Support groups
COVID-19 FAQs and vaccine information
Why join a support group?
Transplant patients and their families can gain support from many different types of groups, including group gatherings, educational programs, one-on-one support, social activities, newsletters, written materials, Internet groups, and talking on the telephone. As patients’ transplant experiences continue, they often gain confidence and reach out others, in turn making lifelong friends, enjoying social activities and finding opportunities to promote the need for organ and tissue donation.
Hospital groups
Usually run by the hospital transplant coordinator, social worker or other member of the transplant team, these types of support groups may consist of patients who are pre- or post-transplant or are hospitalized with transplant-related problems. These types of groups also typically meet more frequently than non-hospital groups.
Local support groups
Usually run by transplant patient, these groups consist of pre- and post-transplant patients and their families. They allow members who have already had their transplant to help you with the adjustment to a more normal, everyday lifestyle. They usually have monthly meetings and special events.
Online support groups
These groups can provide you with a broad range of experiences from all over the world. In addition, Internet support groups allow allow you to ask personal questions in the comfort of your own home. You can find many Facebook and other social media sites that specialize by organ type or disease.
Professional organizations
Professional organizations provide educational seminars, materials and activities. They also may conduct fundraising to support research and help shape healthcare policy.
Support groups by state
Alabama
Heart/Lung/Liver Support Group
University of Alabama at Birmingham
Birmingham, AL
Contact: Stan Smith
Phone: 205-655-3151
E-mail: [email protected]
Alaska
AKPA Support
Alaska Kidney Patients Association
325 East Third #201
Anchorage, AK 99501
Contact: Kristie Lemmon
Web: alaskakidney.org
Phone: 907.333.2257
E-mail: [email protected]
Alaska Transplant Resource Group
Life Alaska Donor Services
Anchorage, AK 99501
Contact: Janet Cornelius, Family Services Coordinator
Contact: Cindy McCann, Family Services Coordinator
Web: www.lifealaska.org
Phone: 907- 562-LIFE (5433)
E-mail: [email protected]
Alaska Transplant Recipient Resource Group
Anchorage, AK
Phone: 907- 562-LIFE (5433)
E-mail: [email protected]
Arizona
Abdominal Transplant Support Group
University of Arizona Medical Center
1501 N. Campbell Avenue, Tucson, AZ 85724
Contact: Sandra Thornton, MSW, LCSW
Phone: 520-694-6628
E-mail: [email protected]
Abdominal Transplant Support Group
University of Arizona Medical Center
1501 N. Campbell Avenue, Tucson, AZ 85724
Contact: Caitlin Yost LMW
Web: www.bannerhealth.com
Phone: 520-694-6149
E-mail: [email protected]
Banner Liver Disease Support Group
Banner Good Samaritan Medical Center
1111 E McDowell Rd, Phoenix, AZ 85006
Contact: Charlie Thomas
Web: www.bannerhealth.com
Phone: 602.839.0219
E-mail: [email protected]
Heart and Lung Transplant Support & Education
Banner University Medical Center – Tucson
1501 North Campbell Avenue, Tucson, AZ 85724
Contact: Martha Moutray, LMSW
Web: www.bannerhealth.com
Phone: 520-240-5108
E-mail: [email protected]
Heart and Lung Transplant Support Groups
University of Arizona Medical Center
1501 N. Campbell Avenue, Tucson, AZ 85724
Contact: Martha Moutray, LMSW
Web: www.uahealth.com
Phone: 520-694-4603
E-mail: [email protected]
Heart/Lung Transplant Support Groups
University Medical Center
1501 N. Campbell Avenue, Tucson, AZ 85724
Contact: Martha Moutray
Phone: 800-524-5927
Kidney Transplant Support Group
University Medical Center
1501 N. Campbell Avenue, Tucson, AZ 85724
Contact: Sandra Thornton, MSW
Phone: 520-694-6628
E-mail: [email protected]
Lung Transplant Support Group
St. Joseph’s Hospital and Medical Center
350 W. Thomas Road, Phoenix, AZ 85013
Contact: Kathy Lam, MSW, LCS
Phone: 602- 406-7009
E-mail: [email protected]
Mayo Clinic Heart Transplant Support Group
Mayo Clinic
AZ 85054
Contact: Nina Menardie
Phone: 480-342-1671
E-mail: [email protected]
The New Life Society
Open to all organ recipients
Various locations in Phoenix
Contact: Zoe Severyn
Web: newlifesociety.org/virtual-support-group
Phone: 602-277-2661
E-mail: [email protected]
Arkansas
Central Arkansas Support Group
AR
Contact: Carolyn Berry
Phone: 870.329.1368
E-mail: [email protected]
Conway Support Group
Conway, AR
Contact: Dale & Debbie Smith
Phone: 501.472.0461
E-mail: [email protected]
Fayetteville Area Transplant Support Group
Fayetteville, AR
Contact: Milton Spooner
Phone: (479) 212-0872
E-mail: [email protected]
Hot Springs Support Group
Hot Springs, AR
Contact: Billy Valentine
Phone: 501.622.7316 / 7416
E-mail: e[email protected]
Russellville Support Group
Russellville, AR
Contact: H.L. & Barbara Shepherd
Phone: 479.968.2471
E-mail: [email protected]
California
A Gift of Heart – Organ Transplant and Donor Support Group
Orange, CA
Web: www.agiftofheart.org
Bay Area Association of Kidney Patients
PO Box 2332, Menlo Park, CA 94026
Web: www.baakp.org
Phone: 650-323-2225
E-mail: [email protected]
Caregiver Solid Organ Transplant Support Group
Stanford Hospital and Clinics
300 Pasteur Drive, Stanford, CA 94305
Contact: Jenny Kwak, LCSW
Phone: 650-498-5831
E-mail: [email protected]
Caregiver Solid Organ Transplant Support Group
UCSF Medical Center
505 Parnassus Avenue, San Francisco, CA 94143
Contact: Brie Kelly, MSW
Phone: 415-353-1040
E-mail: [email protected]
Caregiver Solid Organ Transplant Support Group
Stanford Hospital and Clinics
300 Pasteur Drive, Stanford, CA 94305
Contact: Kimberly Averett, MSW
Phone: 650-498-5428
E-mail: [email protected]
Caregiver Solid Organ Transplant Support Group
Stanford Hospital and Clinics
300 Pasteur Drive, Stanford, CA 94305
Contact: Caitlin West
Phone: 650-723-4440
E-mail: [email protected]
Caregiver Solid Organ Transplant Support Group
Stanford Hospital and Clinics
300 Pasteur Drive, Stanford, CA 94305
Contact: Tonia Gregory
Phone: 650-723-4440
E-mail: [email protected]
Cedars Sinai Multi-Organ Transplant Support Group
Cedars-Sinai Medical Center
8700 Beverly Blvd., Room 2802, Los Angeles, CA 90048
Contact: Carlie Galloway, LCSW
Phone: 310-423-6850
E-mail: [email protected]
Coachella Valley Hepatitis C, Liver Disease and Transplant Support Group
Portola Community Center
45480 Portola Ave, Palm Desert, CA 92260
Contact: Richard Darling, DDS
Web: fairfoundation.org
Phone: 760-200-2766
E-mail: [email protected]
Heart and Lung Transplant Support Group
UCSF Medical Center
San Francisco, CA
Contact: Nikki Galin, LCSW
Phone: 415-353-8818
E-mail: [email protected]
Heart Transplant Support Group
Sharp Memorial Hospital
7901 Frost Street, San Diego, CA 92123
Phone: 800-82-SHARP
Heart Transplant Support Group
Stanford Hospital and Clinics
300 Pasteur Drive, Stanford, CA 94305
Contact: Cathy Miller
Phone: 650-723-5581
E-mail: [email protected]
Hep C and Liver Transplant Support Group
American Liver Foundation, CA
Contact: Holly Heller
Web: Liverfoundation.org
Phone: 818-303-2085
E-mail: [email protected]
Kidney and Pancreas Transplant Support Group
UC Irvine Medical Center
101 The City Drive, Orange, CA 92868
Contact: Robin Worker
Phone: 714-456-8342
Kidney and Pancreas Transplant Support Group
UC Irvine Medical Center
18494 Del Bonita St, Rowland Heights, CA 91748
Contact: Maria Salas
Phone: 626-241-3482
E-mail: [email protected]
Liver Support Group
UCLA
Ventura, CA 93003
Contact: Kathy Johnson
Phone: 805-368-3653
E-mail: [email protected]
Liver Support Group
USC University Hospital
1500 San Pablo St., Los Angeles, CA 90033
Phone: 323-442-9626
Liver Support Group
USC University Hospital
1500 San Pablo St., Los Angeles, CA 90033
Contact: Marie Murphy
Phone: 714-213-1816
E-mail: [email protected]
Liver Support Group
USC University Hospital
1500 San Pablo St., Los Angeles, CA 90033
Contact: Marla Frankel, LCSW CCTSW
