Maryland
Chicago, IL
Contact: Rina Murao
Phone: 773-834-2003
Transplant Support Group
American Transplant Association47 W Polk Street, Suite 100-140
Chicago, IL
Web: www.americantransplant.org
Phone: 800-494-4527
Transplant Support Group
University of Chicago5841 S. Maryland
Chicago, IL
Contact: Danley Kohn
Phone: 773-834-8076
E-mail: danley.kohn@uchospitals.edu
Transplant Support Group of Illinois
Centegra HospitalMcHenry, IL
Contact: Carol Prebianca
Phone: 847-838-4754
Transplant Support Group of Illinois
Centegra HospitalMcHenry, IL
Contact: Carol Prebianca
Phone: 847-838-4754
E-mail: TSGNI2004@aol.com
Transplant Support Group of Illinois
Centegra HospitalMcHenry, IL 60050
Contact: Rich Barclay
Phone: 847-680-4157
E-mail: rabpkb1@gmail.com
Transplant Support Group of Northern Illinois
40261 W. Beach LaneAntioch, IL 60002
Contact: Carol Prebianca
Phone: 847-838-4754
E-mail: carol1824@aol.com
Indiana
Fort Wayne Transplant Support Group
Ivy Tech College at Anthony Blvd and ColiseumAudience: All organs, pre- and post-transplant recipients and caregivers
When: Fourth Tuesday of the month, 6:30 p.m.
Contact: Larry Hilsmier
Phone: 260-637-6568
E-mail: ldhsr@comcast.net
Facebook: Fort Wayne Transplant Support Group
Hobart: New Beginnings Transplant Support Group
St. Mary’s Hospital auditoriumAudience: All organs, pre- and post-transplant recipients and caregivers
When: Third Wednesday of the month, 6:00 p.m.
Contact: Jason Delgado
Phone: 219-663-3747 or 219-775-2189 or 219-577-5581
Web: https://www.comhs.org/programs-and-events/n/new-beginnings-transplant-network
Indianapolis: IU Health Heart Lung Transplant Support Group
IU Health Methodist Hospital, Parking Garage 2Basement of the Professional Building, Room DG 422A
Audience: Heart or lung, pre- and post-transplant recipients and caregivers
When: Fourth Monday of the month, 6:00 p.m.
Contact: Sandy Cloyd, trained IU Health volunteer
Phone: 317-405-5025
Facebook: IU Health Heart and Lung Transplant Support Group
Indianapolis: IU Health Transplant Support Group
Cancer Pavilion at IU Health University Hospital, Room RT102Audience: All organs, pre- and post-transplant recipients and caregivers
When: Third Thursday of every month, 12:30–1:30 p.m.
Contact: Rachel Holmes, PhD, IU Health Transplant psychologist
Phone: 317-944-7320
Facebook: IUHTransplant
Virtual meetings: To ensure the health and safety of all our patients and team members during the coronavirus (COVID-19) pandemic, the support group is meeting online. To reserve your spot, email pwilkin1@iuhealth.org or visit facebook.com/iuhtransplant and click on Events.
Hartford City: Organ Transplant Support Group
IU Health Blackford Hospital, Main Conference RoomAudience: All organs, pre- and post-transplant recipients and caregivers
When: Third Thursday of every month, 3:00-4:00 p.m.
Contact: Abbey Chalfant, RRT, IU Health Blackford
Phone: 765-331-2117
Facebook: IU Health Ball, Blackford & Jay, under Events
South Bend: Second Wind Support Group
South Bend Christian Reformed Church, 1855 North Hickory RoadAudience: People with respiratory difficulties
When: Every Tuesday, 1:30 p.m.
Contact: Betsy Cichon
Phone: 574-272-9085
Other support groups: https://www.2ndwind.org/transplantation/support-groups/#indiana
Iowa
Anxiously Awaiting
University of Iowa Hospitals & Clinics, Soc. ClinicIowa City , IA
Contact: Yuk Sum Chung
Phone: 319-353-8799
Anxiously Awaiting
University of Iowa Hospitals & Clinics, Soc. ClinicP.o. 315
Urbandale, IA 50323
Contact: Belinda Deal
Phone: 5155701710
E-mail: ldeal22x@yahoo.com
Transplant Support Group
Great River Medical Center, Oak RoomBurlington, IA
Contact: Sam Johnson
Phone: 319-758-9665
Kansas
Liver Transplant Support Group
University of Kansas Hospital3901 Rainbow Blvd
Kansas City, KS , KS 66160
Contact: Kellie Elliott, LMSW
Phone: 913-588-4417
Liver Transplant Support Group
University of Kansas Hospital3901 Rainbow Blvd
Kansas City, KS , KS 66160
Contact: Kellie Elliott, LMSW
Phone: 913-588-4417
E-mail: greg.ohman1.go@gmail.com
Kentucky
Heart to Heart Support Group
University of Kentucky HealthCare Transplant Center2333 Alumni Park Plaza, Ste 300
Lexington, KY 40517
Contact: Becky Martin
Web: https://ukhealthcare.uky.edu/transplant-center
Phone: 859-323-4843
E-mail: ramart0@uky.edu
UK Healthcare Cardiothoracic Transplant/VAD Support Group
University of Kentucky HealthCare Transplant Center2333 Alumni Park Plaza, Ste 300
Lexington, KY 40517
Contact: Becky Martin
Web: www.ukhealthcare.uky.edu/transplant
Phone: 859-323-4843
E-mail: ramart0@uky.edu
University of Kentucky Lung Tranpslant Support Group
Kentucky Clinic740 South Limestone Street, Ste K116 (first floor between Pharmacy and General Surgery)
Lexington, KY 40536
Contact: April Bruce
Phone: 859-323-6019
E-mail: abruc2@uky.edu
University of Kentucky Liver Support Group
Kentucky Clinic740 South Limestone Street, Ste K301- K354
Lexington, KY 40536
Contact: Kristen Workman
Phone: 859-323-3228
E-mail: krwo227@uky.edu
University of Kentucky Kidney Support Group (The Kidney Collaborative)
Kentucky Clinic740 South Limestone Street, Ste K128 (first floor)
Lexington, KY 40536
Contact: Alex Berrios
Phone: 404-401-0096
E-mail: Alex.Berrios@uky.edu
Louisiana
Organ Transplant Support Group
Opelousas, LA 70570Contact: Mary Quebedeaux
E-mail: maryquebedeaux@yahoo.com
Maine
There are no support groups available in Maine at this time.
