Support groups
COVID-19 FAQs and vaccine information
Why join a support group?
Transplant patients and their families can gain support from many different types of groups, including group gatherings, educational programs, one-on-one support, social activities, newsletters, written materials, Internet groups, and talking on the telephone. As patients’ transplant experiences continue, they often gain confidence and reach out others, in turn making lifelong friends, enjoying social activities and finding opportunities to promote the need for organ and tissue donation.
Hospital groups
Usually run by the hospital transplant coordinator, social worker or other member of the transplant team, these types of support groups may consist of patients who are pre- or post-transplant or are hospitalized with transplant-related problems. These types of groups also typically meet more frequently than non-hospital groups.
Local support groups
Usually run by transplant patient, these groups consist of pre- and post-transplant patients and their families. They allow members who have already had their transplant to help you with the adjustment to a more normal, everyday lifestyle. They usually have monthly meetings and special events.
Online support groups
These groups can provide you with a broad range of experiences from all over the world. In addition, Internet support groups allow allow you to ask personal questions in the comfort of your own home. You can find many Facebook and other social media sites that specialize by organ type or disease.
Professional organizations
Professional organizations provide educational seminars, materials and activities. They also may conduct fundraising to support research and help shape healthcare policy.
Find support groups:
Nationwide or by state
Nationwide support groups
Alliance for Donation Transplantation Awareness and Support (ADTAS)
Web: groups.google.com/group/Kidney-Liver-Pancreas-Support-Group
American Association of Kidney Patients
Web: https://aakp.org/center-for-patient-engagement-and-advocacy/support-groups/
Phone: 800-749-AAKP
Cirrhosis Online Support Group
Heart-Lung Transplant Support Group
E-mail: [email protected]
Liver Families
Liver Transplant and Hepatitis C Online Support
Liver Transplant Support Group UK
LISTEN at King’s College Hospital, London
Contact: Donna
E-mail: [email protected]
Pancreatitis Online Support Group
Renal Support Network
Contact: Suzette Maffi
Phone: 818-543-0896
E-mail: [email protected]
Web: www.rsnhope.org
Second Wind Lung Transplant Association, Inc
Web: www.2ndwind.org
TransplantBuddies.org
Alabama
UAB Heart/Lung/Liver Support Group
University of Alabama at Birmingham
Birmingham, AL
Contact: Stan Smith
Phone: 205-655-3151
E-mail: [email protected]
Alaska
AKPA Support
Alaska Kidney Patients Association
205 E Dimod Blvd #820, Anchorage, AK 99501
Contact: Kristie Lemmon
Web: alaskakidney.org
Phone: 907-333-2257
E-mail: [email protected]
Arizona
Abdominal Transplant Support Group
Banner University Medical Center – Tucson
1625 N. Campbell Avenue, Tucson, AZ 85719
Contact: Caitlin Yost LMSW
Web: www.bannerhealth.com
Phone: 520-694-6149
E-mail: [email protected]
Heart and Lung Transplant Support & Education
Banner University Medical Center – Tucson
1625 North Campbell Avenue, Tucson, AZ 85719
Contact: Andrea Burkholder, LCSW
Web: www.bannerhealth.com
Phone: 520-694-5168
E-mail: [email protected]
Lung Transplant Support Group
Banner University Medical Center – Phoenix
Lung Institute, 755 E McDowell Road, Phoenix, AZ 85006
Contact: Andrea Burkholder, LCSW
Web: www.bannerhealth.com
Phone: 520-694-5168
E-mail: [email protected]
Lung Transplant Support Group
St. Joseph’s Hospital and Medical Center
350 W. Thomas Road, Phoenix, AZ 85013
Contact: Kathy Lam, MSW, LCS
Phone: 602-406-7009
E-mail: [email protected]
Mayo Clinic Heart Transplant Support Group
Mayo Clinic
AZ 85054
Contact: Patricia (Tisha) P. Pathuis, L.C.S.W.
Phone: 480-342-2161
The New Life Society
Open to all organ recipients
Various locations in Phoenix
Contact: Zoe Severyn
Phone: 602-277-2661
E-mail: [email protected]
Arkansas
Central Arkansas Support Group
AR
Contact: Carolyn Berry
Phone: 870-329-1368
E-mail: [email protected]
Conway Support Group
Conway, AR
Contact: Dale & Debbie Smith
Phone: 501-472-0461
E-mail: [email protected]
Fayetteville Area Transplant Support Group
2994 Gillham Rd, Hartford, AR 72938
Contact: Milton Spooner
Phone: 479-212-0872
E-mail: [email protected]
Hot Springs Support Group
Hot Springs, AR
Contact: Billy Valentine
Phone: 501-622-7316 / 7416
E-mail: [email protected]
Russellville Support Group
Russellville, AR
Contact: H.L. Shepherd
Phone: 479-968-2471
E-mail: [email protected]
California
A Gift of Heart – Organ Transplant and Donor Support Group
Orange, CA
Web: www.agiftofheart.org
Bay Area Association of Kidney Patients (Menlo Park)
PO Box 2332, Menlo Park, CA 94026
Contact: Debra Elmore
Web: www.baakp.org
Phone: 650-323-2225
E-mail: [email protected]
Bay Area Association of Kidney Patients (Oakland)
350 Hawthorne Ave, Oakland, CA
Contact: Debra Elmore
Web: www.baakp.org
Phone: 650-323-2225
E-mail: [email protected]
Bay Area Association of Kidney Patients (Palo Alto)
795 El Camino Real, Palo Alto, CA
Contact: Debra Elmore
Web: www.baakp.org
Phone: 650-323-2225
E-mail: [email protected]
Bay Area Association of Kidney Patients (San Francisco)
1101 Van Ness Ave, San Francisco, CA
Contact: Debra Elmore
Web: www.baakp.org
Phone: 650-323-2225
E-mail: [email protected]
Stanford Hospital and Clinics
Stanford, CA 94305
Contact: Caitlin West