Phone: 323-442-9632
E-mail: [email protected]
Liver Transplant Support Group
UCSF Medical Center
San Francisco, CA
Contact: Sherry Laemmermann, ACSW
Phone: 415-353-1040
Liver Transplant Support Group
UCSF Medical Center
3490 e Clinton Ave, Fresno, CA 93703s
Contact: Sherry Laemmermann, ACSW
Phone: 415-353-1040
E-mail: [email protected]
Liver Transplant Support Group
UCLA Medical Center
10833 LeConte Ave., Los Angeles, CA 90024
Contact: Elisa Geraci, MSW
Phone: 310-825-5921
E-mail: [email protected]
Liver Transplant Support Group
UCSF Medical Center
2802e Andrew Ave, Fresno, CA 93726
Contact: Sherry Laemmermann, ACSW
Phone: 415-353-1040
E-mail: [email protected]
Liver Transplant Support Group
UCLA Medical Center
10833 LeConte Ave., Los Angeles, CA 90024
Contact: Elisa Geraci, BSW MSW ACSW
Phone: 310-825-5921
E-mail: [email protected]
Liver Transplant Support Group
UCSF Medical Center
San Francisco, CA
Contact: Patrick Marsh, Pauline Rogers, Brie Kelly
Phone: 415-353-1504
E-mail: [email protected]
Liver Transplant Support Group
UCSF Medical Center
San Francisco, CA
Contact: Patrick Marsh, Pauline Rogers, Brie Kelly
Phone: 415-353-1504
E-mail: [email protected]
Liver Transplant Support Group
UCLA Medical Center
10833 LeConte Ave., Los Angeles, CA 90024
Contact: Elisa Geraci
Phone: 310-267-9807
E-mail: [email protected]
Liver Transplant Support Group
UCSF Medical Center
San Francisco, CA 64143
Contact: Pauline Rogers
Phone: 415-353-1284
E-mail: [email protected]
Liver Transplant Support Group
UCSF Medical Center
3490 e Clinton Ave, Fresno, CA 93703s
Contact: Nina Kelly
E-mail: [email protected]
Liver Transplant Support Group
UCSF Medical Center
San Francisco, CA
Contact: Brie Pierquet MSW
Phone: 415-353-1040
E-mail: [email protected]
Liver Transplant Support Group
Stanford Hospital and Clinics
300 Pasteur Drive, Stanford, CA 94305
Contact: Jenny Kwak, LCSW
Phone: 650-498-5831
E-mail: [email protected]
Liver Transplant Support Group
Stanford Hospital and Clinics
300 Pasteur Drive, Stanford, CA 94305
Contact: Kimberly Averett, MSW
Phone: 650-498-5428
E-mail: [email protected]
Loma Linda Transplant Support Groups
English
Meets in person the 1st Monday of the month, 2:00-3:30 pm
Location: 197 East Caroline Street San Bernardino, CA 92408
Interested in attending, please email [email protected]
En español
Meets over Zoom the 1st Wednesday of the month, 3:30–4:30 pm
Cuando: El primer miercoles de cada mes de 3:30 pm a 4:30 pm
Zoom: https://llu.zoom.us/join
- Meeting ID#: 979 3620 9565
- Meeting password: 831383
Pre and Post Organ Transplant Support Group
ADTAS, Alliance for Donation and Transplantation Awareness and Support
242 E. Hospitality Lane, San Bernardino, CA 92408
Contact: John Mitas
Phone: 951-237-2905
E-mail: [email protected]
Renal Support Network
Studio Hope
621 East Glenoaks Blvd. #B, Glendale, CA 91207
Contact: Mica Spalding
Web: www.rsnhope.org
Phone: (818) 543-0896
E-mail: [email protected] or [email protected]
Sacramento Area Liver Transplant Support Group
Sacramento, CA
Contact: Ann Linnekens
Phone: 916-791-1697
E-mail: [email protected]
Sacramento Area Renal and Pancreas Support Group
UC Davis Transplant Program
1625 Stockton Blvd, Sacramento, CA 95816, CA 95816
Phone: 800-821-9912
Sacramento Area Renal and Pancreas Support Group
8550 Sheraton Drive, Fair Oaks, CA 95628
Contact: Ruben Hulan
Phone: 916-807-4840
E-mail: [email protected]
Saddleback Kidney Support Group
Saddleback Church Peace Center
1 Purpose Drive, Lake Forest, CA 92630
Contact: Helen Mills
Web: saddleback.com/connect/ministry/peace-center
Phone: 949-412-3210
E-mail: [email protected]
San Gabriel Valley Hepatitis, Liver and Transplant Support Group
Methodist Hospital
300 West Huntington Drive, Classroom #4, Arcadia, CA 91007
Phone: 310-670-4624
San Gabriel Valley Hepatitis, Liver and Transplant Support Group
Methodist Hospital
6275 Crestwood Way, Los Angeles, CA 90042
Contact: Jane Leslie
Phone: 323-708-2565
E-mail: [email protected]
San Gabriel Valley Hepatitis, Liver and Transplant Support Group
Methodist Hospital
243 West Fairview Ave., Arcadia, CA 91007
Contact: Marcie Fisher
Phone: 970-376-3662
E-mail: [email protected]
San Gabriel Valley Hepatitis, Liver and Transplant Support Group
Methodist Hospital
3817 Cogswell Rd #3, El Monte, CA 91703
Contact: Arthur Rico
Phone: 626-230-4742
E-mail: [email protected]
Transplant Patient, Family, & Caregiver Support Group
Keck Medical Center of USC
1500 San Pablo St., Los Angeles, CA 90033
Contact: Marla Frankel, LCSW CCTSW
Phone: 323-442-9632
E-mail: [email protected]
Transplant Recipients International Organization (TRIO)
San Francisco Bay Area Chapter
P.O. Box 2804, Cupertino, CA 95016
Phone: 408-238-3077
Transplant Recipients International Organization (TRIO)
The City Chapter
2358 Park Boulevard, Oakland, CA 94606
Phone: 510-834-0436
Transplant Recipients International Organization (TRIO)
San Francisco Bay Area Chapter
P.O. Box 2804, Cupertino, CA 95016
Contact: Monet Thomson
Web: http://www.bayareatrio.org/
Phone: 408-723-0800
E-mail: [email protected]
Transplant Recipients International Organization (TRIO)
Ventura County West Valley Chapter
2562 Covent Garden Court, Thousand Oaks, CA 91362
Web: http://www.trioventurala.org/
Phone: 805-492-9810
TRIO Ventura County West San Fernando Valley
Transplant Recipients Organization International
15763 Kenneth Place, Santa Clarita, CA 91367
Contact: Ron Taubman
Web: www.trioweb.org
Phone: 818-309-7919
E-mail: [email protected]
UC San Diego Health System Heart/Lung Transplant Caregivers Support Group
San Diego, CA
Contact: Karen Matthews, LCSW
Phone: 858 657-5050
E-mail: [email protected]
UC San Diego Health System Heart/Lung Transplant Caregivers Support Group
San Diego, CA
Contact: Karen Matthews, LCSW
Phone: 858 657-5050
E-mail: [email protected]
UC San Diego Health System Heart/Lung Transplant Caregivers Support Group
San Diego, CA
Contact: Michelle Williams
Phone: 858-657-7221
E-mail: [email protected]
UC San Diego Health System Heart/Lung Transplant Support Group
San Diego, CA
Contact: Karen Matthews, LCSW
Phone: 858 657-5050
E-mail: [email protected]
UC San Diego Health System Kidney Transplant Support Group
UC San Diego Health System
3500 5th Ave Suite 301, San Diego, CA 92103
Contact: Chris Frederici Hines, LCSW
Web: https://health.ucsd.edu/specialties/surgery/transplant/patient-resources/Pages/default.aspx
Phone: 619-574-8612
E-mail: [email protected]
UCLA Heart and Lung Transplant Program and VAD Support Groups
Los Angeles, CA
Contact: Heart and Lung Transplant Office
Phone: 310-825-6068
E-mail: http://transplants.ucla.edu/
UCLA Heart and Lung Transplant Program Support Groups
Los Angeles, CA
Contact: Linda Ventura
Phone: 310-825-0749
UCSD Medical Center Liver Transplant Support Group
San Diego, CA
Contact: Michele Morrison, LCSW
Phone: 619-543-8612
E-mail: [email protected]
UCSF Heart Transplant & VAD Support Group
UCSF Medical Center
San Francisco, CA
Contact: Nikki Galin, LCSW
Phone: 415-353-8901
E-mail: [email protected]
UCSF Lung Transplant Support Group
UCSF Medical Center
San Francisco, CA
Contact: Andrea Baird, LCSW
Phone: 415-353-1382
E-mail: [email protected]
UCSF Transplant Caregiver Support Group
UCSF Medical Center
San Francisco, CA
Phone: 415-353-1040
UOTA
United Organ Transplant Association
3405 Arlington Ave., Riverside, CA 92506
Contact: Debbie Morgan
Web: www.uota.org
Phone: 951-276-4700
E-mail: [email protected]
Weekly Transplant Support Group
Cedars-Sinai Medical Center
8700 Beverly Blvd., Room 2802, Los Angeles, CA 90048
Contact: John Pappas, LCSW
Phone: 310-423-6850
Weekly Transplant Support Group
Cedars-Sinai Medical Center
8700 Beverly Blvd., Room 2802, Los Angeles, CA 90048
Contact: Carlie Galloway, MSW
Phone: 310-423-6850
E-mail: [email protected]
West Los Angeles Hepatitis, Liver and Transplant Support Group
Wadsworth Grounds
200 E Vernon, Long Beach, CA 90804
Contact: Charles
Phone: 562-726-1240
E-mail: [email protected]
Colorado
There are no support groups available in Colorado at this time.