Maryland
Living With Hepatitis/Before and After Transplant Support Group
Frederick County Hepatitis C Clinic350 Montevue Avenue, Entrance "B"
Frederick, MD 21703
Mercy for Livers
301 St. Paul StreetBaltimore, MD 21202
Contact: Rose Stelmack
Phone: 443-503-6947
E-mail: mercy4livers@gmail.com
Quarter Century Club
415 Piedmont AvenueCumberland, MD 21502
Contact: george e franklin 3rd
Phone: 3013282601
E-mail: gef3rd@gmail.com
TRIO-Transplant Recipients International Organization
TRIO-Transplant Recipients International Organization822 Guilford Avenue
Baltimore, MD 21202
Contact: Marty Maren - President
Phone: 410-558-0451
E-mail: triomaryland@yahoo.com
Massachusetts
Dare to be Alive
230 North Main StreetSouth Yarmouth , MA 02664
Contact: Deanna Arnold
Phone: 508-398-5473
Kidney/Pancreas Pre- & Post- Transplant Educational Support Grouo
UMass Memorial Medical CenterTransplant Conference Room, Level A
Worcester, MA 01655
Contact: Sara Grady, LICSW
Phone: 508-334-7613
E-mail: Sara.Grady@umassmemorial.org
Liver Transplant Group
Beth Israel Deaconess Medical Center185 Pilgrim Road, Farr 10 Solarium
Boston, MA 02215
Contact: Noelle Dimitri
Phone: 617- 632-9815
Liver Transplantation Support Group
UMass Memorial Medical CenterWorcester, MA
Contact: Doris Tripp-MacPherson, LICSW
Phone: 774-441-8646
Renal/Pancreas Transplant Support Group (Pre and Post Transplant)
UMass Memorial Medical CenterLazare Research Building, Conference Room 203
Worcester, MA
Contact: Ellen Wells, LICSW
Phone: 508-334-7613
The Partnership for Organ Donation
2 Oliver StreetBoston , MA 02109
Phone: 617-482-5746
Transplant Recipients International Organization (TRIO)
New England Chapter (serving CT, ME, MA, NH, RI and VT)44 Ellison Road
Newton, MA 02459
Phone: 617-266-9559
Transplant Recipients International Organization (TRIO)
New England Chapter (serving CT, ME, MA, NH, RI and VT)44 Ellison Road
Newton, MA 02459
Contact: Michelle Kats
Phone: 6174069129
E-mail: Ladystardust24@gmail.com
Transplant Recipients International Organization (TRIO)
New England Chapter (serving CT, ME, MA, NH, RI and VT)1166 Washington St., apt 303
Boston, MA 02118
Contact: Virginia Watkins
Phone: 617-424-0204
E-mail: gingerboston@gmail.com
Transplant Recipients International Organization (TRIO)
New England Chapter (serving CT, ME, MA, NH, RI and VT)44 Ellison Road
Newton, MA 02459
Contact: Kara
Phone: 617-266-9559
E-mail: kebochicchio@gmail.com
Michigan
Heart - LVAD Support Group
University of Michigan Medical CenterAnn Arbor, MI
Contact: Ruth Halben
Phone: 734-763-9788
E-mail: rhalben@umich.edu
Heart LVAD Support Group
Henry Ford HospitalDetroit, MI
Contact: Ginger St. John, MSW
Phone: 313-916-2724
E-mail: gstjohn1@hfhs.org
Heart Support Group
University of Michigan Medical CenterAnn Arbor, MI
Contact: Ruth Halben
Phone: 734-763-9788
Heart Support Group
University of Michigan Medical CenterAnn Arbor, MI
Contact: Ruth Halben, LMSW
Phone: 734-763-9788
E-mail: rhalben@umich.edu
Kidney/Pancreas Support Group
Henry Ford HospitalDetroit , MI
Contact: Patrick Williams, MSW
Phone: 313-916-1290
E-mail: pwilliams1@hfhs.org
kTalk
National Kidney Foundation of Michigan1169 Oak Valley Drive
Ann Arbor, MI 48108
Contact: Susan Thomas, MD
Phone: 1.800.482.1455
E-mail: kidsbeans@gmail.com
Lakeshore Transplant Support Group
Hackley Hospital1700 Clinton St
Muskegon, MI 49442
Contact: CJ Raugh, President
Phone: 231- 740-5901
E-mail: capraugh@aol.com
Liver Support Group
Henry Ford HospitalDetroit, MI
Contact: Sophia Awan
Phone: 313-916-1352
Liver Support Group
University of Michigan Medical CenterAnn Arbor, MI
Contact: Lynda Asher
Phone: 734-668-0334
Liver Support Group
Henry Ford HospitalDetroit, MI 48202
Contact: Ann Zalucki
Phone: 313-916-1352
E-mail: azaluck1@hfhs.org
Liver Support Group
Henry Ford Hospital15635 W Townline Rd
St. Charles, MI 48655
Contact: Ann Zalucki
Phone: 313-916-1352
E-mail: valleymission08@yahoo.com
LOTTS-Living Organ Transplant and Tissue Support Group
Kalamazoo, MIContact: Jan Getz
Phone: 269-349-6630
E-mail: jgetz1980@aol.com
Lung Support Group
Henry Ford HospitalDetroit, MI
Contact: Anne Eshelman
Phone: 313-916-2724
Lung Support Group
University of Michigan Medical CenterAnn Arbor, MI
Contact: Lizbeth Warner
Phone: 734-615-5334
Lung Support Group