Phone: 650-445-8867
Cedars Sinai Heart Transplant Support Group
Cedars-Sinai Medical Center
8900 Beverly Blvd., 3rd Floor Conference Room
Contact: Amy Modglin, LCSW,
Phone: 310-423-7479
Cedars Sinai Multi-Organ Transplant Support Group
Cedars-Sinai Medical Center
Los Angeles, CA
Contact: Amy Modglin, LCSW
Web: https://www.cedars-sinai.org/patients-visitors/resources/support-groups.html
Phone: 310-423-7479
Cedars Sinai Multi-Organ Transplant Support Group
Cedars-Sinai Medical Center
Los Angeles, CA
Contact: Alisa Fishman, LCSW, ACM
Phone: 310-423-7464
Web: https://www.cedars-sinai.org/patients-visitors/resources/support-groups.html
Coachella Valley Liver/ Kidney Disease and Transplant Support Group
Rap Foundation Building
41550 Eclectic Street, Palm Desert, CA 92260
Contact: Cathy Teal, Executive Director, FAIR Foundation
Web: fairfoundation.org
Phone: 760-200-2766
E-mail: [email protected]
Heart Transplant Support Group
Sharp Memorial Hospital
San Diego, CA 92123
Contact: Christie Ortiz
Web: https://www.sharp.com/health-classes/heart-transplant-support-group-97
Phone: 800-82-SHARP
Kidney and Pancreas Transplant Support Group
UC Irvine Medical Center
101 The City Drive, Orange, CA 92868
Contact: Robin Worker
Phone: 714-456-8342
Liver Transplant Support Group
UCLA
Los Angeles, CA 90095
Contact: Peggy Stewart
Phone: 310-825-5921
E-mail: [email protected]
Liver Support Group
USC University Hospital
1500 San Pablo St., Los Angeles, CA 90033
Contact: Marie Murphy
Phone: 714.213.1816
E-mail: [email protected]
Liver Transplant Support Group
UCSF Medical Center
San Francisco, CA 64143
Contact: Zev Weinberg, LCSW
Phone: 415-353-8131
Web: www.ucsfhealth.org/services/organ-transplant-support-groups
Loma Linda Transplant Support Groups
English
Meets in person the 1st Monday of the month, 2:00-3:30 pm
Location: 197 East Caroline Street San Bernardino, CA 92408
Interested in attending, please email [email protected]
En español
Meets over Zoom the 1st Wednesday of the month, 3:30–4:30 pm
Cuando: El primer miercoles de cada mes de 3:30 pm a 4:30 pm
Zoom: https://llu.zoom.us/join
- Meeting ID#: 979 3620 9565
- Meeting password: 831383
Pediatric Solid Organ Transplant Support Group
UCLA Medical Center
Los Angeles, CA
Contact: Blair Butler, MSW
Phone: 310-267-9732
Pre and Post Organ Transplant Support Group
ADTAS, Alliance for Donation and Transplantation Awareness and Support
242 E. Hospitality Lane, San Bernardino, CA 92408
Contact: John Mitas
Phone: 951-237-2905
E-mail: [email protected]
Sacramento Area Liver Transplant Support Group
Sacramento, CA
Contact: Bob Bilyeu
Phone: 916-675-2721
E-mail: [email protected]
Sacramento Area Renal and Pancreas Support Group
UC Davis Transplant Program
Sacramento, CA
Contact: Cathy Burke
Phone: 916-734-5094
Saddleback Kidney Support Group
Saddleback Church Peace Center
1 Purpose Drive, Lake Forest, CA 92630
Contact: Helen Mills
Web: saddleback.com/connect/ministry/peace-center
Phone: 949-412-3210
E-mail: [email protected]
San Gabriel Valley Hepatitis, Liver and Transplant Support Group
Methodist Hospital
300 West Huntington Drive, Classroom #4, Arcadia, CA 91007
Contact: Sarah Douglas
Phone: 310-670-4624
Transplant Patient, Family, & Caregiver Support Group
Keck Medical Center of USC
1500 San Pablo St., Los Angeles, CA 90033
Contact: Marla Frankel, LCSW CCTSW
Phone: 323-442-9632
E-mail: [email protected]
Transplant Recipients International Organization (TRIO)
San Francisco Bay Area Chapter
P.O. Box 2804, Cupertino, CA 95015
Contact: Pati Hughes-Fudge
Web: http://www.bayareatrio.org/
Phone: 530-394-7512
E-mail: [email protected]
Transplant Recipients International Organization (TRIO)
Ventura County West Valley Chapter
955 Calgary Avenue, Ventura, CA 93004
Contact: Lucille Miller
Web: http://www.trioventurala.org/
Phone: 805-320-1009
UC San Diego Health System Liver Support Group
UC San Diego Health System
4510 Executive Drive, Suite P7, San Diego, CA 92121
Contact: Vanessa Mulsow, LCSW
Phone: 858-657-8073
E-mail: [email protected]
UC San Diego Health System Heart Transplant & VAD Support Group
UC San Diego Health – Thornton Hospital
9300 Campus Point Drive, San Diego, CA
Contact: Karen Matthews, LCSW
Phone: 858 657-5050
E-mail: [email protected]
UCLA Heart and Lung Transplant Program Support Groups
Los Angeles, CA
Contact: Cathy Levenstiein
Phone: 310-267-9874
UCSF Heart Transplant & VAD Support Group
UCSF Medical Center
San Francisco, CA
Contact: Catherine Nash, MSW
Web: https://www.ucsfhealth.org/services/organ-transplant-support-groups
Phone: 415-353-1382
E-mail: [email protected]
UCSF Lung Transplant Support Group
UCSF Medical Center
San Francisco, CA
Contact: Julie Resnik, LCSW
Web: https://www.ucsfhealth.org/services/organ-transplant-support-groups
Phone: 415-514-6799
E-mail: [email protected]
UCSF Transplant Caregiver Support Group
UCSF Medical Center
San Francisco, CA
Contact: Andrea Baird
Phone: 415-353-1040
Email: [email protected]
UOTA
United Organ Transplant Association
6870 Jones Ave., Riverside, CA 92505
Contact: Debbie Morgan
Web: www.uota.org
Phone: 951-212-6900
E-mail: [email protected]
Weekly Transplant Support Group
Cedars-Sinai Medical Center
8700 Beverly Blvd., Room 2802, Los Angeles, CA 90048
Contact: Carlie Galloway, MSW
Phone: 310-423-6850
E-mail: [email protected]
West Los Angeles Hepatitis, Liver and Transplant Support Group
Wadsworth Grounds
200 E Vernon, Long Beach, CA 90804
Contact: Charles
Phone: 562-726-1240
E-mail: [email protected]n.com
Colorado
There are no support groups available in Colorado at this time.