Connecticut
There are no support groups available in Connecticut at this time.
Delaware
Kidney Transplant Patient Education and Support Group
Christiana Care Health System
Newark, DE
Contact: Eileen Edge, LSW, MSW
Phone: 866-682-6792
TDSG (Transplant/Donor Support Group)
St Paul UAME Church
3114 N Market Street, Wilmington, DE 19809
Contact: Sandi Gibbs
Phone: 302-602-6126
E-mail: [email protected]
District of Columbia
Medstar Georgetown Transplant Institute Liver and Kidney Support Group
Medstar Georgetown Transplant Institute
- Please note that all meetings will be held virtually via Zoom until further notice.
- Audience: Liver and kidney patients can share their transplant experiences and ask questions. All adult patients, families, and caregivers are welcome to join.
- Why: The transplant process is both mentally and physically draining. Meeting others who are in a similar situation can be helpful and motivating.
- When: Third week, alternating between Mondays and Thursdays, 5:30 – 7 p.m.
Contact: Monica Hanza, MSW, LGSW
Phone: 202-444-0439
E-mail: [email protected]
Transplant Recipients International Organization (TRIO)
1000 Sixteenth Street, NW, Suite 602, Washington, DC 20036
Phone: 202- 293-0980
E-mail: [email protected]
Transplant Support Group
Howard University Hospital
2041 Georgia Avenue NW, Washington, DC 20060
Contact: Dr. John Robinson
Phone: 202 865-1443
Washington Heart Support Group
110 Irving Street, NW Washington Hospital Center, Room 1208, Washington, DC 20010
Phone: 202-877-3220
Florida
Brevard County Organ Transplant Support Group
4161 Gatewood Street, Cocoa, FL 32926
Contact: Leo A. Paradis
Web: http://organtransplantsupportgroup.org/
Phone: 321-698-8884
E-mail: [email protected]
Caring For The Gift of Life
2500 SW 107th Ave Ste 47, Miami, FL 33165
Contact: Kleydson Da Silva
Phone: 786-205-4515
E-mail: [email protected]
Memorial Transplant & VAD Support Group
Memorial Transplant Institute
3501 Johnson St, Hollywood, FL 33021
Contact: Janet Delgado, LCSW
Web: mhs.net
Phone: 954-265-6810
E-mail: [email protected]
Group is open to all transplant recipients, those on waitlist, & their families.
National Organization for Transplant Enlightenment
N.O.T.E.
13014 N. Dale Mabry #187, Tampa, FL 33618
Contact: Janet Walin
Web: noteus.org
Phone: 813-962-6250
E-mail: [email protected]
Organ Transplant Recipients of SW FL, Inc.
2727 Winkler Avenue, Fort Myers, FL 33901
Contact: Bob Lucas
Web: organsupport.org
E-mail: [email protected]
Renal Transplant Support Group
Halifax Health-Center for Transplant Services, FL
Contact: Jenny Ketring, MSW
E-mail: [email protected]
Second Chance Support Group
Second Chance Jax
Jacksonville, FL 32224
Contact: Kristin Corlett
Phone: (904) 314-3436
E-mail: [email protected]
Second Wind Lung Transplant Association, Inc.
300 South Duncan Avenue, Suite 227, Clearwater, FL , FL 33755
Web: http://2ndwind.org
Phone: 888- 855-9463
Shands Lung Transplant
UF Health – Shands Hospital
PO Box 100223, Gainesville, FL 32610
Contact: Micki Nodurft-Luck, LCSW, CCTSW
Web: https://ufhealth.org/transplant-center/lung
Phone: 352-265-8940
E-mail: [email protected]
Tallahassee Kidney Support Group
1609 Physicians Drive, Tallahassee, FL 32308
Phone: 850-878-1171
Tallahassee Kidney Support Group
Transplant Support Group
1609 Physicians Drive, Tallahassee, FL 32308
Contact: Dee Wilder
Phone: 850-878-1171
E-mail: [email protected]
Tallahassee Kidney Transplant Support Group
1609 Physicians Drive, Tallahassee, FL 32308
Contact: Dee Wilder
Phone: 850-878-1171
E-mail: [email protected]
Tallahassee/Big Bend Lung Transplant Support Group
Tallahassee, FL
Contact: Sandra Skelton
Phone: (850) 228-2616
E-mail: [email protected]
Tampa Bay Liver Disease and Transplantation Support Group
Tampa General Medical Group Transplant Speciality Services
409 Bayshore Blvd., Tampa, FL 33606
Contact: Stanley Genstein
Web: www.tgh.org/sg.htm
Phone: 813-260-3723
E-mail: [email protected]
Transplant & VAD Support Group
Memorial Cardiac & Vascular Institute
3501 Johnson St, Hollywood, FL 33021
Contact: Pat Dennis, LCSW
Web: mhs.net
Phone: 954-265-6810
E-mail: [email protected]
Transplant & VAD Support Group
Memorial Cardiac & Vascular Institute
3501 Johnson St, Hollywood, FL 33021
Contact: Pat Dennis, LCSW
Web: mhs.net
Phone: 954-265-6810
E-mail: [email protected]
Transplant Caregivers Support Group
Tampa General Hospital Transplant Services
312 Laurel Falls Drive, Apollo Beach, FL 33572
Contact: Stanley Genstein
Web: //www.tgh.org/sg.htm
Phone: 813-260-3723
E-mail: [email protected]
Transplant Caregivers Support Group
Tampa General Hospital Transplant Services
1 Tampa General Circle, Tampa, FL 33606
Contact: Stanley Genstein
Web: https://www.tgh.org/sg.htm
Phone: 813-260-3723
E-mail: [email protected]
Transplant Recipients International Organization (TRIO)
Southwest Chapter
P.O. Box 7888, North Port, FL 34287
Contact: Bette Luksha-Gammell
Phone: 941-423-2553
E-mail: [email protected]
Georgia
Brunswick Transplant Support Group
Brunswick, GA
Contact: Joan Mobley
Phone: 912-266-5994
E-mail: [email protected]
Hawaii
Transplant Support Group
Queen’s Medical Center
550 S. Beretania St, Suite 404, Honolulu, HI 96813
Contact: Shona Peters
Phone: 808-691-8897
E-mail: [email protected]
Idaho
There are no support groups available in Idaho at this time.
Illinois
Kidney and Pancreas Support Group
OSF St. Francis Kidney Transplant Services
Peoria, IL
Contact: Karen Welborn, MSN, RN, NEA-BC
Web: www.osfhealthcare.org/services/transplant-services/
Phone: 309-655-4101
Kidney/Pancreas Support Group
Memorial Medical Center
701 N. 1st St, Springfield, IL 62781
Contact: Holly Heinz, LSW, MSW
Phone: 217-788-3441
Live Life! Pre & Post Transplant Support Group
Illinois Valley Community Hospital
925 West Street, Peru, IL 61354
Contact: Illinois Valley Community Hospital
Web: Calendar
Phone: 815-780-3521
E-mail: [email protected]
Lung and Heart/Lung Transplant Support Group
Loyola University Medical Center
2160 S First Ave, Maywood, IL
Contact: Mary McGillicuddy
Phone: 708-216-3634
Lung and Heart/Lung Transplant Support Group
Loyola University Medical Center
2160 S First Ave, Maywood, IL 60153
Contact: Susan Long
Phone: 708-216-5454
E-mail: [email protected]
Lung Transplant Support Group
University of Chicago Medicine
5841 S. Maryland Ave., Chicago, IL 60637
Contact: Kaitlin Ray
Phone: 773-702-4608
E-mail: [email protected]
Lung Transplant Support Group
Loyola University Medical Center
2160 S First Ave, Maywood, IL
Contact: Susan Long
Phone: 708-216-5454
E-mail: [email protected]
Organ Transplant Support, Inc.