University of Michigan Medical CenterAnn Arbor, MI
Contact: Amy Van Zee
Phone: 734-615-5334
E-mail: avanzee@med.umich.edu
Lung Support Group
University of Michigan Medical CenterAnn Arbor, MI
Contact: Amy Van Zee, LMSW
Phone: 734-615-5334
E-mail: avanzee@med.umich.eduS
Lung Transplant Support Group
Bronson Battle Creek HospitalBattle Creek, MI
Contact: Deborah Pierce BS RRT
Phone: 269-245-8438
E-mail: PierceD@bronsonhg.org
Mid-Michigan Transplant Support Group
Mid Michigan Medical CenterClare, MI
Contact: Terri Maynard
Phone: 989- 430-4174
E-mail: jandt116@chartermi.net
Mid-Michigan Transplant Support Group
Saginaw, MIContact: Mary Catherine Siers
Phone: 989-792-1334
E-mail: mcsiers@sbcglobal
Organ Transplant Awareness Group
Alpena, MIContact: Jerome Smigelski
Phone: 989-354-3342
E-mail: heart312@chartermi.net
Second Time Around Transplant Support Group
Warren, MIContact: Jacquie Oliai
Phone: 800-348-3987
E-mail: Jacquie.Oliai@spectrum-health.org
Second Time Around Transplant Support Group
Spectrum Health2902 Bradford NE
Grand Rapids, MI
Contact: Jacquie Oliai
Phone: 616-391-2802
E-mail: Jacquie.Oliai@spectrum-health.org
St. John Transplant Support Group
Detroit, MIContact: Jennifer Bruns
Phone: 313-343-3047
E-mail: jennifer.bruns@stjohn.org
Transplant Connection
Beaumont Health3535 West 13 Mile Road-Suite 644
Royal Oak, MI 48073
Contact: Sophia Awan, LMSW
Phone: 248-551-1201
E-mail: Sophia.Awan@Beaumont.edu
Transplant Support Group
Jackson, MIContact: Cathy McAllister
Phone: 517-783-7320
Transplant Support Group of Northern Michigan
Gaylord, MIContact: Bev Cherwinski
Phone: 989-983-4188
Minnesota
Heart Transplant and VAD Caregiver Support Group
University of Minnesota Medical Center - Fairview420 Delaware St SE
Minneapolis, MN 55455
Contact: Lilli Bauman
Phone: 612-273-5670
E-mail: lbauman2@fairview.org
Heart Transplant Support Group
Fairview-University Medical CenterMMC 181 420 Delaware Street SE
Minneapolis, MN
Contact: Lilli Bauman
Phone: 612-273-5670
Lung Transplant Support Group
Fairview-University Medical CenterMMC 181 420 Delaware Street SE
Minneapolis, MN 55455
Contact: Marget Schmidtke, LICSW
Phone: 612-273-5796
VAD Support Group
University of Minnesota Medical Center - Fairview420 Delaware St SE
Minneapolis, MN 55455
Contact: Angela Herr
Phone: 612-273-5774
E-mail: aherr1@fairview.org
Mississippi
Transplant Support Group
University of MS Medical Center2500 North State Street
Jackson, MS 39216
Contact: Sherie Brock
Phone: 601-984-5065
E-mail: smbrock@umc.edu
Missouri
Heart Transplant Support Group
Barnes- Jewish HospitalSt. Louis, MO 63110
Contact: Jennifer Manolis, LCSW
Phone: 314-362-3980
Heart Transplant Support Group
Barnes- Jewish HospitalSt. Louis, MO 63110
Contact: Nina Jarvis, LCSW
Phone: 314-362-5070
E-mail: nmp2616@bjc.org
Heart Transplant Support Group
Barnes- Jewish HospitalSt. Louis, MO 63108
Contact: Nina Jarvis, MSW, LCSW
Phone: (314) 362-5070
E-mail: nmp2616@bjc.org
Kidney Transplant Support Group
Barnes-Jewish HospitalSt. Louis, MO 63110
Contact: Karen Politsch, LCSW
Phone: 314-362-5577
Liver Transplant Support Group
Barnes-Jewish HospitalSt. Louis, MO 63110
Contact: Kelly Dougherty, MSW
Phone: 314-362-1956
E-mail: kad9246@bjc.org
Liver Transplant Support Group
Barnes-Jewish Hospital1108 e 495th rd
BOLIVAR, MO 65613
Contact: linda king
Phone: 417-298-8699
E-mail: hunnymanswife@gmail.com
Liver Transplant Support Group
Barnes-Jewish HospitalSt. Louis, MO 63110, MO 63110
Contact: Kathleen Walton, MSW
Phone: 314-362-1956
Liver Transplant Support Group
University of Kansas Hospital8610 N Kansas ave
Kansas City, MO , MO 64156
Contact: Michael P Michael
Phone: 816-522-7638
E-mail: kcpapa2@att.net
Lung Transplant Support Group
Barnes-Jewish HospitalSt. Louis, MO 63110
Contact: Rebecca Bathon, LCSW
Phone: 314-362-6127
Lung Transplant Support Group
Barnes-Jewish HospitalSt. Louis, MO 63110
Contact: Rebecca Bathon, LCSW
Phone: 314-362-6127
E-mail: rjb6239@bjc.org
Second Wind Lung Transplant Associaiton of St. Louis, Missouri
Second Wind Lung Transplant Associaiton of St. Louis, Missouri3440 Halliday Avenue
St. Louis, MO 63118
Contact: Thomas E. Archer
Web: www.secondwindstl.org
Phone: (314) 664.6360
E-mail: tea3440@sbcglobal.net
Second Wind Lung Transplant Association, Inc.