Connecticut
NKF of Connecticut
Cheshire, CT 06410
Contact: Marica Hildtch
Phone: 203-439-7912
E-mail: [email protected]
Delaware
Kidney Transplant Patient Education and Support Group
Christiana Care Health System
Newark, DE
Contact: Eileen Edge, LSW, MSW
Phone: 866-682-6792
TDSG (Transplant/Donor Support Group)
St Paul UAME Church
3114 N Market Street, Wilmington, DE 19809
Contact: Sandi Gibbs
Phone: 302-602-6126
E-mail: [email protected]
District of Columbia
Medstar Georgetown Transplant Institute Liver and Kidney Support Group
Medstar Georgetown Transplant Institute
- Please note that all meetings will be held virtually via Zoom until further notice.
- Audience: Liver and kidney patients can share their transplant experiences and ask questions. All adult patients, families, and caregivers are welcome to join.
- Why: The transplant process is both mentally and physically draining. Meeting others who are in a similar situation can be helpful and motivating.
- When: Third week, alternating between Mondays and Thursdays, 5:30 – 7 p.m.
Contact: Monica Hanza, MSW, LGSW
Phone: 202-444-0439
E-mail: [email protected]
Washington Heart Support Group
Washington, DC 20010
Contact: Karen Wineguard
Phone: 202-877-3220
Florida
Memorial Transplant & VAD Support Group
Memorial Transplant Institute
3501 Johnson St, Hollywood, FL 33021
Contact: Janet Delgado, LCSW
Web: mhs.net
Phone: 954-265-6810
E-mail: [email protected]
Group is open to all transplant recipients, those on waitlist, & their families.
National Organization for Transplant Enlightenment (N.O.T.E.)
13014 N. Dale Mabry #187, Tampa, FL 33618
Contact: Robert Gamble
Web: noteus.org
Phone: 813-962-6250
E-mail: [email protected]
Organ Transplant Recipients of SW FL, Inc.
PO Box 100962, Cape Coral Florida 33910
Contact: Shamie Kelly
Web: organsupport.org
E-mail: [email protected]
Renal Transplant Support Group
Halifax Health-Center for Transplant Services, Daytona, FL
Phone: 386-947-4650
Second Chance Support Group
Second Chance Jax
Jacksonville, FL 32224
Contact: Kristin Corlett
Phone: 904-314-3436
E-mail: [email protected]
Second Wind Lung Transplant Association, Inc.
300 South Duncan Avenue, Suite 227, Clearwater, FL , FL 33755
Web: http://2ndwind.org
Phone: 888- 855-9463
Shands Lung Transplant
UF Health – Shands Hospital
PO Box 100223, Gainesville, FL 32610
Contact: Micki Nodurft-Luck, LCSW, CCTSW
Web: https://ufhealth.org/transplant-center/lung
Phone: 352-265-8940
E-mail: [email protected]
Tallahassee Kidney Transplant Support Group
2617 Mitcham Drive suite 102, Tallahassee, FL 32308
Contact: Laura Mullinax
Phone: 850-878-1171
E-mail: [email protected]
Tallahassee/Big Bend Lung Transplant Support Group
Tallahassee, FL
Contact: Sandra Skelton
Phone: (850) 228-2616
E-mail: [email protected]
Tampa Bay Liver Disease and Transplantation Support Group
Tampa General Medical Group Transplant Speciality Services
409 Bayshore Blvd., Tampa, FL 33606
Contact: Stanley Genstein
Web: www.tgh.org/sg.htm
Phone: 813-260-3723
E-mail: [email protected]
Transplant Caregivers Support Group
Tampa General Medical Group Transplant Specialty Services
Tampa, FL
Contact: Stanley Genstein
Web: https://www.tgh.org/patients-visitors/classes-events
Phone: 302-745-9950
E-mail: [email protected]
Transplant & VAD Support Group
Memorial Cardiac & Vascular Institute
3501 Johnson St, Hollywood, FL 33021
Contact: Pat Dennis, LCSW
Web: mhs.net
Phone: 954-265-6810
E-mail: [email protected]
Georgia
Brunswick Transplant Support Group
Brunswick, GA
Contact: Joan Mobley
Phone: 912-266-5994
E-mail: [email protected]
Hawaii
Transplant Support Group
Queen’s Medical Center
550 S. Beretania St, Suite 404, Honolulu, HI 96813
Contact: Shona Peters
Phone: 808-691-8897
E-mail: [email protected]
Idaho
There are no support groups available in Idaho at this time.
Illinois
Kidney and Pancreas Support Group
OSF St. Francis Kidney Transplant Services
Peoria, IL
Contact: Karen Welborn, MSN, RN, NEA-BC
Web: www.osfhealthcare.org/services/transplant-services/
Phone: 309-655-4101
Kidney/Pancreas Support Group
Memorial Medical Center
701 N. 1st St, Springfield, IL 62781
Contact: Holly Heinz, LSW, MSW
Phone: 217-788-3441
Live Life! Pre & Post Transplant Support Group
Illinois Valley Community Hospital
925 West Street, Peru, IL 61354
Contact: Illinois Valley Community Hospital
Phone: 815-780-3521
E-mail: [email protected]
Lung and Heart/Lung Transplant Support Group
Loyola University Medical Center
2160 S First Ave, Maywood, IL 60153
Contact: Susan Long
Phone: 708-216-5454
E-mail: [email protected]
Lung Transplant Support Group
University of Chicago Medicine
5841 S. Maryland Ave., Chicago, IL 60637
Contact: Francis Hammon
Web: https://www.uchospitals.edu/
Phone: 773-702-4608
E-mail: [email protected]
Organ Transplant Support, Inc.