PO Box 471, Naperville, IL 60566
Contact: Chuck Feltes, President
Phone: 630-527-8640
E-mail: [email protected]
Organ Transplant Support, Inc.
PO Box 471, Naperville, IL 60566
Contact: Ron Dickover, President
Phone: 630-527-8640
E-mail: [email protected]
Organ Transplant Support, Inc.
PO Box 471, Naperville, IL 60566
Contact: Susan English, President
Web: www.organtransplantsupport.org
Phone: 630-527-8640
E-mail: [email protected]
Organ Transplant Support, Inc.
PO Box 471, Naperville, IL 60566
Contact: Susan English, President
Web: www.organtransplantsupport.org
Phone: 630-527-8640
E-mail: [email protected]
Sarcoidosis Empowering Healing Hands Of Hope Support Group
National Sarcoidosis Scoity, NFP
4747 S. M.L.King Dr. Ste # 512, Chicago, IL 60615
Contact: Glenda Fulton
Web: http://nationalsarcoidosisfriends.org.tripod.com/
Phone: 312-567-6626
E-mail: [email protected]
Transplant Support Group
Rush University
725 West Harrison, Ste. 437, Chicago, IL
Contact: Mike Levick
Phone: 312-563-2111
Transplant Support Group
University of Chicago
5841 S. Maryland, Chicago, IL
Contact: Rina Murao
Phone: 773-834-2003
Transplant Support Group
American Transplant Association
47 W Polk Street, Suite 100-140, Chicago, IL
Web: www.americantransplant.org
Phone: 800-494-4527
Transplant Support Group
University of Chicago
5841 S. Maryland, Chicago, IL
Contact: Danley Kohn
Phone: 773-834-8076
E-mail: [email protected]
Transplant Support Group of Illinois
Centegra Hospital
McHenry, IL
Contact: Carol Prebianca
Phone: 847-838-4754
Transplant Support Group of Illinois
Centegra Hospital
McHenry, IL
Contact: Carol Prebianca
Phone: 847-838-4754
E-mail: [email protected]
Transplant Support Group of Illinois
Centegra Hospital
McHenry, IL 60050
Contact: Rich Barclay
Phone: 847-680-4157
E-mail: [email protected]
Transplant Support Group of Northern Illinois
40261 W. Beach Lane, Antioch, IL 60002
Contact: Carol Prebianca
Phone: 847-838-4754
E-mail: [email protected]
Indiana
Fort Wayne Transplant Support Group
Ivy Tech College at Anthony Blvd and Coliseum
- Audience: All organs, pre- and post-transplant recipients and caregivers
- When: Fourth Tuesday of the month, 6:30 p.m.
Contact: Larry Hilsmier
Phone: 260-637-6568
E-mail: [email protected]
Facebook: Fort Wayne Transplant Support Group
Hobart: New Beginnings Transplant Support Group
St. Mary’s Hospital auditorium
- Audience: All organs, pre- and post-transplant recipients and caregivers
- When: Third Wednesday of the month, 6:00 p.m.
Contact: Jason Delgado
Phone: 219-663-3747 or 219-775-2189 or 219-577-5581
Web: https://www.comhs.org/programs-and-events/n/new-beginnings-transplant-network
Indianapolis: IU Health Heart Lung Transplant Support Group
IU Health Methodist Hospital, Parking Garage 2
Basement of the Professional Building, Room DG 422A
- Audience: Heart or lung, pre- and post-transplant recipients and caregivers
- When: Fourth Monday of the month, 6:00 p.m.
Contact: Sandy Cloyd, trained IU Health volunteer
Phone: 317-405-5025
Facebook: IU Health Heart and Lung Transplant Support Group
Indianapolis: IU Health Transplant Support Group
Cancer Pavilion at IU Health University Hospital, Room RT102
- Audience: All organs, pre- and post-transplant recipients and caregivers
- When: Third Thursday of every month, 12:30–1:30 p.m.
- Contact: Rachel Holmes, PhD, IU Health Transplant psychologist
- Phone: 317-944-7320
- Facebook: IUHTransplant
- Virtual meetings: To ensure the health and safety of all our patients and team members during the coronavirus (COVID-19) pandemic, the support group is meeting online. To reserve your spot, email [email protected] or visit facebook.com/iuhtransplant and click on Events.
Hartford City: Organ Transplant Support Group
IU Health Blackford Hospital, Main Conference Room
- Audience: All organs, pre- and post-transplant recipients and caregivers
- When: Third Thursday of every month, 3:00-4:00 p.m.
Contact: Abbey Chalfant, RRT, IU Health Blackford
Phone: 765-331-2117
Facebook: IU Health Ball, Blackford & Jay, under Events
South Bend: Second Wind Support Group
South Bend Christian Reformed Church, 1855 North Hickory Road
- Audience: People with respiratory difficulties
- When: Every Tuesday, 1:30 p.m.
Contact: Betsy Cichon
Phone: 574-272-9085
Other support groups: https://www.2ndwind.org/transplantation/support-groups/#indiana
Iowa
Anxiously Awaiting
University of Iowa Hospitals & Clinics, Soc. Clinic
Iowa City , IA
Contact: Yuk Sum Chung
Phone: 319-353-8799
Anxiously Awaiting
University of Iowa Hospitals & Clinics, Soc. Clinic
P.O. 315, Urbandale, IA 50323
Contact: Belinda Deal
Phone: 515-570-1710
E-mail: l[email protected]
Transplant Support Group
Great River Medical Center, Oak Room
Burlington, IA
Contact: Sam Johnson
Phone: 319-758-9665
Kansas
Liver Transplant Support Group
University of Kansas Hospital
3901 Rainbow Blvd, Kansas City, KS 66160
Contact: Kellie Elliott, LMSW
Phone: 913-588-4417
Liver Transplant Support Group
University of Kansas Hospital
3901 Rainbow Blvd
Kansas City, KS 66160
Contact: Kellie Elliott, LMSW
Phone: 913-588-4417
E-mail: [email protected]
Kentucky
Heart to Heart Support Group
University of Kentucky HealthCare Transplant Center
2333 Alumni Park Plaza, Ste 300, Lexington, KY 40517
Contact: Becky Martin
Web: https://ukhealthcare.uky.edu/transplant-center
Phone: 859-323-4843
E-mail: [email protected]
UK Healthcare Cardiothoracic Transplant/VAD Support Group
University of Kentucky HealthCare Transplant Center
2333 Alumni Park Plaza, Ste 300, Lexington, KY 40517
Contact: Becky Martin
Web: https://ukhealthcare.uky.edu/transplant-center
Phone: 859-323-4843
E-mail: [email protected]
University of Kentucky Lung Transplant Support Group
Kentucky Clinic
740 South Limestone Street, Ste K116 (first floor between Pharmacy and General Surgery), Lexington, KY 40536
Contact: April Bruce
Phone: 859-323-6019
E-mail: [email protected]
University of Kentucky Liver Support Group
Kentucky Clinic
740 South Limestone Street, Ste K301- K354, Lexington, KY 40536
Contact: Kristen Workman
Phone: 859-323-3228
E-mail: [email protected]
University of Kentucky Kidney Support Group (The Kidney Collaborative)
Kentucky Clinic
740 South Limestone Street, Ste K128 (first floor), Lexington, KY 40536
Contact: Alex Berrios
Phone: 404-401-0096
E-mail: [email protected]
Louisiana
Organ Transplant Support Group
Opelousas, LA 70570
Contact: Mary Quebedeaux
E-mail: [email protected]
Maine
There are no support groups available in Maine at this time.