St. Louis Chapter3440 Halliday Avenue
St. Louis, MO 63118
Contact: Tom Archer
Web: www.secondwindstl.org
Phone: 314-664-6360
E-mail: tea3440@sbcglobal.net
Transplant Institute Support Group
Research Medical Center2316 E. Meyer Blvd.
Kansas City, MO 64132
Contact: Kristen Derks
E-mail: kristen.derks@hcamidwest.com
Montana
American Liver Foundation
1425 Pompton AvenueMT
Contact: Charlie O
Web: www.liverfoundation.org
Phone: 4065815425
E-mail: Charkliegeorge@gmail.com
American Liver Foundation
1425 Pompton AvenueMT
Web: www.liverfoundation.org
Phone: 4065815425
E-mail: mtlivertransplant@gmail.com
Montana Chapter of Transplant Recipients International Org
1002 Boylan Dr, Stop EBozeman, MT 59715
Contact: Jim Rivard- Co-founder
Phone: 503-944-9604
E-mail: rivardjim@gmail.com
Nebraska
New Hearts Transplant Support Group
8509 S. 46th StreetOmaha, NE , NE 68157
Contact: Annette Fumagalli
Phone: 402-734-5749
Nevada
Living Well with Kidney Disease
Las Vegas, NVWeb: http://livingwellwithkidneydisease.blogspot.com
Phone: 702-419-2438
E-mail: kidneykid@cox.net
New Hampshire
Concord Transplant Group - Pre/Post
Concord, NH 03301Contact: Yoli Jones
Phone: 603-224-7121
E-mail: concordtxgrp@yahoo.com
Pre & Post Transplant - New Hampshire
Nashua, NHContact: Ron Rioux
Phone: 603.889.1775
E-mail: tx_support@hotmail.com
Pre and Post Transplant Support Group
Concord Hospital250 Pleasant Street, Room 5A
Concord, NH
Phone: 603-224-7121
E-mail: concordtxgrp@yahoo.com
Pre and Post Transplant Support Group
Southern New Hampshire Medical CenterNashua, NH
Contact: Ron Rioux
Phone: 603-889-1775
E-mail: tx_support@hotmail.com
New Jersey
Central Jersey Transplant Lifeline Support Group
Riverview Medical CenterRed Bank, NJ
Phone: 732-450-1271
E-mail: GinnyFeb3@aol.com
Central Jersey Transplant Lifeline Support Group
Riverview Medical Center466 JACKSON AVE 2FL
HACKENSACK, NJ 07601
Contact: Yasmeen Muhammad
Phone: 732-450-1271
E-mail: GinnyFeb3@aol.com
Central Jersey Transplant Lifeline Support Group
Riverview Medical CenterRed Bank, NJ 08510
Contact: caren
Phone: 6095295127
E-mail: buckythedent@optonline.net
Kidney/Pancreas Pre- and Post-Transplant Support Group
Robert Wood Johnson University Hospital10 Plum Street, 7th Floor
New Brunswick, NJ 08903
Contact: Augusto J. da Fonseca, MSW, LCSW
Phone: 732-235-8987
https://www.rwjbh.org/treatment-care/kidney-care/patient-education/support-groups-programs/ E-mail: augusto.dafonseca@rwjuh.edu
Kidney/Pancreas Pre- and Post-Transplant Support Group
Robert Wood Johnson University Hospital10 Plum Street, 7th Floor
New Brunswick, NJ 08901
Contact: Jamie D'Angelo, LSW
Web: www.rwjuh.edu
E-mail: jamie.d'angelo@rwjuh.edu
Lung Transplant Support Group (Pre and Post)
St. Clare's Health System, Dover (Morris), NJ Campus400 West Blackwell Street
Dover, NJ 07801
Contact: Carmela Thomas, RRT
Phone: 973-989-3128, option 2
E-mail: cthomas@saintclares.org
Newark Beth Israel Lung Transplant Support Group
Newark Beth Israel Medical Center201 Lyons Ave
Newark, NJ 07112
Contact: Lauren Dispinseri, MSW, LCSW
Phone: 973-926-3178
E-mail: ldispinseri@barnabashealth.org
New Mexico
OTAP Support Group
Organ Transplant Awareness Program of New Mexico2838 Valencia Dr NE
Albuquerque, NM 87110
Contact: Venae Warner/Nancy Dodge
Web: http://otapnm.com/
Phone: 344-0512/269-4363
E-mail: rioreal@earthlink.net
OTAP Support Group
Organ Transplant Awareness Program of New Mexico3700 San Mateo Blvd NE
Albuquerque, NM 87110
Contact: Venae Warner
Web: www.otapnm.org
Phone: 344-0512/269-4363
E-mail: rioreal@earthlink.net
Transplant Community Support Group
Organ Transplant Awareness Program of New Mexico3700 San Mateo Blvd NE
Albuquerque, NM 87110
Contact: Venae Warner
Web: www.otapnm.org
Phone: 344-0512
E-mail: rioreal@earthlink.net
New York
Children's Liver Alliance (Biliary Atresia and Liver Transplant Network)
3835 Richmond Avenue, Box 190Staten Island, NY 10312
Phone: 718-987-6200
E-mail: livers4kids@earthlink.net
Living Healthy with Kidney Disease
Kidney Foundation of110 Broadway Street
Buffalo, NY 14203
Contact: Barbara Breckenridge
Web: http://kfwny.org/
Phone: 716-510-6702
E-mail: bbreckenridge@kfwny.org
New York-Presbyterian Hospital / Weill Cornell Medical Center
525 East 68th Street, New York, NY 10065Kidney and Pancreas Transplant Patient Support Group
Contact: Alicia Henry, LCSW, CCTSW
Phone: 212-746-3218
New York-Presbyterian Hospital / Weill Cornell Medical Center