PO Box 471, Naperville, IL 60566
Contact: Carol Olash, President
Phone: 630-527-8640
E-mail: [email protected]
Transplant Support Group
University of Chicago
5841 S. Maryland, Chicago, IL
Contact: Rina Murao
Phone: 773-834-2003
Transplant Support Group
American Transplant Association
47 W Polk Street, Suite 100-140, Chicago, IL
Web: www.americantransplant.org
Phone: 800-494-4527
Transplant Support Group
University of Chicago
5841 S. Maryland, Chicago, IL
Contact: Danley Kohn
Phone: 773-834-8076
E-mail: [email protected]
Transplant Support Group of Illinois
Centegra Hospital
McHenry, IL 60050
Contact: Rich Barclay
Phone: 847-680-4157
E-mail: [email protected]
Transplant Support Group of Northern Illinois
Antioch, IL 60002
Contact: Carol Prebianca
Phone: 847-838-4754
E-mail: [email protected]
Indiana
Fort Wayne Transplant Support Group
Contact: Larry Hilsmier
Phone: 260-637-6568
E-mail: [email protected]
Hobart: New Beginnings Transplant Support Group
St. Mary’s Hospital auditorium
- Audience: All organs, pre- and post-transplant recipients and caregivers
- When: Third Wednesday of the month, 6:00 p.m.
Contact: Jason Delgado
Phone: 219-663-3747 or 219-775-2189 or 219-577-5581
Web: https://www.comhs.org/programs-and-events/n/new-beginnings-transplant-network
Indianapolis: IU Health Heart Lung Transplant Support Group
IU Health Methodist Hospital, Parking Garage 2
Basement of the Professional Building, Room DG 422A
- Audience: Heart or lung, pre- and post-transplant recipients and caregivers
- When: Fourth Monday of the month, 6:00 p.m.
Contact: Sandy Cloyd, trained IU Health volunteer
Phone: 317-405-5025
Facebook: IU Health Heart and Lung Transplant Support Group
Indianapolis: IU Health Transplant Support Group
Cancer Pavilion at IU Health University Hospital, Room RT102
- Audience: All organs, pre- and post-transplant recipients and caregivers
- When: Third Thursday of every month, 12:30–1:30 p.m.
- Contact: Rachel Holmes, PhD, IU Health Transplant psychologist
- Phone: 317-944-7320
- Facebook: IUHTransplant
- Virtual meetings: To ensure the health and safety of all our patients and team members during the coronavirus (COVID-19) pandemic, the support group is meeting online. To reserve your spot, email [email protected] or visit facebook.com/iuhtransplant and click on Events.
Hartford City: Organ Transplant Support Group
IU Health Blackford Hospital, Main Conference Room
- Audience: All organs, pre- and post-transplant recipients and caregivers
- When: Third Thursday of every month, 3:00-4:00 p.m.
Contact: Abbey Chalfant, RRT, IU Health Blackford
Phone: 765-331-2117
Facebook: IU Health Ball, Blackford & Jay, under Events
South Bend: Second Wind Support Group
South Bend Christian Reformed Church, 1855 North Hickory Road
- Audience: People with respiratory difficulties
- When: Every Tuesday, 1:30 p.m.
Contact: Betsy Cichon
Phone: 574-272-9085
Other support groups: https://www.2ndwind.org/transplantation/support-groups/#indiana
Iowa
Anxiously Awaiting
University of Iowa Hospitals & Clinics, Soc. Clinic
P.O. 315, Urbandale, IA 50323
Contact: Belinda Deal
Phone: 515-570-1710
E-mail: [email protected]
Transplant Support Group
Great River Medical Center, Oak Room
Burlington, IA
Contact: Sam Johnson
Phone: 319-758-9665
Kansas
Liver Transplant Support Group
University of Kansas Hospital
3901 Rainbow Blvd, Kansas City, KS 66160
Contact: Kellie Elliott, LMSW
Phone: 913-588-4417
E-mail: [email protected]
Kentucky
Heart to Heart Support Group
University of Kentucky HealthCare Transplant Center
2333 Alumni Park Plaza, Ste 300, Lexington, KY 40517
Contact: Becky Martin
Web: https://ukhealthcare.uky.edu/transplant-center
Phone: 859-323-4843
E-mail: [email protected]
UK Healthcare Cardiothoracic Transplant/VAD Support Group
University of Kentucky HealthCare Transplant Center
2333 Alumni Park Plaza, Ste 300, Lexington, KY 40517
Contact: Becky Martin
Web: https://ukhealthcare.uky.edu/transplant-center
Phone: 859-323-4843
E-mail: [email protected]
University of Kentucky Lung Transplant Support Group
Kentucky Clinic
740 South Limestone Street, Ste K116 (first floor between Pharmacy and General Surgery), Lexington, KY 40536
Contact: April Bruce
Phone: 859-323-6019
E-mail: [email protected]
University of Kentucky Liver Support Group
Kentucky Clinic
740 South Limestone Street, Ste K301- K354, Lexington, KY 40536
Contact: Kristen Workman
Phone: 859-323-3228
E-mail: [email protected]
University of Kentucky Kidney Support Group (The Kidney Collaborative)
Kentucky Clinic
Lexington, KY
Contact: Alex Berrios
Phone: 404-401-0096
E-mail: [email protected]
Louisiana
Organ Transplant Support Group
Opelousas, LA 70570
Contact: Mary Quebedeaux
E-mail: [email protected]
Maine
There are no support groups available in Maine at this time.