Maryland
Living With Hepatitis/Before and After Transplant Support Group
Frederick County Hepatitis C Clinic
350 Montevue Avenue, Entrance “B”, Frederick, MD 21703
Mercy for Livers
301 St. Paul Street, Baltimore, MD 21202
Contact: Rose Stelmack
Phone: 443-503-6947
E-mail: [email protected]
Quarter Century Club
415 Piedmont Avenue, Cumberland, MD 21502
Contact: george e franklin 3rd
Phone: 301-328-2601
E-mail: [email protected]
TRIO – Transplant Recipients International Organization
TRIO-Transplant Recipients International Organization
822 Guilford Avenue, Baltimore, MD 21202
Contact: Marty Maren – President
Phone: 410-558-0451
E-mail: [email protected]
Massachusetts
Dare to be Alive
230 North Main Street, South Yarmouth , MA 02664
Contact: Deanna Arnold
Phone: 508-398-5473
Kidney/Pancreas Pre- & Post- Transplant Educational Support Grouo
UMass Memorial Medical Center
Transplant Conference Room, Level A
Worcester, MA 01655
Contact: Sara Grady, LICSW
Phone: 508-334-7613
E-mail: [email protected]
Liver Transplant Group
Beth Israel Deaconess Medical Center
185 Pilgrim Road, Farr 10 Solarium, Boston, MA 02215
Contact: Noelle Dimitri
Phone: 617- 632-9815
Liver Transplantation Support Group
UMass Memorial Medical Center
Worcester, MA
Contact: Doris Tripp-MacPherson, LICSW
Phone: 774-441-8646
Renal/Pancreas Transplant Support Group (Pre and Post Transplant)
UMass Memorial Medical Center
Lazare Research Building, Conference Room 203
Worcester, MA
Contact: Ellen Wells, LICSW
Phone: 508-334-7613
The Partnership for Organ Donation
2 Oliver Street, Boston, MA 02109
Phone: 617-482-5746
Transplant Recipients International Organization (TRIO)
New England Chapter (serving CT, ME, MA, NH, RI and VT)
44 Ellison Road, Newton, MA 02459
Phone: 617-266-9559
Transplant Recipients International Organization (TRIO)
New England Chapter (serving CT, ME, MA, NH, RI and VT)
44 Ellison Road, Newton, MA 02459
Contact: Michelle Kats
Phone: 6174069129
E-mail: [email protected]
Transplant Recipients International Organization (TRIO)
New England Chapter (serving CT, ME, MA, NH, RI and VT)
1166 Washington St., apt 303, Boston, MA 02118
Contact: Virginia Watkins
Phone: 617-424-0204
E-mail: [email protected]
Transplant Recipients International Organization (TRIO)
New England Chapter (serving CT, ME, MA, NH, RI and VT)
44 Ellison Road, Newton, MA 02459
Contact: Kara
Phone: 617-266-9559
E-mail: [email protected]
Michigan
Heart – LVAD Support Group
University of Michigan Medical Center
Ann Arbor, MI
Contact: Ruth Halben
Phone: 734-763-9788
E-mail: [email protected]
Heart LVAD Support Group
Henry Ford Hospital
Detroit, MI
Contact: Ginger St. John, MSW
Phone: 313-916-2724
E-mail: [email protected]
Heart Support Group
University of Michigan Medical Center
Ann Arbor, MI
Contact: Ruth Halben
Phone: 734-763-9788
Heart Support Group
University of Michigan Medical Center
Ann Arbor, MI
Contact: Ruth Halben, LMSW
Phone: 734-763-9788
E-mail: [email protected]
Kidney/Pancreas Support Group
Henry Ford Hospital
Detroit, MI
Contact: Patrick Williams, MSW
Phone: 313-916-1290
E-mail: [email protected]
kTalk
National Kidney Foundation of Michigan
1169 Oak Valley Drive, Ann Arbor, MI 48108
Contact: Susan Thomas, MD
Phone: 1.800.482.1455
E-mail: [email protected]
Lakeshore Transplant Support Group
Hackley Hospital
1700 Clinton St, Muskegon, MI 49442
Contact: CJ Raugh, President
Phone: 231-740-5901
E-mail: [email protected]
Liver Support Group
Henry Ford Hospital
Detroit, MI
Contact: Sophia Awan
Phone: 313-916-1352
Liver Support Group
University of Michigan Medical Center
Ann Arbor, MI
Contact: Lynda Asher
Phone: 734-668-0334
Liver Support Group
Henry Ford Hospital
Detroit, MI 48202
Contact: Ann Zalucki
Phone: 313-916-1352
E-mail: [email protected]
Liver Support Group
Henry Ford Hospital
15635 W Townline Rd, St. Charles, MI 48655
Contact: Ann Zalucki
Phone: 313-916-1352
E-mail: [email protected]
LOTTS-Living Organ Transplant and Tissue Support Group
Kalamazoo, MI
Contact: Jan Getz
Phone: 269-349-6630
E-mail: [email protected]
Lung Support Group
Henry Ford Hospital
Detroit, MI
Contact: Anne Eshelman
Phone: 313-916-2724
Lung Support Group
University of Michigan Medical Center
Ann Arbor, MI
Contact: Lizbeth Warner
Phone: 734-615-5334
Lung Support Group
University of Michigan Medical Center
Ann Arbor, MI
Contact: Amy Van Zee
Phone: 734-615-5334
E-mail: [email protected]
Lung Support Group
University of Michigan Medical Center
Ann Arbor, MI
Contact: Amy Van Zee, LMSW
Phone: 734-615-5334
E-mail: [email protected]
Lung Transplant Support Group
Bronson Battle Creek Hospital
Battle Creek, MI
Contact: Deborah Pierce BS RRT
Phone: 269-245-8438
E-mail: [email protected]
Mid-Michigan Transplant Support Group
Mid Michigan Medical Center
Clare, MI
Contact: Terri Maynard
Phone: 989-430-4174
E-mail: [email protected]
Mid-Michigan Transplant Support Group
Saginaw, MI
Contact: Mary Catherine Siers
Phone: 989-792-1334
E-mail: [email protected]
Organ Transplant Awareness Group
Alpena, MI
Contact: Jerome Smigelski
Phone: 989-354-3342
E-mail: [email protected]
Second Time Around Transplant Support Group
Warren, MI
Contact: Jacquie Oliai
Phone: 800-348-3987
E-mail: [email protected]
Second Time Around Transplant Support Group
Spectrum Health
2902 Bradford NE, Grand Rapids, MI
Contact: Jacquie Oliai
Phone: 616-391-2802
E-mail: [email protected]
St. John Transplant Support Group
Detroit, MI
Contact: Jennifer Bruns
Phone: 313-343-3047
E-mail: [email protected]
Transplant Connection
Beaumont Health
3535 West 13 Mile Road-Suite 644, Royal Oak, MI 48073
Contact: Sophia Awan, LMSW
Phone: 248-551-1201
E-mail: [email protected]
Transplant Support Group
Jackson, MI
Contact: Cathy McAllister
Phone: 517-783-7320
Transplant Support Group of Northern Michigan
Gaylord, MI
Contact: Bev Cherwinski
Phone: 989-983-4188
Minnesota
Heart Transplant and VAD Caregiver Support Group
University of Minnesota Medical Center – Fairview
420 Delaware St SE, Minneapolis, MN 55455
Contact: Lilli Bauman
Phone: 612-273-5670
E-mail: [email protected]
Heart Transplant Support Group
Fairview-University Medical Center
MMC 181 420 Delaware Street SE, Minneapolis, MN
Contact: Lilli Bauman
Phone: 612-273-5670
Lung Transplant Support Group
Fairview-University Medical Center
MMC 181 420 Delaware Street SE, Minneapolis, MN 55455
Contact: Marget Schmidtke, LICSW
Phone: 612-273-5796
VAD Support Group
University of Minnesota Medical Center – Fairview
420 Delaware St SE, Minneapolis, MN 55455
Contact: Angela Herr
Phone: 612-273-5774
E-mail: [email protected]
Mississippi
Transplant Support Group
University of MS Medical Center
2500 North State Street, Jackson, MS 39216
Contact: Sherie Brock
Phone: 601-984-5065
E-mail: [email protected]
Missouri
Heart Transplant Support Group
Barnes-Jewish Hospital
St. Louis, MO 63110
Contact: Jennifer Manolis, LCSW
Phone: 314-362-3980
Heart Transplant Support Group
Barnes-Jewish Hospital
St. Louis, MO 63110
Contact: Nina Jarvis, LCSW
Phone: 314-362-5070
E-mail: [email protected]
Heart Transplant Support Group
Barnes-Jewish Hospital
St. Louis, MO 63108
Contact: Nina Jarvis, MSW, LCSW
Phone: (314) 362-5070
E-mail: [email protected]
Kidney Transplant Support Group
Barnes-Jewish Hospital
St. Louis, MO 63110
Contact: Karen Politsch, LCSW
Phone: 314-362-5577
Liver Transplant Support Group
Barnes-Jewish Hospital
St. Louis, MO 63110
Contact: Kelly Dougherty, MSW
Phone: 314-362-1956
E-mail: [email protected]
Liver Transplant Support Group
Barnes-Jewish Hospital
1108 e 495th rd, BOLIVAR, MO 65613
Contact: linda king
Phone: 417-298-8699
E-mail: [email protected]
Liver Transplant Support Group
Barnes-Jewish Hospital
St. Louis, MO 63110, MO 63110
Contact: Kathleen Walton, MSW
Phone: 314-362-1956
Liver Transplant Support Group
University of Kansas Hospital
8610 N Kansas ave, Kansas City, MO 64156
Contact: Michael P Michael
Phone: 816-522-7638
E-mail: [email protected]
Lung Transplant Support Group
Barnes-Jewish Hospital
St. Louis, MO 63110
Contact: Rebecca Bathon, LCSW
Phone: 314-362-6127
Lung Transplant Support Group
Barnes-Jewish Hospital
St. Louis, MO 63110
Contact: Rebecca Bathon, LCSW
Phone: 314-362-6127
E-mail: [email protected]
Second Wind Lung Transplant Associaiton of St. Louis, Missouri
Second Wind Lung Transplant Association of St. Louis, Missouri
3440 Halliday Avenue, St. Louis, MO 63118
Contact: Thomas E. Archer
Phone: (314) 664.6360
E-mail: [email protected]
Second Wind Lung Transplant Association, Inc.