525 East 68th Street, New York, NY 10065Liver Transplant Patient Support Group
Contact: Samantha Bennahum, LCSW
Phone: 646-962-5337
New York-Presbyterian Hospital /Columbia University Irving Medical Center
622 West 168th Street, New York, NY 10032Heart Transplant Patient Support Group
Contact: Wendy Ramirez, LCSW
Phone: 212-305-6391
New York-Presbyterian Hospital /Columbia University Irving Medical Center
622 West 168th Street, New York, NY 10032Lung Transplant Patient Support Group
Contact: Bailey Petry, LCSW
Phone: 212- 342-1364
New York-Presbyterian Hospital /Columbia University Irving Medical Center
622 West 168th Street, New York, NY 10032Liver Transplant Patient Support Group
Contact: Aimee Muth, LCSW
Phone: 212-305-1884
The Recanati/Miller Transplantation Institute
The Mount Sinai Medical Center18 Handsome ave
NY, NY 11784
Contact: Javier Lopez
Phone: 212-241-8035
E-mail: lopezjavier30@yahoo.com
Transplant Awareness Group (TAG)
Syracuse, NY 13220Contact: Doug Sprague
Phone: 315-475-6356
E-mail: Dsprague@eastwoodlitho.com
Transplant Awareness Organization (TAO)
Rochester, NYContact: David Johnson
Web: www.tao-rochester.org
Phone: 888-664-1463
E-mail: membership@tao-rochester.org
Transplant Recipients International Organization (TRIO)
Long Island ChapterGarden City, NY 11530
Web: www.litrio.org/
Phone: 516-620-5900
Transplant Support Group of Western New York
5605 Genesee StreetLancaster, NY 14086
Contact: Michael J. Martino
Web: www.tsgwny.org
Phone: 716-685-4799
Transplant Support Organization (TSO)
1335 Mace AvenueBronx, NY 10469
Contact: Ira J. Copperman
Web: www.transplantsupport.org
Phone: 917-838-4525
E-mail: Email4tso@gmail.com
Transplants Save Lives, Inc. Support Group
Serving Rockland and Orange CountiesNanuet, NY 10954
E-mail: newheart93@aol.com
TRIO Manhattan Chapter
Transplant Recippient International Organization-Manhattan Chapter72 Park Terrace West #E38
New York, NY 10034
Contact: Betsy Morrissey
Web: www.trio-manhattan.org
Phone: (347)-427-7764
E-mail: triom@aol.com
TRIO Manhattan Chapter
Transplant Recippient International Organization-Manhattan Chapter72 Park Terrace West #E38
New York, NY 10034
Contact: Tina Sammon
Web: www.trio-manhattan.org
Phone: (347)-427-7764
E-mail: triom@aol.com
TSO of Staten Island
22 Ocean RoadStaten Island, NY 10308
Web: www.transplantsupport.org
Phone: 718-317-8073
E-mail: dolsen@si.rr.com
Westchester Medical Center Transplant Life Support Group
Westchester Medical Center100 Woods Road
Valhalla, NY 10595
Contact: Mimi Greenman, LCSW
Phone: 914-493-1048
E-mail: GreenmanM@wcmc.com
North Carolina
Lung Transplant Support Group
UNC Hospitals101 Manning Drive
Chapel Hill, NC 27514
Contact: Laurie McDonald, LCSW
Phone: 919-966-6341
E-mail: lmcdonal@unch.unc.edu
Morganton Organ Transplant Support Group
106A Normandy DriveMorganton, NC 28655
Contact: Wanda Buffington / Coordinator
Phone: 828-302-7646
E-mail: wandambuff@gmail.com
Morganton Organ Transplant Support Group
106A Normandy DriveMorganton, NC 28655
Contact: Wanda Buffington / Coordinator
Phone: 828-391-5147
E-mail: wandambuff@gmail.com
Second Wind Lung Transplant Association, Inc.
2509 Old NC 10Hillsborough, NC 27278
Contact: Kathryn Flynn, Duke Liaison
Web: www.2ndwind.org
Phone: 919-732-0851
E-mail: keflynn@gmail.com
Second Wind Lung Transplant Association, Inc.
2509 Old NC 10Hillsborough, NC 27278 , NC 27278
Contact: Kathryn Flynn, Vice President
Web: www.2ndwind.org
Phone: 888- 855-9463
The Newhearts
Carolinas Medical CenterP.O. Box 32861
Charlotte, NC 28232
Contact: Cherie Cone, MSW
Phone: 800-562-5752
Transplant Recipients International Organization (TRIO)
Triangle (Raleigh, Durham, Chapel Hill) Chapter9413 Northfield Court
Raleigh, NC
Phone: 919-846-5287
Transplant Recipients International Organization (TRIO)
Eastern Carolina (Goldsboro) Chapter4664 Leary Mills Road
Vanceboro, NC
Phone: 252-746-3567
Vidant Transplant Support Group
Vidant Medical Center4S - 10 Brody Building
Greenville, NC 27834
Contact: Barbara Lee
Phone: 252-744-3638
E-mail: blee@vidanthealth.com
North Dakota
Sanford Health (formerly MeritCare Medical Center)
Transplant Office736 N. Broadway
Fargo, ND 58122
Web: https://www.sanfordhealth.org/medical-services/transplant-surgery
Phone: 701-234-6715
Ohio
Buckeye GIFT - Giving Inspiration for Transplantation
Lifeline of Ohio770 Kinnear Road, Suite 200
Columbus, OH 43212
Web: www.lifelineofohio.org
Phone: 800-525-5667
Change of Heart Inc.