Maryland
Living With Hepatitis/Before and After Transplant Support Group
Frederick County Hepatitis C Clinic
350 Montevue Avenue, Entrance “B”, Frederick, MD 21703
Mercy for Livers
301 St. Paul Street, Baltimore, MD 21202
Contact: Rose Stelmack
Phone: 443-503-6947
E-mail: [email protected]
Quarter Century Club
415 Piedmont Avenue, Cumberland, MD 21502
Contact: George E Franklin 3rd
Web: www.quartercenturyclub.org
Phone: 301-328-2601
E-mail: [email protected]
TRIO – Transplant Recipients International Organization
TRIO-Transplant Recipients International Organization
1730 Twin Springs Rd, Suite 300, Baltimore, MD 21227
Contact: Marty Maren – President
Phone: 410-558-0451
E-mail: [email protected]
Massachusetts
Dare to be Alive
230 North Main Street, South Yarmouth , MA 02664
Contact: Deanna Arnold
Phone: 508-398-5473
Kidney/Pancreas Pre- & Post- Transplant Educational Support Group
UMass Memorial Medical Center, Transplant Conference Room, Level A, Worcester, MA 01655
Contact: Sara Grady, LICSW
Phone: 508-334-7613
E-mail: [email protected]
Kidney Pancreas Transplant Support Group
UMass Memorial Medical Center, Worcester, MA 01655
Contact: Transplant Social Worker
Web:www.umassmemorialhealthcare.org
Phone: 508-334-1269
Liver Transplant Group
Beth Israel Deaconess Medical Center
185 Pilgrim Road, Farr 10 Solarium, Boston, MA 02215
Contact: Noelle Dimitri
Phone: 617- 632-9815
Liver Transplantation Support Group
UMass Memorial Medical Center
Worcester, MA
Contact: Doris Tripp-MacPherson, LICSW
Web: www.umassmemorialhealthcare.org
Phone: 774-441-8646
Renal/Pancreas Transplant Support Group (Pre and Post Transplant)
UMass Memorial Medical Center
Lazare Research Building, Conference Room 203
Worcester, MA
Contact: Ellen Wells, LICSW
Phone: 508-334-7613
Transplant Recipients International Organization (TRIO)
New England Chapter (serving CT, ME, MA, NH, RI and VT)
881 E 2nd St, Unit 4, Boston, MA 02127
Contact: Virginia Watkins
Phone: 617-851-4270
E-mail: [email protected]
Michigan
Heart – LVAD Support Group
University of Michigan Medical Center
Ann Arbor, MI
Contact: Ruth Halben
Phone: 734-763-9788
E-mail: [email protected]
Heart LVAD Support Group
Henry Ford Hospital
Detroit, MI
Contact: Ginger St. John, MSW
Phone: 313-916-2724
E-mail: [email protected]
Heart Support Group
University of Michigan Medical Center
Ann Arbor, MI
Contact: Ruth Halben, LMSW
Phone: 734-763-9788
E-mail: [email protected]
Kidney/Pancreas Support Group
Henry Ford Hospital
Detroit, MI
Contact: Patrick Williams, MSW
Phone: 313-916-1290
E-mail: [email protected]
kTalk
National Kidney Foundation of Michigan
1169 Oak Valley Drive, Ann Arbor, MI 48108
Contact: Susan Thomas, MD
Phone: 1-800-482-1455
E-mail: [email protected]
Lakeshore Transplant Support Group
Hackley Hospital
1700 Clinton St, Muskegon, MI 49442
Contact: CJ Raugh, President
Phone: 231-740-5901
E-mail: [email protected]
Liver Support Group (Ann Arbor)
University of Michigan Medical Center
Ann Arbor, MI
Contact: Lynda Asher
Phone: 734-668-0334
Liver Support Group (Detroit)
Henry Ford Hospital
Detroit, MI
Contact: Sophia Awan
Phone: 313-916-1352
Liver Support Group (Detroit)
Henry Ford Hospital
Detroit, MI 48202
Contact: Ann Zalucki
Phone: 313-916-1352
E-mail: [email protected]
Liver Support Group (St. Charles)
Henry Ford Hospital
15635 W Townline Rd, St. Charles, MI 48655
Contact: Ann Zalucki
Phone: 313-916-1352
E-mail: [email protected]
LOTTS-Living Organ Transplant and Tissue Support Group
Kalamazoo, MI
Contact: Jan Getz
Phone: 269-349-6630
E-mail: [email protected]
Lung Support Group (Ann Arbor)
University of Michigan Medical Center
Ann Arbor, MI
Contact: Lizbeth Warner
Phone: 734-615-5334
Lung Support Group (Detroit)
Henry Ford Hospital
Detroit, MI
Contact: Anne Eshelman
Phone: 313-916-2724
Lung Support Group
University of Michigan Medical Center
Ann Arbor, MI
Contact: Amy Van Zee, LMSW
Phone: 734-615-5334
E-mail: [email protected]
Lung Transplant Support Group
Bronson Battle Creek Hospital
Battle Creek, MI
Contact: Deborah Pierce BS RRT
Phone: 269-245-8438
E-mail: [email protected]
Mid-Michigan Transplant Support Group (Clare)
Mid Michigan Medical Center
Clare, MI
Contact: Terri Maynard
Phone: 989-430-4174
E-mail: [email protected]
Mid-Michigan Transplant Support Group (Saginaw)
Saginaw, MI
Contact: Mary Catherine Siers
Phone: 989-792-1334
E-mail: [email protected]
Organ Transplant Awareness Group
Alpena, MI
Contact: Jerome Smigelski
Phone: 989-354-3342
E-mail: [email protected]
St. John Transplant Support Group
Detroit, MI
Contact: Jennifer Bruns
Phone: 313-343-3047
E-mail: [email protected]
Second Chance Transplant Support Group
St. John Macomb Hospital
Warren, MI
Contact: Pam Hill
Phone: 586-756-7274
Email: [email protected]
Second Time Around Transplant Support Group
Spectrum Health
2902 Bradford NE, Grand Rapids, MI
Contact: Jacquie Oliai
Phone: 616-391-2802
E-mail: [email protected]
Transplant Connection
Beaumont Health
3535 West 13 Mile Road-Suite 644, Royal Oak, MI 48073
Contact: Sophia Awan, LMSW
Phone: 248-551-1201
E-mail: [email protected]
Transplant Support Group
Jackson, MI