St. Louis Chapter
3440 Halliday Avenue, St. Louis, MO 63118
Contact: Tom Archer
Phone: 314-664-6360
E-mail: [email protected]
Transplant Institute Support Group
Research Medical Center
2316 E. Meyer Blvd., Kansas City, MO 64132
Contact: Kristen Derks
E-mail: [email protected]
Montana
American Liver Foundation
1425 Pompton Avenue, MT
Contact: Charlie O
Phone: 406-581-5425
E-mail: [email protected]
American Liver Foundation
1425 Pompton Avenue, MT
Phone: 406-581-5425
E-mail: [email protected]
Montana Chapter of Transplant Recipients International Org
1002 Boylan Dr, Stop E, Bozeman, MT 59715
Contact: Jim Rivard- Co-founder
Phone: 503-944-9604
E-mail: [email protected]
Nebraska
New Hearts Transplant Support Group
8509 S. 46th Street, Omaha, NE , NE 68157
Contact: Annette Fumagalli
Phone: 402-734-5749
Nevada
Living Well with Kidney Disease
Las Vegas, NV
Web: http://livingwellwithkidneydisease.blogspot.com
Phone: 702-419-2438
E-mail: [email protected]
New Hampshire
Concord Transplant Group – Pre/Post
Concord, NH 03301
Contact: Yoli Jones
Phone: 603-224-7121
E-mail: [email protected]
Pre & Post Transplant – New Hampshire
Nashua, NH
Contact: Ron Rioux
Phone: 603.889.1775
E-mail: [email protected]
Pre and Post Transplant Support Group
Concord Hospital
250 Pleasant Street, Room 5A, Concord, NH
Phone: 603-224-7121
E-mail: [email protected]
Pre and Post Transplant Support Group
Southern New Hampshire Medical Center
Nashua, NH
Contact: Ron Rioux
Phone: 603-889-1775
E-mail: [email protected]
New Jersey
Central Jersey Transplant Lifeline Support Group
Riverview Medical Center
Red Bank, NJ
Phone: 732-450-1271
E-mail: [email protected]
Central Jersey Transplant Lifeline Support Group
Riverview Medical Center
466 JACKSON AVE 2FL, HACKENSACK, NJ 07601
Contact: Yasmeen Muhammad
Phone: 732-450-1271
E-mail: [email protected]com
Central Jersey Transplant Lifeline Support Group
Riverview Medical Center
Red Bank, NJ 08510
Contact: caren
Phone: 609-529-5127
E-mail: [email protected]
Kidney/Pancreas Pre- and Post-Transplant Support Group
Robert Wood Johnson University Hospital
10 Plum Street, 7th Floor, New Brunswick, NJ 08903
Contact: Augusto J. da Fonseca, MSW, LCSW
Phone: 732-235-8987
https://www.rwjbh.org/treatment-care/kidney-care/patient-education/support-groups-programs/
E-mail: [email protected]
Kidney/Pancreas Pre- and Post-Transplant Support Group
Robert Wood Johnson University Hospital
10 Plum Street, 7th Floor
New Brunswick, NJ 08901
Contact: Jamie D’Angelo, LSW
Web: www.rwjuh.edu
E-mail: jamie.d’[email protected]
Lung Transplant Support Group (Pre and Post)
St. Clare’s Health System, Dover (Morris), NJ Campus
400 West Blackwell Street, Dover, NJ 07801
Contact: Carmela Thomas, RRT
Phone: 973-989-3128, option 2
E-mail: [email protected]
Newark Beth Israel Lung Transplant Support Group
Newark Beth Israel Medical Center
201 Lyons Ave, Newark, NJ 07112
Contact: Lauren Dispinseri, MSW, LCSW
Phone: 973-926-3178
E-mail: [email protected]
New Mexico
Transplant Community Support Group
Organ Transplant Awareness Program of New Mexico
For in person support, contact the number below.
Contact: Venae Warner
Web: www.otapnm.org
Phone: 505-948-4099
E-mail: [email protected]
New York
Children’s Liver Alliance (Biliary Atresia and Liver Transplant Network)
3835 Richmond Avenue, Box 190, Staten Island, NY 10312
Phone: 718-987-6200
E-mail: [email protected]
Living Healthy with Kidney Disease
Kidney Foundation of WNY
110 Broadway Street, Buffalo, NY 14203
Contact: Barbara Breckenridge
Web: http://kfwny.org/
Phone: 716-510-6702
E-mail: [email protected]
Morgan Stanley Children’s Hospital of New York-Presbyterian
3959 Broadway, New York, NY 10032
Pediatric Liver Transplant Support Group
Contact: Lauren Hunter
Phone: 212-305-3000
Email: [email protected]
Zoom meetings on the first Monday of every month at 5:00 p.m.
New York-Presbyterian Hospital / Weill Cornell Medical Center
525 East 68th Street, New York, NY 10065
Kidney and Pancreas Transplant Patient Support Group
Contact: Alicia Henry, LCSW, CCTSW
Phone: 212-746-3218
New York-Presbyterian Hospital / Weill Cornell Medical Center
525 East 68th Street, New York, NY 10065
Liver Transplant Patient Support Group
Contact: Samantha Bennahum, LCSW
Phone: 646-962-5337
New York-Presbyterian Hospital /Columbia University Irving Medical Center
622 West 168th Street, New York, NY 10032
Heart Transplant Patient Support Group
Contact: Wendy Ramirez, LCSW
Phone: 212-305-6391
New York-Presbyterian Hospital /Columbia University Irving Medical Center
622 West 168th Street, New York, NY 10032
Lung Transplant Patient Support Group
Contact: Bailey Petry, LCSW
Phone: 212-342-1364
New York-Presbyterian Hospital /Columbia University Irving Medical Center
622 West 168th Street, New York, NY 10032
Liver Transplant Patient Support Group
Contact: Aimee Muth, LCSW
Phone: 212-305-1884
The Recanati/Miller Transplantation Institute
The Mount Sinai Medical Center
18 Handsome ave, NY, NY 11784
Contact: Javier Lopez
Phone: 212-241-8035
E-mail: [email protected]
Transplant Awareness Group (TAG)
Syracuse, NY 13220
Contact: Doug Sprague
Phone: 315-475-6356
E-mail: [email protected]
Transplant Recipients International Organization (TRIO)
Long Island Chapter
Garden City, NY 11530
Web: www.litrio.org/
Phone: 516-620-5900
Transplant Support Group of Western New York
5605 Genesee Street, Lancaster, NY 14086
Contact: Michael J. Martino
Web: www.tsgwny.org
Phone: 716-685-4799
Transplant Support Organization (TSO)
1335 Mace Avenue, Bronx, NY 10469
Contact: Ira J. Copperman
Web: www.transplantsupport.org
Phone: 917-838-4525
E-mail: [email protected]
Transplants Save Lives, Inc. Support Group
Serving Rockland and Orange Counties
Nanuet, NY 10954
E-mail: [email protected]
TRIO Manhattan Chapter
Transplant Recippient International Organization-Manhattan Chapter
72 Park Terrace West #E38, New York, NY 10034
Contact: Betsy Morrissey
Phone: (347)-427-7764
E-mail: [email protected]
TRIO Manhattan Chapter
Transplant Recippient International Organization-Manhattan Chapter
72 Park Terrace West #E38, New York, NY 10034
Contact: Tina Sammon
Phone: (347)-427-7764
E-mail: [email protected]
TSO of Staten Island
22 Ocean Road, Staten Island, NY 10308
Web: www.transplantsupport.org
Phone: 718-317-8073
E-mail: [email protected]
Westchester Medical Center Transplant Life Support Group
Westchester Medical Center
100 Woods Road, Valhalla, NY 10595
Contact: Mimi Greenman, LCSW
Phone: 914-493-1048
E-mail: [email protected]
North Carolina
Lung Transplant Support Group
UNC Hospitals
101 Manning Drive, Chapel Hill, NC 27514
Contact: Laurie McDonald, LCSW
Phone: 919-966-6341
E-mail: [email protected]
Morganton Organ Transplant Support Group
106A Normandy Drive, Morganton, NC 28655
Contact: Wanda Buffington / Coordinator
Phone: 828-302-7646
E-mail: [email protected]
Morganton Organ Transplant Support Group
106A Normandy Drive, Morganton, NC 28655
Contact: Wanda Buffington / Coordinator
Phone: 828-391-5147
E-mail: [email protected]
Second Wind Lung Transplant Association, Inc.