2602 Canterbury Ave.Cincinnati, OH 45237, OH 45237
Phone: 513-631-5017
E-mail: burkes@fuse.net
Greater Cincinnati Area Lung Transplant Support
4120 Beamer CourtCincinnati, OH 45245
Contact: Cynthia and Bob Lohstroh
Phone: 513-752-0451
E-mail: Cincywoman510@yahoo.com
Transplant Recipients International Organization (TRIO)
Greater Cleveland ChapterPO Box 93163
Cleveland, OH 44101
Phone: 440-473-8979
Transplant Recipients International Organization (TRIO)
Miami Valley Chapter4808 Barnhart Ave.
Dayton, OH 45432
Phone: 937-258-0740
Transplant Recipients International Organization (TRIO)
Akron-Canton Chapter1529 19th St. NE
Canton, OH 44714
Web: trioakroncanton.blogspot.com
Phone: 330-453-8214
Transplant Recipients International Organization (TRIO)
Greater Cleveland ChapterOH
Contact: Pam Tressel
Phone: 440-669-5458
E-mail: jpt762@att.net
Oklahoma
Integris
3300 NW ExpresswayOklahoma City, OK
Contact: Larry Elliott
Web: Support group information
Phone: 405-830-2054
E-mail: fuzzelliott@cox.net
Kidney and Liver Failure Transplant Support Group
3901 NW 63rdOklahoma City, OK
Contact: Micki Anderson, LCSW
Phone: 405 640-7949
E-mail: micki.anderson@integrisok.com
Oregon
Liver Transplant Support Group
Legacy Good Samaritan Hospital1015 NW 22nd Ave.
Portland, OR
Contact: Brenda Niblock
Phone: 360-574-2918
E-mail: info@liversupportnw.org
Liver Transplant Support Group
Legacy Good Samaritan Hospital1015 NW 22nd Ave.
Portland, OR
Contact: Brenda Niblock
Web: www.liversupportnw.org
Phone: 360-574-2918
E-mail: twonibs@gmail.com
Oregon Pulmonary Fibrosis/Lung Transplant Support Group
Tualitan, ORContact: Sandy Metheany
Phone: 503-829-5253
E-mail: smetheany@hotmail.com
Pennsylvania
MOST (Multi-Organ Support Team)
Philadelphia, PAContact: Jim Gleason
Phone: 609-877-4493
Pinnacle Health Transplant Services Support Group
Pinnacle Health Transplant Services205 South Front Street, 1st Floor Brady Bldg
Harrisburg, PA 17101
Contact: Dawn Temple
Web: www.pinnaclehealth.org
Phone: 7172318700
E-mail: dtemple@pinnaclehealth.org
Transplant Recipients International Organization (TRIO)
Philadelphia Chapter407 N. Swarthmore Avenue
Swarthmore, PA 19081
Contact: Elizabeth Rubin
Phone: 610-544-4140
Transplant Recipients International Organization (TRIO)
Pittsburgh Chapter200 Lothrop Street
Pittsburgh, PA 15213
Phone: 877-647-3439
E-mail: trio@trio-pittsburgh.org
Transplant Recipients International Organization (TRIO)
Pittsburgh Chapter535 bonniebrook rd
Butler, PA 16002
Contact: Dawn waltenbaugh
Phone: 7249920769
E-mail: dawn32482@gmail.com
Western PA Kidney Support Groups
Pittsburgh, PAContact: Jack Silverstein
Web: www.wpakidneysupport.org
Phone: 412-427-2969
York Area Transplant Support Group
Apple Hill Medical Center25 Monument Road, Suite 193
York, PA 17403
Contact: Tom Wolf
Phone: 717 741-9158
Puerto Rico
There are no support groups available in Puerto Rico at this time.Rhode Island
Rhode Island Hospital Transplant Peer Support Group/Educational Series
Rhode Island Organ Donor Awareness CoalitionPO Box 40926
Providence, RI 02940
Contact: Dawn Porreca Antaya
Web: https://www.facebook.com/RIODAC/
Phone: 401 253-0011
E-mail: dpantaya@riodac.org
Rhode Island Hospital Transplant Peer Support Group/Educational Series
Rhode Island Organ Donor Awareness CoalitionPO Box 40926
Providence, RI 02940
Contact: Samantha Richards
Web: www.riodac.org
Phone: 401 253-0011
E-mail:
srichards@riodac.org
South Carolina
Charleston Transplant Support Group
5517 Clearview DriveCharleston, SC 29420
Contact: Carol Dolida
Phone: 843-552-4038
E-mail: dolida@sc.rr.com
Charleston Transplant Support Group
1216 Briar Rose LaneLadson, SC 29456
Contact: Syed Haider
Phone: 843-695-1849
E-mail: haider545@gmail.com
Second Chance
Holland Avenue Baptist Church801 12th Street
Cayce, SC 29033
Contact: Steve Ford
Phone: 803-394-2364
E-mail: secondchance430@gmail.com
South Dakota
There are no support groups available in South Dakota at this time.