Contact: Cathy McAllister
Phone: 517-783-7320
Transplant Support Group of Northern Michigan
Gaylord, MI
Contact: Bev Cherwinski
Phone: 989-983-4188
Minnesota
Heart Transplant and VAD Caregiver Support Group
University of Minnesota Medical Center – Fairview
420 Delaware St SE, Minneapolis, MN 55455
Contact: Natalia Carlson, MSW, LICSW or Angela Herr, MSW, LICSW
Phone: 612-273-5670 or 612-273-5774
E-mail: [email protected] or [email protected]
Heart Transplant Support Group
Fairview-University Medical Center
MMC 181 420 Delaware Street SE, Minneapolis, MN
Contact: Natalia Carlson, MSW, LICSW or Angela Herr, MSW, LICSW
Phone: 612-273-5670 or 612-273-5774
E-mail: [email protected] or [email protected]
Lung Transplant Support Group
Fairview-University Medical Center
MMC 181 420 Delaware Street SE, Minneapolis, MN 55455
Contact: Marget Schmidtke, LICSW
Phone: 612-273-5796
VAD Support Group
University of Minnesota Medical Center – Fairview
420 Delaware St SE, Minneapolis, MN 55455
Contact: Natalia Carlson, MSW, LICSW or Angela Herr, MSW, LICSW
Phone: 612-273-5670 or 612-273-5774
E-mail: [email protected] or [email protected]
Mississippi
Transplant Support Group
University of MS Medical Center
2500 North State Street, Jackson, MS 39216
Contact: Sherie Brock
Phone: 601-984-5065
E-mail: [email protected]
Missouri
Heart Transplant Support Group
Barnes-Jewish Hospital
St. Louis, MO 63110
Contact: Jennifer Manolis, LCSW
Phone: 314-362-3980
Heart Transplant Support Group
Barnes-Jewish Hospital
St. Louis, MO 63108
Contact: Nina Jarvis, MSW, LCSW
Phone: (314) 362-5070
E-mail: [email protected]
Kidney Transplant Support Group
Barnes-Jewish Hospital
St. Louis, MO 63110
Contact: Karen Politsch, LCSW
Phone: 314-362-5577
Liver Transplant Support Group
Barnes-Jewish Hospital
St. Louis, MO 63110
Contact: Kelly Dougherty, MSW
Phone: 314-362-1956
E-mail: [email protected]
Liver Transplant Support Group
Barnes-Jewish Hospital
1108 E 495th Rd, BOLIVAR, MO 65613
Contact: Linda King
Phone: 417-298-8699
E-mail: [email protected]
Liver Transplant Support Group
Barnes-Jewish Hospital
St. Louis, MO 63110
Contact: Kathleen Walton, MSW
Phone: 314-362-1956
Liver Transplant Support Group
University of Kansas Hospital
8610 N Kansas Ave., Kansas City, MO 64156
Contact: Michael P Michael
Phone: 816-522-7638
E-mail: [email protected]
Lung Transplant Support Group
Barnes-Jewish Hospital
St. Louis, MO 63110
Contact: Rebecca Bathon, LCSW
Phone: 314-362-6127
E-mail: [email protected]
Second Wind Lung Transplant Association, Inc. (St. Louis)
St. Louis Chapter
3440 Halliday Avenue, St. Louis, MO 63118
Contact: Tom Archer
Phone: 314-664-6360
E-mail: [email protected]
Transplant Institute Support Group
Research Medical Center
2316 E. Meyer Blvd., Kansas City, MO 64132
Contact: Kristen Derks
E-mail: [email protected]
Montana
There are no support groups available in Montana at this time.
Nebraska
New Hearts Transplant Support Group
Contact: Lisa Carmichael
Email: [email protected]
Phone: 402-905-8077
Nevada
There are no support groups available in Nevada at this time.
New Hampshire
Concord Transplant Group – Pre/Post
Concord, NH 03301
Contact: Yoli Jones
Phone: 603-224-7121
E-mail: [email protected]
Pre & Post Transplant – New Hampshire
Nashua, NH
Contact: Ron Rioux
Phone: 603.889.1775
E-mail: [email protected]
New Jersey
Central Jersey Transplant Lifeline Support Group
Riverview Medical Center
466 JACKSON AVE 2FL, HACKENSACK, NJ 07601
Contact: Yasmeen Muhammad
Phone: 732-450-1271
E-mail: [email protected]
Central Jersey Transplant Lifeline Support Group
Riverview Medical Center
Red Bank, NJ 08510
Contact: Caren
Phone: 609-529-5127
E-mail: [email protected]
Kidney/Pancreas Pre- and Post-Transplant Support Group
Robert Wood Johnson University Hospital
New Brunswick, NJ
Contact: Jamie D’Angelo, LSW
Phone: 732-235-3361
E-mail: Jamie.d’[email protected]
Lung Transplant Support Group (Pre and Post)
St. Clare’s Health System, Dover (Morris), NJ Campus
Dover, NJ
Contact: Jean Wiarda, RN
Phone: 973-989-3128, voicemail #4
E-mail: [email protected]
Newark Beth Israel Lung Transplant Support Group
Newark Beth Israel Medical Center
201 Lyons Ave, Newark, NJ 07112
Contact: Lauren Dispinseri, MSW, LCSW
Phone: 973-926-3178
E-mail: [email protected]
New Mexico
Transplant Community Support Group
Organ Transplant Awareness Program of New Mexico
Contact: Venae Warner or Nancy Dodge
Web: www.otapnm.org
Phone: 505-344-0512 or 505-269-4363
E-mail: [email protected]
New York
Children’s Liver Alliance (Biliary Atresia and Liver Transplant Network)
3835 Richmond Avenue, Box 190, Staten Island, NY 10312
Phone: 718-987-6200
E-mail: [email protected]
Living Healthy with Kidney Disease
Kidney Foundation of
462 Grider Street, Williamsville, NY 14221
Contact: Barbara Breckenridge
Web: http://kfwny.org/
Phone: 716-510-6702
E-mail: [email protected]
Morgan Stanley Children’s Hospital of New York-Presbyterian
3959 Broadway, New York, NY 10032
Pediatric Liver Transplant Support Group
Contact: Lauren Hunter
Phone: 212-305-3000
Email: [email protected]
Zoom meetings on the first Monday of every month at 5:00 p.m.