2509 Old NC 10, Hillsborough, NC 27278
Contact: Kathryn Flynn, Duke Liaison
Web: www.2ndwind.org
Phone: 919-732-0851
E-mail: [email protected]
Second Wind Lung Transplant Association, Inc.
2509 Old NC 10, Hillsborough, NC 27278
Contact: Kathryn Flynn, Vice President
Web: www.2ndwind.org
Phone: 888- 855-9463
The Newhearts
Carolinas Medical Center
P.O. Box 32861, Charlotte, NC 28232
Contact: Cherie Cone, MSW
Phone: 800-562-5752
Transplant Recipients International Organization (TRIO)
Triangle (Raleigh, Durham, Chapel Hill) Chapter
9413 Northfield Court, Raleigh, NC
Phone: 919-846-5287
Transplant Recipients International Organization (TRIO)
Eastern Carolina (Goldsboro) Chapter
4664 Leary Mills Road, Vanceboro, NC
Phone: 252-746-3567
Vidant Transplant Support Group
Vidant Medical Center
4S – 10 Brody Building, Greenville, NC 27834
Contact: Barbara Lee
Phone: 252-744-3638
E-mail: [email protected]
North Dakota
Sanford Health (formerly MeritCare Medical Center)
Transplant Office
736 N. Broadway, Fargo, ND 58122
Web: https://www.sanfordhealth.org/medical-services/transplant-surgery
Phone: 701-234-6715
Ohio
Buckeye GIFT – Giving Inspiration for Transplantation
Lifeline of Ohio
770 Kinnear Road, Suite 200, Columbus, OH 43212
Phone: 800-525-5667
Change of Heart Inc.
2602 Canterbury Ave., Cincinnati, OH 45237, OH 45237
Phone: 513-631-5017
E-mail: [email protected]
Greater Cincinnati Area Lung Transplant Support
4120 Beamer Court, Cincinnati, OH 45245
Contact: Cynthia and Bob Lohstroh
Phone: 513-752-0451
E-mail: [email protected]
Transplant Recipients International Organization (TRIO)
Greater Cleveland Chapter
PO Box 93163, Cleveland, OH 44101
Phone: 440-473-8979
Transplant Recipients International Organization (TRIO)
Miami Valley Chapter
4808 Barnhart Ave., Dayton, OH 45432
Phone: 937-258-0740
Transplant Recipients International Organization (TRIO)
Akron-Canton Chapter
1529 19th St. NE, Canton, OH 44714
Web: trioakroncanton.blogspot.com
Phone: 330-453-8214
Transplant Recipients International Organization (TRIO)
Greater Cleveland Chapter, OH
Contact: Pam Tressel
Phone: 440-669-5458
E-mail: [email protected]
Oklahoma
Integris
3300 NW Expressway, Oklahoma City, OK
Contact: Larry Elliott
Web: Support group information
Phone: 405-830-2054
E-mail: [email protected]
Kidney and Liver Failure Transplant Support Group
3901 NW 63rd, Oklahoma City, OK
Contact: Micki Anderson, LCSW
Phone: 405 640-7949
E-mail: [email protected]
Transplant Recipients International Organization (TRIO-Oklahoma)
Oklahoma City, Oklahoma
Contact: Lorrinda Davis
Web: trio-oklahoma.org
Phone: 405-302-8400
Peer-to-Peer meetings every Thursday from 6:30-7:30 p.m. on Zoom (for pre- and post-transplant patients). In 2021, we plan to begin a Caregiver and Young Adult program.
Oregon
Liver Transplant Support Group
Legacy Good Samaritan Hospital
1015 NW 22nd Ave., Portland, OR
Contact: Brenda Niblock
Phone: 360-574-2918
E-mail: [email protected]
Liver Transplant Support Group
Legacy Good Samaritan Hospital
1015 NW 22nd Ave., Portland, OR
Contact: Brenda Niblock
Phone: 360-574-2918
E-mail: [email protected]
Oregon Pulmonary Fibrosis/Lung Transplant Support Group
Tualitan, OR
Contact: Sandy Metheany
Phone: 503-829-5253
E-mail: [email protected]
Pennsylvania
MOST (Multi-Organ Support Team)
Philadelphia, PA
Contact: Jim Gleason
Phone: 609-877-4493
Transplant Recipients International Organization (TRIO)
Philadelphia Chapter
407 N. Swarthmore Avenue, Swarthmore, PA 19081
Contact: Elizabeth Rubin
Phone: 610-544-4140
Transplant Recipients International Organization (TRIO)
Pittsburgh Chapter
200 Lothrop Street, Pittsburgh, PA 15213
Phone: 877-647-3439
E-mail: [email protected]
Transplant Recipients International Organization (TRIO)
Pittsburgh Chapter
535 Bonniebrook Rd, Butler, PA 16002
Contact: Dawn Waltenbaugh
Phone: 7249920769
E-mail: [email protected]
Western PA Kidney Support Groups
Pittsburgh, PA
Contact: Jack Silverstein
Phone: 412-427-2969
York Area Transplant Support Group
Apple Hill Medical Center
25 Monument Road, Suite 193, York, PA 17403
Contact: Tom Wolf
Phone: 717-741-9158
Puerto Rico
There are no support groups available in Puerto Rico at this time.
Rhode Island
Rhode Island Hospital Transplant Peer Support Group/Educational Series
Rhode Island Organ Donor Awareness Coalition
PO Box 40926, Providence, RI 02940
Contact: Dawn Porreca Antaya
Web: https://www.facebook.com/RIODAC/
Phone: 401 253-0011
E-mail: [email protected]
Rhode Island Hospital Transplant Peer Support Group/Educational Series
Rhode Island Organ Donor Awareness Coalition
PO Box 40926, Providence, RI 02940
Contact: Samantha Richards
Web: www.riodac.org
Phone: 401-253-0011
E-mail: [email protected]
South Carolina
Charleston Transplant Support Group
5517 Clearview Drive, Charleston, SC 29420
Contact: Carol Dolida
Phone: 843-552-4038
E-mail: [email protected]
Charleston Transplant Support Group
1216 Briar Rose Lane, Ladson, SC 29456
Contact: Syed Haider
Phone: 843-695-1849
E-mail: [email protected]
TransplantTalk SC
235 Bateaux Dr., Summerville, SC 29483
Contact: Gary Simmons
Phone: 704-699-3046
E-mail: [email protected]
Web: TransplantTalkSC.org
Second Chance
Holland Avenue Baptist Church
801 12th Street, Cayce, SC 29033
Contact: Steve Ford
Phone: 803-394-2364
E-mail: [email protected]
South Dakota
There are no support groups available in South Dakota at this time.