Tennessee
Baptist BraveHearts
Baptist Memorial Hospital-Memphis6025 Walnut Grove, Suite 111
Memphis, TN 38120
Contact: Shalonda Campbell
Web: www.baptistonline.org/services/transplant/
Phone: 901-226-0168
E-mail: shalonda.campbell@BMHCC.org
Living Kindly Support Group
Methodist University Transplant Institute1265 Union Avenue
Memphis , TN 38104
Contact: Susan Dodson, LAPSW
Phone: 901-516-2060
E-mail: susan.dodson@mlh.org
Transplant Support Group
National Kidney Foundation of East TennesseeKnoxville, TN
Contact: Patti Gold
Phone: 614-882-6184
Transplant Support Group
The University of Tennessee Medical Center1924 Alcoa Highway
Knoxville, TN
Contact: Debra Winston, BSW
E-mail: dwinston@mc.utmck.edu
Transplant Support Group
The University of Tennessee Medical Center1924 Alcoa Highway
Knoxville, TN
Contact: Debra Winston, BSW
Phone: 865-386-7235
E-mail: dwinston@mc.utmck.edu
Transplant Support Group
The University of Tennessee Medical Center1924 Alcoa Highway
Knoxville, TN
Contact: Debra Winston, BSW
E-mail: dwinston@mc.utmck.edu
Texas
Baylor Scott & White Multi-Organ Transplant Support Group
Scott & White Transplant Center2401 S. 31st Street
Temple, TX 78665
Contact: Amanda Raye Jones, LMSW
Web: bswhealth.com
Phone: 254-724-4644
E-mail: amjones@sw.org
Liver Transplant Support Group (for pre/post patients/caregivers)
Baylor Unviersity Medical Center of DallasNewark , TX 76071
Contact: Gary Garcia
E-mail: garygarcia91355@yahoo.com
Liver, Kidney and Pancreas Patient Support Group
Liver Institute at Methodist Dallas Medical Center1411 N. Beckley Avenue, Pavilion Ill, Suite 268
Dallas, TX 75203
Contact: Brittany Grant
Phone: 2148545952
E-mail: brittanygrant90@yahoo.com
Living Gift Support Group
Medical City Dallas Transplant Center7777 Forest Lane, Building C-750
Dallas, TX 75230 , TX 75230
Phone: 972- 566-4689
LVAD Support Group
Seton Heart Specialty Care & Transplant Center1301 W. 38th St. #514
Austin, TX 78705
Contact: Shay Rogillio
Web: www.seton.net
Phone: 512-681-0500
E-mail: smrogillio@seton.org
North Texas Collin Area Transplant Support
130 S. Central ExpresswayMcKinney, Texas 75070, TX 75070
Contact: Sherri Williams
Phone: 972-838-6320
E-mail: sherri1066@gmail.com
Scott & White Multi-Organ Transplant Support Group
Scott & White Transplant Center2401 S. 31st Street
Temple, TX 78665
Contact: Lori Taylor, LMSW
Web: https://www.bswhealth.com/specialties/transplant
Phone: 254-724-8962
E-mail: lvtaylor@sw.org
The Helping Hearts
The Methodist Hospital6565 Fannin
Houston, TX
Phone: 713-441-5451
The Helping Hearts
The Methodist Hospital6565 Fannin
Houston, TX 77058
Contact: Barbara EdwardsCharles
Phone: 713-441-5451
E-mail: BDEdwardsCharles@aol.com
The Mickey Mantle Foundation
Dallas, TXWeb: www.qsigroup.com
Phone: 800-477-6425
Transplant Recipients International Organization (TRIO)
Texas Panhandle ChapterPlainview, TX 79073, TX 79703
Contact: Dave Courtney
Phone: 866-706-9828
West Texas Transplant Support Group
University Medical Center602 Indiana Avenue
Lubbock, TX 79415 , TX 79415
Phone: 806-761-0710
E-mail: aduemer@teamumc.com
Utah
Heart Transplant Support Group
Sharp Memorial Hospital750 W. Mariposa Dr
St. George, UT 84780
Contact: Sherry Crane
Web: www.sharp.com/transplant
Phone: 800-82-SHARP
E-mail: sherrycrane26@yahoo.com
Vermont
There are no support groups available in Vermont at this time.Virginia
American Lung Association South Atlantic Regional Center
9737 Main StreetFairfax, VA 22031
Phone: 703-591-6504
Culpeper Transplant Group
207 Sunset LaneCulpeper, VA 22701
Contact: Sheila Horton
Phone: 540-825-4815
Heart/Lung Transplant Support Group
University of Virginia Health SystemP.O. Box 800 191
Charlottesville, VA 22908
Contact: Bill Potts, MSW, CSAC
Phone: 800-257-0757
E-mail: wmp8h@virginia.edu
In Loving Memory
1416 Green Run LaneReston, VA 20190
Phone: 703-435-0608
E-mail: InLvMemory@aol.com
Kidney and Liver Transplant Support Group
Medical College of Virginia, Hume-Lee Transplant Center1200 E. Marshall Street
Richmond, VA 23298
Contact: Sheila Bullock, MSW
Web: www.vcuhealth.org/transplant
Phone: 804-828-8193
E-mail: sbullock@mcvh-vcu.edu
Kidney Transplant as a Treatment Option
Henrico Doctors' HospitalRichmond, VA
Phone: 877-626-4581
Kidney Transplant Support Group
Henrico Doctor's Hospital, VA Transplant Center1602 Skipwith Road
Richmond, VA 23229
Contact: Gigi Spicer
Phone: 804-289-4941
Liver Transplant Support Group
100 Green Park CtWinchester, VA 22602
Contact: Mary Reed
Phone: 5405504652
E-mail: 1957maryreed@gmail.com
LVAD and Transplant Support Group
Sentara Heart Hospital600 Gresham Drive
Norfolk, VA 23507
Phone: 757-388-2831
The Mended Hearts, Inc.