New York-Presbyterian Hospital / Weill Cornell Medical Center
525 East 68th Street, New York, NY 10065
Kidney and Pancreas Transplant Patient Support Group
Contact: Alicia Henry, LCSW, CCTSW
Phone: 212-746-3218
New York-Presbyterian Hospital / Weill Cornell Medical Center
525 East 68th Street, New York, NY 10065
Liver Transplant Patient Support Group
Contact: Samantha Bennahum, LCSW
Phone: 646-962-5337
New York-Presbyterian Hospital /Columbia University Irving Medical Center
622 West 168th Street, New York, NY 10032
Heart Transplant Patient Support Group
Contact: Wendy Ramirez, LCSW
Phone: 212-305-6391
New York-Presbyterian Hospital /Columbia University Irving Medical Center
622 West 168th Street, New York, NY 10032
Lung Transplant Patient Support Group
Contact: Bailey Petry, LCSW
Phone: 212-342-1364
New York-Presbyterian Hospital /Columbia University Irving Medical Center
622 West 168th Street, New York, NY 10032
Liver Transplant Patient Support Group
Contact: Aimee Muth, LCSW
Phone: 212-305-1884
The Recanati/Miller Transplantation Institute
The Mount Sinai Medical Center
18 Handsome Ave, NY, NY 11784
Contact: Javier Lopez
Phone: 212-241-8035
E-mail: [email protected]
Transplant Recipients International Organization (TRIO)
Long Island Chapter
Garden City, NY 11530
Web: www.litrio.org/
Email: [email protected]
Transplant Support Group of Western New York
5605 Genesee Street, Lancaster, NY 14086
Contact: Michael J. Martino
Web: www.tsgwny.org
Phone: 716-685-4799
Transplant Support Organization (TSO)
1335 Mace Avenue, Bronx, NY 10469
Contact: Ira J. Copperman
Web: www.transplantsupport.org
Phone: 917-838-4525
E-mail: [email protected]
Transplants Save Lives, Inc. Support Group
Serving Rockland and Orange Counties
Nanuet, NY 10954
E-mail: [email protected]
TRIO Manhattan Chapter
Transplant Recippient International Organization-Manhattan Chapter
72 Park Terrace West #E38, New York, NY 10034
Contact: Bethany Stout-Davie
Phone: 917-468-4971
E-mail: [email protected]
TSO of Staten Island
Staten Island, NY 10314
Web: www.transplantsupport.org
Phone: 718-317-8073
E-mail: [email protected]
Westchester Medical Center Transplant Life Support Group
Westchester Medical Center
100 Woods Road, Valhalla, NY 10595
Contact: Mimi Greenman, LCSW
Phone: 914-493-1048
E-mail: [email protected]
North Carolina
Lung Transplant Support Group
UNC Hospitals
101 Manning Drive, Chapel Hill, NC 27514
Contact: Laurie McDonald, LCSW
Phone: 919-966-6341
E-mail: [email protected]
Morganton Organ Transplant Support Group
106A Normandy Drive, Morganton, NC 28655
Contact: Wanda Buffington, Coordinator
Phone: 828-302-7646
E-mail: [email protected]
Second Wind Lung Transplant Association, Inc.
2509 Old NC 10, Hillsborough, NC 27278
Contact: Kathryn Flynn, Duke Liaison
Web: www.2ndwind.org
Phone: 919-732-0851
E-mail: [email protected]
The Newhearts
Carolinas Medical Center
P.O. Box 32861, Charlotte, NC 28232
Contact: Cherie Cone, MSW
Phone: 800-562-5752
Vidant Transplant Support Group
Vidant Medical Center
4S – 10 Brody Building, Greenville, NC 27834
Contact: Barbara Lee
Phone: 252-744-3638
E-mail: [email protected]
North Dakota
Sanford Health Transplant Support Group
Transplant Office
Fargo, ND 58102
Web: https://www.sanfordhealth.org/medical-services/transplant-surgery
Phone: 701-234-6715
Ohio
Buckeye GIFT – Giving Inspiration for Transplantation
Lifeline of Ohio
Columbus, OH
Phone: 800-525-5667
Greater Cincinnati Area Lung Transplant Support
4120 Beamer Court, Cincinnati, OH 45245
Contact: Cynthia and Bob Lohstroh
Phone: 513-752-0451
E-mail: [email protected]
Transplant Recipients International Organization (TRIO)
Greater Cleveland Chapter
Cleveland, OH 44101
Contact: Chris Shay-Downer, MBA BSN RN CCTC
Phone: 216-644-6747
Web: https://triocleveland.org
Transplant Recipients International Organization (TRIO)
Akron-Canton Chapter
Copley, OH 44321
Contact: Pat Summers
Phone: 330-697-4820
E-mail: [email protected]
Oklahoma
INTEGRIS Baptist Medical Center
3300 NW Expressway, Oklahoma City, OK
Contact: Rachel Allen
Web: integrisok.com
Phone: 405-949-3349
E-mail: [email protected]
Kidney and Liver Failure Transplant Support Group
Oklahoma City, OK
Contact: Micki Anderson, LCSW
Phone: 405-640-7949
E-mail: [email protected]
Transplant Recipients International Organization (TRIO-Oklahoma)
Oklahoma City, Oklahoma
Contact: Lorrinda Davis
Web: trio-oklahoma.org
Phone: 405-302-8400
Peer-to-Peer meetings every Thursday from 6:30-7:30 p.m. on Zoom (for pre- and post-transplant patients). In 2021, we plan to begin a Caregiver and Young Adult program.
Oregon
Oregon Pulmonary Fibrosis/Lung Transplant Support Group
Tualitan, OR
Contact: Mike Henderson
Phone: 503-936-8395
E-mail: [email protected]
Pennsylvania
Transplant Recipients International Organization (TRIO)
Philadelphia Chapter
Web: https://TRIOPhiladelphia.org
Transplant Recipients International Organization (TRIO)
Pittsburgh Chapter
Contact: Anthony L. Pugliese, President
Phone: 412-609-3299
E-mail: [email protected]
Web: http://www.trio-pittsburgh.org
Western PA Kidney Support Groups
Pittsburgh, PA
Contact: Kathie Hunt
Email: [email protected]
Phone: 412-915-9055
York Area Transplant Support Group
Apple Hill Medical Center
York, PA 17403
Contact: Dwendy Johnson
Phone: 215-285-9548
Email: [email protected]
Puerto Rico
There are no support groups available in Puerto Rico at this time.
Rhode Island
Rhode Island Hospital Transplant Peer Support Group/Educational Series
Rhode Island Organ Donor Awareness Coalition
PO Box 40926, Providence, RI 02940
Contact: Dawn Porreca Antaya
Web: https://www.facebook.com/RIODAC/
Phone: 401-253-0011
E-mail: [email protected]
Rhode Island Hospital Transplant Peer Support Group/Educational Series
Rhode Island Organ Donor Awareness Coalition
PO Box 40926, Providence, RI 02940
Contact: Samantha Richards
Web: www.riodac.org
Phone: 401-253-0011
E-mail: [email protected]
South Carolina
Charleston Transplant Support Group
2055 Barn Swallow Rd, Summerville, SC 29483
Contact: Carol Dolida
Phone: 843-475-7773
E-mail: [email protected]
TransplantTalk SC
235 Bateaux Dr., Summerville, SC 29483
Contact: Gary Simmons
Phone: 704-699-3046
E-mail: [email protected]
Web: TransplantTalkSC.org
Second Chance Transplant Support Group
Holland Avenue Baptist Church
801 12th Street, Cayce, SC 29033
Contact: Steve Ford
Phone: 803-394-2364
E-mail: [email protected]
Facebook: Second Chance Group of South Carolina
South Dakota
There are no support groups available in South Dakota at this time.