Tennessee
Baptist BraveHearts
Baptist Memorial Hospital-Memphis
6025 Walnut Grove, Suite 111, Memphis, TN 38120
Contact: Shalonda Campbell
Web: www.baptistonline.org/services/transplant/
Phone: 901-226-0168
E-mail: [email protected]
Living Kindly Support Group
Methodist University Transplant Institute
1265 Union Avenue, Memphis, TN 38104
Contact: Susan Dodson, LAPSW
Phone: 901-516-2060
E-mail: [email protected]
Transplant Support Group
National Kidney Foundation of East Tennessee
Knoxville, TN
Contact: Patti Gold
Phone: 614-882-6184
Transplant Support Group
The University of Tennessee Medical Center
1924 Alcoa Highway, Knoxville, TN
Contact: Debra Winston, BSW
E-mail: [email protected]
Transplant Support Group
The University of Tennessee Medical Center
1924 Alcoa Highway, Knoxville, TN
Contact: Debra Winston, BSW
Phone: 865-386-7235
E-mail: [email protected]
Transplant Support Group
The University of Tennessee Medical Center
1924 Alcoa Highway, Knoxville, TN
Contact: Debra Winston, BSW
E-mail: [email protected]
Texas
Baylor Scott & White Multi-Organ Transplant Support Group
Scott & White Transplant Center
2401 S. 31st Street, Temple, TX 78665
Contact: Amanda Raye Jones, LMSW
Web: bswhealth.com
Phone: 254-724-4644
E-mail: [email protected]
The Helping Hearts
The Methodist Hospital
6565 Fannin, Houston, TX
Phone: 713-441-5451
The Helping Hearts
The Methodist Hospital
6565 Fannin, Houston, TX 77058
Contact: Barbara EdwardsCharles
Phone: 713-441-5451
E-mail: [email protected]
Liver Transplant Support Group (for pre/post patients/caregivers)
Baylor Unviersity Medical Center of Dallas
Newark , TX 76071
Contact: Gary Garcia
E-mail: g[email protected]
Liver, Kidney and Pancreas Patient Support Group
Liver Institute at Methodist Dallas Medical Center
1411 N. Beckley Avenue, Pavilion Ill, Suite 268, Dallas, TX 75203
Contact: Brittany Grant
Phone: 214-854-5952
E-mail: [email protected]
Living Gift Support Group
Medical City Dallas Transplant Center
7777 Forest Lane, Building C-750, Dallas, TX 75230
Phone: 972-566-4689
LVAD Support Group
Seton Heart Specialty Care & Transplant Center
1301 W. 38th St. #514, Austin, TX 78705
Contact: Shay Rogillio
Web: www.seton.net
Phone: 512-681-0500
E-mail: [email protected]
The Mickey Mantle Foundation
Dallas, TX
Web: www.qsigroup.com
Phone: 800-477-6425
North Texas Collin Area Transplant Support
130 S. Central Expressway, McKinney, Texas 75070, TX 75070
Contact: Sherri Williams
Phone: 972-838-6320
E-mail: [email protected]
Scott & White Multi-Organ Transplant Support Group
Scott & White Transplant Center
2401 S. 31st Street, Temple, TX 78665
Contact: Lori Taylor, LMSW
Web: https://www.bswhealth.com/specialties/transplant
Phone: 254-724-8962
E-mail: [email protected]
Transplant Recipients International Organization (TRIO)
Texas Panhandle Chapter
Plainview, TX 79073
Contact: Dave Courtney
Phone: 866-706-9828
UTMB Galveston: Texas Transplant Center Support Group
- Group is currently virtual. Open to all pre- and post-transplant patients and LVAD patients as well as to their family and caregivers.
- Where: League City at the Primary and Specialty Care (Entrance A) at Victory Lakes Town Center, 2660 Gulf Freeway South. Look for posted signs.
- When: Monthly on first Tuesday, 4:40 to 6:00p.m.
Contact: Caroline Tremblay, Transplant Social Worker
Phone: 409-772-5753
E-mail: [email protected]
West Texas Transplant Support Group
University Medical Center
602 Indiana Avenue, Lubbock, TX 79415
Phone: 806-761-0710
E-mail: [email protected]
Utah
Heart Transplant Support Group
Sharp Memorial Hospital
750 W. Mariposa Dr, St. George, UT 84780
Contact: Sherry Crane
Phone: 800-82-SHARP
E-mail: [email protected]
Vermont
There are no support groups available in Vermont at this time.
Virginia
American Lung Association South Atlantic Regional Center
9737 Main Street, Fairfax, VA 22031
Phone: 703-591-6504
Culpeper Transplant Group
207 Sunset Lane, Culpeper, VA 22701
Contact: Sheila Horton
Phone: 540-825-4815
Heart/Lung Transplant Support Group
University of Virginia Health System
P.O. Box 800 191, Charlottesville, VA 22908
Contact: Bill Potts, MSW, CSAC
Phone: 800-257-0757
E-mail: [email protected]
In Loving Memory
1416 Green Run Lane, Reston, VA 20190
Phone: 703-435-0608
E-mail: [email protected]
Kidney and Liver Transplant Support Group
Medical College of Virginia, Hume-Lee Transplant Center
1200 E. Marshall Street, Richmond, VA 23298
Contact: Sheila Bullock, MSW
Web: www.vcuhealth.org/transplant
Phone: 804-828-8193
E-mail: [email protected]
Kidney Transplant as a Treatment Option
Henrico Doctors’ Hospital
Richmond, VA
Phone: 877-626-4581
Kidney Transplant Support Group
Henrico Doctor’s Hospital, VA Transplant Center
1602 Skipwith Road, Richmond, VA 23229
Contact: Gigi Spicer
Phone: 804-289-4941
Liver Transplant Support Group
100 Green Park Ct, Winchester, VA 22602
Contact: Mary Reed
Phone: 540-550-4652
E-mail: [email protected]
LVAD and Transplant Support Group
Sentara Heart Hospital
600 Gresham Drive, Norfolk, VA 23507
Phone: 757-388-2831
The Mended Hearts, Inc.
7203 Poplar Street, Annandale, VA 22003
Contact: John Braddon
Phone: 703-941-8500
E-mail: [email protected]
Transplant Awareness
Transplant Awareness
P O Box 7634, Arlington, VA 22207-7634
Contact: Claude Brady
Web: www.transplantawareness.org
Phone: 703-825-3290
E-mail: [email protected]
Transplant Recipients International Organization (TRIO)
Nation’s Capital Area Chapter
P.O. Box 7633, Arlington, VA 22207
Phone: 703-825-3290
E-mail: [email protected]
Washington
Lung Transplant Support Group
University of Washington Medical Center
Seattle, WA
Contact: Angela Wagner, MSW
Phone: 206-598-2676
E-mail: [email protected]
Transplant Caregivers Support Group
University of Washington Medical Center
Seattle, WA
Contact: Angela Wagner, MSW
Phone: 206-598-2676
E-mail: [email protected]
TRIO NW Pediatric Transplant Support Group
TRIO Pacific Northwest
930 NE High St F-224, Issaquah, WA 98029
Contact: David Hall
Phone: 425.281.2779
E-mail: [email protected]
TRIO Pacific Northwest Transplant Support Group
TRIO Pacific Northwest
930 NE High St., Issaquah, WA 98029
Contact: David Hall
Web: trioseattle.org
Phone: 425.281.2779
E-mail: [email protected]
West Virginia
There are no support groups available in West Virginia at this time.
Wisconsin
Central Wisconsin Area Second Chance for Life
Marshfield, WI
Contact: Leah Breu, RN
Web: www.secondchanceforlife.org
Phone: 715-389-3677
Coulee Region Transplant Support Group
Franciscan Skemp Healthcare
Lower level conference room of Franciscan Skemp’s Onalaska Clinic
191 Theater Road, Onalaska, WI
Contact: Jena Casper
Phone: 608-392-6117
Froedert Transplant Support Groups
9200 W. Wisconsin Ave., Milwaukee , WI
Web: www.froedtert.com
Phone: 414-805-3666
Kids With Heart National Association for Children’s Heart Disorders
1578 Careful Drive, Green Bay, WI 54304
Phone: 800-538-5390
E-mail: [email protected]
St. Luke’s Heart Transplant Support Group
Milwaukee, WI
Phone: 414-646-5410
Vernon Memorial Hospital Heart Center Support Group
Viroqua, WI
Web: http://www.vmh.org/content/organ-transplant-support
Phone: 608-637-4497
Wyoming
There are no support groups available in Wyoming at this time.
Nationwide
Alliance for Donation Transplantation Awareness and Support (ADTAS)
Web: groups.google.com/group/Kidney-Liver-Pancreas-Support-Group
American Association of Kidney Patients
Contact: Roberta Wager, RN, MSN, AAKP President
Phone: 800-749-2257
E-mail: [email protected]
American Heart Association
Web: https://www.heart.org/HEARTORG/
Phone: 800-242-8721
American Liver Foundation
1425 Pompton Avenue
Phone: 800-223-0179
Heart Transplant Support Group
Henry Ford Hospital
Contact: Ginger St. John, MSW
Phone: 313-916-2724
E-mail: [email protected]
Heart-Lung Transplant Support Group
E-mail: [email protected]
Liver Families
Web: http://www.liverfamilies.net/
Liver Hope
HCV Support, Inc.
Contact: Wayne Morea
E-mail: [email protected]
Liver Transplant and Hepatitis C Online Support
Web: http://forums.delphiforums.com/livertransplant/start
Liver Transplant Support Group
LISTEN at King’s College Hospital
Contact: Donna
E-mail: [email protected]
National Kidney Foundation
Web: www.kidney.org
Phone: 800-622-9010
Pancreatitis Online Support Group
Web: pancreasfoundation.org/pancreas-community/
Renal Support Network
Contact: Lori Hartwell, President and Founder
Web: www.rsnhope.org
Phone: 866-903-1728
E-mail: [email protected]
Second Wind Lung Transplant Association, Inc
Contact: Kathryn Flynn, Vice President
Web: www.2ndwind.org
Phone: 888-855-9463
E-mail: [email protected]
The Compassionate Friends, Inc.
Web: www.compassionatefriends.org