7203 Poplar StreetAnnandale, VA , VA 22003
Contact: John Braddon
Phone: 703-941-8500
E-mail: jbraddon@cox.net
Transplant Awareness
Transplant AwarenessP O Box 7634
Arlington, VA 22207-7634
Contact: Claude Brady
Web: www.transplantawareness.org
Phone: 703-825-3290
E-mail: tai01@aol.org
Transplant Recipients International Organization (TRIO)
Nation's Capital Area ChapterP.O. Box 7633
Arlington, VA 22207
Phone: 703-825-3290
E-mail: tai01@aol.com
Washington
Lung Transplant Support Group
University of Washington Medical CenterSeattle, WA
Contact: Angela Wagner, MSW
Phone: 206-598-2676
E-mail: wagnera@u.washington.edu
Transplant Caregivers Support Group
University of Washington Medical CenterSeattle, WA
Contact: Angela Wagner, MSW
Phone: 206-598-2676
E-mail: wagnera@u.washington.edu
TRIO NW Pediatric Transplant Support Group
TRIO Pacific Northwest930 NE High St F-224
Issaquah, WA 98029
Contact: David Hall
Web: http://trioseattle.org/
Phone: 425.281.2779
E-mail: david.hall@trioseattle.org
TRIO Pacific Northwest Transplant Support Group
TRIO Pacific Northwest930 NE High St.
Issaquah, WA 98029
Contact: David Hall
Web: trioseattle.org
Phone: 425.281.2779
E-mail: david.hall@trioseattle.org
West Virginia
There are no support groups available in West Virginia at this time.Wisconsin
Central Wisconsin Area Second Chance for Life
Marshfield, WI , WIContact: Leah Breu, RN
Web: www.secondchanceforlife.org
Phone: 715-389-3677
Coulee Region Transplant Support Group
Franciscan Skemp HealthcareLower level conference room of Franciscan Skemp’s Onalaska Clinic, 191 Theater Road
Onalaska, WI
Contact: Jena Casper
Phone: 608-392-6117
Froedert Awaiting Kidney Support Group
9200 W. Wisconsin Ave.Milwaukee , WI
Contact: Kathleen Holland
Web: www.froedtert.com
Phone: 800-272-3666
E-mail: Kahollan@froedert.org
Froedert Transplant Recipient Support Group
9200 W. Wisconsin Ave.Milwaukee, WI
Contact: Kristy Nickel
Web: www.froedtert.com
Phone: 800-272-3666
E-mail: kristy.nickel@froederthealth.org
Froedert Transplant Recipient Support Group
9200 W. Wisconsin Ave.Milwaukee, WI
Contact: Kristy Nickel
Web: www.froedtert.com
Phone: 800-272-3666
E-mail: kristy.nickel@froederthealth.org
Kids With Heart National Association for Children's Heart Disorders
1578 Careful DriveGreen Bay, WI 54304
Web: www.kidswithheart.org
Phone: 800-538-5390
E-mail: michelle@kidswithheart.org
St. Luke's Heart Transplant Support Group
Milwaukee, WIWeb: www.aurorahealthcare.org
Phone: 414-646-5410
Vernon Memorial Hospital Heart Center Support Group
Viroqua, WIhttp://www.vmh.org/content/organ-transplant-support
Phone: 608-637-4497
Wyoming There are no support groups available in Wyoming at this time.
Nationwide
Alliance for Donation Transplantation Awareness and Support (ADTAS)
Web: groups.google.com/group/Kidney-Liver-Pancreas-Support-GroupAmerican Association of Kidney Patients
Contact: Roberta Wager, RN, MSN, AAKP PresidentPhone: 800-749-2257
E-mail: rbnet1@earthlink.net
American Heart Association
Web: https://www.heart.org/HEARTORG/Phone: 800-242-8721
American Liver Foundation
1425 Pompton AvenueWeb: www.liverfoundation.org
Phone: 800-223-0179
Cirrhosis Online Support Group
Web: www.mdjunction.com/cirrhosisHeart Transplant Support Group
Henry Ford HospitalContact: Ginger St. John, MSW
Phone: 313-916-2724
E-mail: gstjohn1@hfhs.org
Heart-Lung Transplant Support Group
E-mail: heartlungtransplantsupportgroup@groups.msn.comLiver Families
Web: http://www.liverfamilies.net/Liver Hope
HCV Support, Inc.Contact: Wayne Morea
E-mail: admin@hcvsupport.org
Liver Transplant and Hepatitis C Online Support
Web: http://forums.delphiforums.com/livertransplant/startLiver Transplant Support Group
LISTEN at King's College HospitalContact: Donna
E-mail: donnabs@ntlworld.com
National Kidney Foundation
Web: www.kidney.orgPhone: 800-622-9010
Pancreatitis Online Support Group
Web: pancreasfoundation.org/pancreas-community/Renal Support Network
Contact: Lori Hartwell, President and FounderWeb: www.rsnhope.org
Phone: 866- 903-1728
E-mail: info@rsnhope.org
Second Wind Lung Transplant Association, Inc
Contact: Kathryn Flynn, Vice PresidentWeb: www.2ndwind.org
Phone: 888-855-9463
E-mail: sarika@mindspring.com
The Compassionate Friends, Inc.
Web: www.compassionatefriends.orgTransplantBuddies.org
Web: transplantbuddies.orgReference and Publication Information
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