Tennessee
Baptist BraveHearts
Baptist Memorial Hospital-Memphis
6025 Walnut Grove, Suite 111, Memphis, TN 38120
Contact: Shalonda Campbell
Web: www.baptistonline.org/services/transplant/
Phone: 901-226-0168
E-mail: [email protected]
Transplant Support Group
National Kidney Foundation of East Tennessee
Knoxville, TN
Contact: Patti Gold
Phone: 614-882-6184
Transplant Support Group
The University of Tennessee Medical Center
1924 Alcoa Highway, Knoxville, TN
Contact: Debra Winston, BSW
Phone: 865-386-7235
E-mail: [email protected]
Texas
The Helping Hearts
The Methodist Hospital
Houston, TX 77058
Phone: 713-441-5451
Heart Transplant Support Group
Ascension Seton Heart Specialty Care & Transplant Center
1301 W. 38th St. #514, Austin, TX 78705
Contact: Shay Rogillio, LCSW, CCTSW-MCS
Web: www.seton.net
Phone: 512-681-0500
E-mail: [email protected]
LVAD Support Group
Ascension Seton Heart Specialty Care & Transplant Center
Ascension Seton Medical Center Austin, South Conference Room
1201 W. 38th St., Austin, TX 78705
Contact: Shay Rogillio
Web: www.seton.net
Phone: 512-681-0500
E-mail: [email protected]
Scott & White Multi-Organ Transplant Support Group
Scott & White Transplant Center
Temple, TX 76508
Contact: Catina Kinney, MSSW, LMSW
Web: https://www.bswhealth.com/specialties/transplant
Phone: 254-724-7548
E-mail: [email protected]
Transplant Recipients International Organization (TRIO)
Texas Panhandle Chapter
Plainview, TX 79073
Contact: Dave Courtney
Phone: 866-706-9828
UTMB Galveston: Texas Transplant Center Support Group
- Group is currently virtual. Open to all pre- and post-transplant patients and LVAD patients as well as to their family and caregivers.
- Where: League City at the Primary and Specialty Care (Entrance A) at Victory Lakes Town Center, 2660 Gulf Freeway South. Look for posted signs.
- When: Monthly on first Tuesday, 4:40 to 6:00p.m.
Contact: Caroline Tremblay, Transplant Social Worker
Phone: 409-772-5753
E-mail: [email protected]
West Texas Transplant Support Group
University Medical Center
602 Indiana Avenue, Lubbock, TX 79415
Phone: 806-761-0710
E-mail: [email protected]
Utah
Heart Transplant Support Group
Sharp Memorial Hospital
750 W. Mariposa Dr, St. George, UT 84780
Contact: Sherry Crane
Phone: 800-82-SHARP
E-mail: [email protected]
Vermont
There are no support groups available in Vermont at this time.
Virginia
Culpeper Transplant Group
207 Sunset Lane, Culpeper, VA 22701
Contact: Sheila Horton
Phone: 540-825-4815
Heart/Lung Transplant Support Group
University of Virginia Health System
P.O. Box 800 191, Charlottesville, VA 22908
Contact: Bill Potts, MSW, CSAC
Phone: 800-257-0757
E-mail: [email protected]
Kidney and Liver Transplant Support Group
Hume-Lee Transplant Center
Richmond, VA
Contact: Sheila Bullock, MSW
Web: www.vcuhealth.org/transplant
Phone: 804-828-8193
E-mail: [email protected]
Kidney Transplant Support Group
Henrico Doctor’s Hospital, VA Transplant Center
Richmond, VA
Contact: Pat Dawson
Email: [email protected]
Phone: 804-289-4941
Liver Transplant Support Group (Charlottesville)
University of Virginia Health System
P.O. Box 800265, Charlottesville, VA 22908
Contact: Kristen Harmon, LCSW
Phone: 434-297-6031
Liver Transplant Support Group (Winchester)
100 Green Park Ct, Winchester, VA 22602
Contact: Mary Reed
Phone: 540-550-4652
E-mail: [email protected]
LVAD and Transplant Support Group
Sentara Heart Hospital
600 Gresham Drive, Norfolk, VA 23507
Phone: 757-388-2831
Transplant Recipients International Organization (TRIO)
Nation’s Capital Area Chapter
Arlington, VA
Phone: 703-825-3290
E-mail: [email protected]
Website: http://www.trio-ncac.org/
Washington
Lung Transplant Support Group
University of Washington Medical Center
Seattle, WA
Contact: Angela Wagner, MSW
Phone: 206-598-2676
E-mail: [email protected]
TRIO NW Pediatric Transplant Support Group
TRIO Pacific Northwest
930 NE High St F-224, Issaquah, WA 98029
Contact: David Hall
Phone: 425-246-5037
E-mail: [email protected]
TRIO Pacific Northwest Transplant Support Group
TRIO Pacific Northwest
930 NE High St., Issaquah, WA 98029
Contact: David Hall
Web: trioseattle.org
Phone: 425.281.2779
E-mail: [email protected]
West Virginia
Charleston Renal Support Group
Dunbar, West Virginia
Contact: Judith Malone
Phone: 304-345-7322
E-mail: [email protected]
Wisconsin
Coulee Region Transplant Support Group
Franciscan Skemp Healthcare
Onalaska, WI
Contact: Jena Casper
Phone: 608-392-6117
Froedert Awaiting Transplant Support Groups
Menomonee Falls, WI
Contact: Heather Sitter
Web: https://www.froedtert.com/classes-events/transplant-support-group
Phone: 414-777-7497
E-mail: [email protected]
Kids With Heart National Association for Children’s Heart Disorders
1578 Careful Drive, Green Bay, WI 54304
Phone: 800-538-5390
E-mail: [email protected]
St. Luke’s Heart Transplant Support Group
Milwaukee, WI
Phone: 414-646-2550
Vernon Memorial Hospital Heart Center Support Group
Viroqua, WI
Contact: Bonnie Anderson
Web: www.vmh.org
Phone: 608-637-4497 or direct 608-637-4292
Email: [email protected]
Wyoming
There are no support groups available in Wyoming at this time.
